What do the #redbloodcells look like in an adult with #pkdeficiency who has had her spleen removed? A case-study highlights #RBCs as they undergo #hemolysis and adapt. 🩸
ow.ly/WUkI50SREPR
#pyruvatekinasedeficiency #echinocytes #hematology #rareanemias #PKD #echinocyte
#Intheroomwhereithappened, Dr. Grace, Tamara Schryver, & Alejandra Watson discuss the patient & caregiver perspective of how the #pkdguidelines came together. Sponsored by Agios, catch this episode of the podcast
ow.ly/58OJ50SNGIS
#pkdeficiency #pyruvatekinasedeficiency
When all that hard work and planning pays off, sponsors and donors come together, and people and families with #PKdeficiency are served, we call that #success! 🥳 Thank you to everyone! Looking forward to #PKDconference2026!
#pyruvatekinasedeficiency #rareanemias
#AgingwithPKD from the perspective of those living it! For those wondering what it's like, you'll want to make sure to check this out!
#PKdeficiency #pyruvatekinasedeficiency #PKD #rareanemia #bridginglivesPKD
Today's patient and caregiver panel features members of the #pkdeficiency community who have participated in #PKD related research to further contribute to improving lives of those affected. Thank you! 👏
#pyruvatekinasedeficiency #bridginglivesPKD #rareanemias #research
Thank you to all the Friends level sponsors, volunteers, and supplies donors who have contributed to assist with our travel grants and kid's program. 😊
#pyruvatekinasedeficiency #PKdeficiency #BridginglivesPKD #sponsors #donors #volunteers
Featured speakers at the #BridgingLivesPKD conference July 14-16, 2024 -- all #experts in #hemolyticanemias like #pyruvatekinasedeficiency. Hear from them firsthand on treatments for #PKD and advocating for healthcare. 🩸🩸
#rareanemias #pkdadvocacy
Coming in at the Gold Level, we're proud to feature Rocket Pharma as a sponsor of the #BridgingLivesPKD conference July 14-16, 2024. Thank you for your dedication to #pkdeficiency and #genetherapy! 🧬
#PKD #pyruvatekinasedeficiency #rareanemias #sponsor
Thank you to our #PlatinumSponsor, Agios Pharmaceuticals, for supporting the #BridgingLivesPKD conference! We couldn't do it without you!
#StarSponsor #PKdeficiency #pyruvatekinasedeficiency #PKD #rareanemias
For more information on how #PKdeficiency is diagnosed and managed, visit the website: pkdguidelines.org, featuring the new international guidelines. 🩸
#BridgingLivesPKD #rareanemias #pyruvatekinasedeficiency #PKD #PKDguidelines
Are you getting ready to see your #PKdeficiency friends and family? Soon....very soon! ✈️🚙🚊🚲
#bridgingliveswithPKD #PKD #pyruvatekinasedeficiency #rareanemias
Registration for the #BridgingLivesPKD conference is now closed. Thanks to all those who signed up! Looking forward to sharing, connecting, and learning together!
#rareanemias #pkdeficiency #PKD #pyruvatekinasedeficiency #blooddisorder #blooddisease #rarebutnotalone
Being involved in a range of events we get to meet some amazing people. After numerous conversations with mum it was decided to give Jamie a voice.
Jamie’s book can be purchased from Amazon with all proceeds going to charity #rarecondition #pyruvatekinasedeficiency #charity
Happy #Pridemonth! The #disabled community & #LBTQ community struggle for equity are intertwined & this month, we recognize #PKdeficiency community members who serve double duty! 🌈
#pyruvatekinasedeficiency #rareanemias #hemolyticanemia #gay #lesbian #queer #trans #genderfluid
Happy Father's Day to all the men who are parents with #PKdeficiency or fathering someone with #PKD. Each role requires special insight and care. We thank you for your dedication! ❤️
#Fathersday #PKDFathers #rareanemias #blooddisorder #blooddisease #pyruvatekinasedeficiency
The count down to the #2ndIntlPKDconference begins!!
See you soon!
#pkdeficiency #PKD #pyruvatekinasedeficiency #rareanemias #blooddisorder #blooddisease #livedexperience
Today is #WorldBloodDonorDay. Thank you to the #blooddonors who have so graciously given of their time & most precious resource--their blood--to assist those of us in need. Today we honor you!
#rareanemias #pyruvatekinasedeficiency #thalassemia #sicklecelldisease #gratitutude
