💜Thank you, Ksawier, for inspiring us with your strength and joy! Please comment below and share your story with SCN8A epilepsy. 💜 #InternationalEpilepsyDay #EpilepsyAwareness #ClosingTheGap #IGAP #EndEpilepsy #scn8a #scn8aawareness #scn8astrong #scn8aalliance #scn8aepilepsy

🕒 Time is running out! Today's the last day to DOUBLE your impact and fuel the research that gives families like Ryli’s hope for brighter days. ⏰ Don’t wait—double your impact today! 👉 Website: scn8aalliance.org/transforming-s…  #scn8a #scn8aawareness #scn8astrong #curescn8a

Your support will enable life-saving research and support programs, as we work to improve the quality of life for all those with SCN8A. 💜 Be the help that SCN8A families need. We need you! 👉 scn8aalliance.org/transforming-s… (link in bio) #scn8a #scn8astrong #curescn8a #scn8aalliance

💜 Be the help that SCN8A families need. We need you to transform lives! 👉 scn8aalliance.org/transforming-s… #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8afamily #scn8aresearchroadmap #scn8adiversity

💜 Donate Online: Quick, simple, and impactful. 👉 scn8a.info/transforming-s…   #scn8a #scn8aawareness #scn8astrong #thisisscn8a #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8afamily #scn8asuperhero #scn8aresearchroadmap #scn8adiversity #scn8astories

Every contribution helps fund groundbreaking research, provide resources to families, and offer hope for a brighter future. Thank you for being part of the fight to transform SCN8A. #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance

Prefer alternative ways to give? You can donate through stocks, donor-advised funds, or endowments here: 👉 secure.infinitegiving.com/gift/transform… #scn8a #scn8aawareness #scn8astrong #thisisscn8a #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8asuperhero #scn8afamily

We’ll keep you updated throughout the event. Let’s build on the momentum and continue driving change together. #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8aresearchroadmap #AES2024

Please help by donating to fund treatments and drive critical research that will create a brighter future for everyone living with #SCN8A. Your support makes all the difference. 💜✨ 🔗 Please Help ✨ bit.ly/SCN8A-Roadmap #SCN8AAwareness #SCN8AStrong #ThisIsSCN8A #CureSCN8A

Today, we’re raising funds for treatments & research that could improve the future for me & other children and adults living with SCN8A. Your support means everything. 💜 🔗 Please Help ✨ bit.ly/SCN8A-Roadmap #SCN8A #SCN8AAwareness #SCN8AStrong #ThisIsSCN8A #SCN8ASuperhero

💜 SCN8A Family & Caregiver Gathering - Challenges of Severely Impacted Children 💜 👨‍👩‍👧‍👦 Join our SCN8A Family Meeting, where families can connect with each other & speak directly with Dr. Michael Hammer. #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch

💡 What We’ll Cover: 📊 Key insights from our recent workshop 🔗 Insights on advancing therapies, identifying biomarkers, and more 🚀 Caregiver panel discussion and Q&A #scn8a #scn8aawareness #scn8astrong #curescn8a #scn8aresearch #scn8aepilepsy #scn8aresearchroadmap

Identifying the specific variant helps families manage symptoms and improve outcomes for their loved ones. 💙 Read more at scn8aalliance.org/scn8a-care/tre… #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8afact #supportscn8a

📢 Join the SCN8A Research Update on Oct 10! Get the latest on the amazing progress. 🗓️ Oct 10 | 6-7:30pm EDT | 3-4:30pm PDT | 12am CET (Oct 11) | 9am AEST (Oct 11) 👉 Register scn8aalliance.org/event/17261 #scn8a  #scn8astrong #scn8aawareness #thisisscn8a #curescn8a #scn8aepilepsy

👉 Read more: scn8aalliance.org/scn8a-care/scn… 👈 #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8adiversity

Be a part of the conversation shaping a better future! Learn more and find out how you can participate by joining the SCN8A Research Roadmap. Let’s make a difference together! 💪🌐Register Here: scn8aalliance.org/event/17261 #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a

Learn more @ scn8aalliance.org/what-is-scn8a #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8aalliance #scn8aepilepsy #scn8afact #scn8adiversity #scn8a

🔗 Learn More: scn8aalliance.org/scn8a-care/scn… #scn8a #scn8aawareness #scn8astrong #thisisscn8a #curescn8a #scn8aresearch #scn8asuperhero #scn8aalliance #scn8aepilepsy #scn8afamily #scn8afrance #scn8achina #scn8aaustralia #scn8aportugal #scn8astories #scn8aforall #scn8adiversity

🚀 Day 1 of the SCN8A Research Roadmap workshop at MIT in Cambridge, MA is off to an incredible start!  #SCN8A #SCN8AResearchRoadmap #scn8aawareness #scn8astrong #thisisscn8a #collaboratingforacure #curescn8a #epilepsyawareness

SCN8A Gain of Function Optimal first-line medications for treating #SCN8A GOF variants based on global consensus are Oxcarbazepine and Carbamazepine. Exercise caution with Levetiracetam. For more information, visit scn8aalliance.org/scn8a-care #scn8aawareness #ndds #scn8astrong