That's it the work for today is done Seth’s Legacy: Seeing & Supporting People in Palliative & End of Life Care is complete what a day thank you all for your kindness love & support today and across the last 10 years I miss this man so much that's why #sethslegacy is important
'Quite a day….I don’t think I have ever been to anything where the patient (and carer) is so prominent and good to have so many to share this with and to provoke further discussion and change ' a little feedback from yesterdays #sethslegacy event and its music to my ears
What a wonderful and inspiring day to make 10 years of #sethslegacy Thank you so much Lesley Goodburn for being you 💜
Steve telling his pancreatic cancer story an unfortunate accident led to a pancreatic cancer diagnosis sharing his experience of care through treatment for pancreatic treatment and surgery #sethslegacy
The letters are available in written digital story & audio versions shared to help medical nursing & health care students learn from Seth's & my experience of pancreatic cancer palliative & end of life care as relevant now as they were when they were written in 2014 #sethslegacy
Next we hear from Bradley & his wife Claire Brad was diagnosed with inoperable pancreatic cancer given 3 months to live 18 months later & many acute admissions & close death experiences Brad shares his story of gratitude hope & resilience through a series of films #sethslegacy
These three aims have driven the work of #sethslegacy over the last ten years and were decided by me as I sat beside Seth's bed listening to his breath get shallower and fade I promised him I would do something and 10 years we have #sethslegacy
Today we have a fabulous line of speakers at #sethslegacy conference we hear from lived experience partners Brad & Steve so important to hear from people affected by pancreatic cancer two different stories with different outcomes with valuable learning about person centred care
Whats the future of Seth’s Story and Educational Resources and #sethslegacy watch this space for the Seth Goodburn Foundation a charity that will share experiences of care through creativity to support health and social care education
Frist up at the Seth’s Legacy: Seeing & Supporting People in Palliative & End of Life Care we have introductions aims and welcome from Susan Buttress Stephen Mason and @fionadmurphy looking forward to a great day of learning and sharing #sethslegacy
What next for #sethslegacy ? An event supported by Marie Curie Pancreatic Cancer UK 14th June 2024 limited spaces face to face in London but lots of online spaces to explore 3 aims of Seth’s Story and Educational Resources and to share #Lesleystory on the anniversary of Seth's death #RIPSeth #Sethslegacy
Some of the work that has been done as part of #sethslegacy over the last 10 years with the 3 aims in mind so proud of all the awareness and money raised for Pancreatic Cancer UK all the improvements in EOLC Hospice UK and all the research PrecisionPanc
These beautiful purple boots are today’s #PostItPurple4Seth what will you see today that purple ? Take a snap and post it to help raise awareness of pancreatic cancer #sethslegacy
Tomorrow my colleague the fabulous Gunn Grande will be sharing her CarerProject NIHR Evidence research into carers supporting their loved ones at end of life #sethslegacy I was really pleased to be a part of the research projects with others carers with lived experience
Today’s #PostItPurple4Seth
Is a purple tarpaulin covering a car What will you see today? What can you take a snap off and post it Purple for Seth #sethslegacy
Great to hear about all the work Anna Crofton and the team have been to ensure that staff can actively support patients and carers to have the most compassionate care #sethslegacy
Next up at Seth’s Legacy: Seeing & Supporting People in Palliative & End of Life Care we here from our lived experience partner Steve who talks about his experience of surgery and chemo and being looked after by Phil Whelan #sethslegacy
Great to have my colleague Emily Harrop sharing her work on grieving during and beyond the pandemic so much to learn from this research #sethslegacy
