6 days until #WorldOrphanUSA ! 🎉
Make sure to register to reserve your spot at the day 1 panel, 'Conducting studies for drugs for rare diseases' with...
Uncommon Cures
Massachusetts Institute of Technology (MIT)
Chair 5 Consulting, LLC
FARA
Book as a group and save 50% today: tinyurl.com/ytf27dud
📣 World Orphan Drug Congress USA is tomorrow! We'll be there to discuss the #PatientExperience and how #ScoutClinical is making it easier for #Patients to stick with #ClinicalTrials . Let's talk! Booth 417.
hubs.ly/Q01P2jvF0
#JoinTheConversation #RareDisease #WODC2023 #WorldOrphanUSA
📣 Are you attending World Orphan Drug Congress USA in Boston next week? Connect with our VP of Development, Dave Griffiths! He's looking forward to engaging with industry experts who are shaping the future of orphan drug development.
#WorldOrphanUSA #RareDiseases #PatientAdvocacy
12 days until #WorldOrphanUSA !⏳ Register to sit-in on incredible sessions, like 'Pricing, reimbursement and payer challenges for rare diseases in the US', feat...
MLD Foundation
CORD RDI
bluebird bio
Bayer U.S. 🇺🇸
Register here: tinyurl.com/ytf27dud
It’s Day 2 of #WorldOrphanUSA and we are already feeling inspired. Come see us at Booth #213 to talk about breaking down silos and fostering collaboration for #raredisease patients. The more we can spread the word about n-Lorem, the more patients can be helped.
event april 2024 -
World Orphan Drug Congress USA
World Orphan Drug Congress USA
Get regular updates on the World Orphan Drug Congress! April 23-25, 2024 | Boston Convention & Exhibition Center #WorldOrphanUSA
📣 World Orphan Drug Congress USA is tomorrow! We'll be there to discuss the #PatientExperience and how #ScoutClinical is making it easier for #Patients to stick with #ClinicalTrials . Let's talk! Booth 417.
hubs.ly/Q01P2mtC0
#JoinTheConversation #RareDisease #WODC2023 #WorldOrphanUSA
I was honored to participate in this panel discussion today at #WorldOrphanUSA . Let's work together to improve care for rare!
Great discussion w/ our ED Amanda on the use of #AcceleratedApprovals in #raredisease treatment development w/ fellow panelists Mark Fleury of American Cancer Society Cancer Action Network, Sue Peschin of Alliance for Aging Research and Peter J. Pitts of CMPI Drugwonks, and moderated by Silas Martin of Johnson & Johnson #WorldOrphanUSA
Until next time, D.C.! 👋 We had a great time #DrivingTheDiscussion with Rare Patient Voice and SYNGAP1 Foundation ™️ around enhancing the #PatientExperience and #PatientVoice in #RareDiseases .
Join us in continuing the conversation.
hubs.ly/Q01Rf5Zp0
#WorldOrphanUSA #WODC2023
It's been a terrific #WorldOrphanUSA 2023! Check out some pics of RPV in action and the great people we met over the past two days.
More: linkedin.com/feed/update/ur…
#WODC2023 #RareDisease
Coming to Boston Convention & Exhibition Center April 23-25 is the World Orphan Drug Congress USA!
Use RAREREV50 for half-off tickets and meet us on the expo floor! Join us in shaping the future of rare disease healthcare. tinyurl.com/cymu5jfc
#WorldOrphanUSA World Orphan Drug Congress
In just 11 days, #WorldOrphanUSA is coming to Boston! Catch the Keynote panel: 'From patient finding to payer pull-through: leveraging advanced analytics to fuel the rare disease revolution', w Real Chemistry!
Book your tickets as group & save 50% here: tinyurl.com/ytf27dud
Last week, our VP, Molecular Diagnostics, Nicole Miller, joined a panel at #WorldOrphanUSA on data federation for #NewbornScreening , outlining the need for federal legislation to improve #GeneticTesting . Thanks for representing Ultragenyx, Nicole!
Our Division Chief Patricia Dickson participated in a panel discussion today at #WorldOrphanUSA Washington University Rare Diseases Care Washington University Department of Pediatrics
We’re looking forward to networking with innovators across the #RareDisease community at the World Orphan Drug Congress! Don’t miss our talks & presentations on regenerative peptides for treating rare ophthalmologic diseases from Yi-Chun Maria Chen & Wen Chyi Shyu #WorldOrphanUSA
This week our Senior VP of HCP & Patient Engagement, Catherine Nester, BSN, will participate in three sessions during the World Orphan Drug Congress USA to discuss innovations in diagnosing #RareDiseases and supporting patients.
Learn more here: bit.ly/3OwLDTC
#WorldOrphanUSA
Rocket President & COO, Kinnari Patel and Chief Gene Therapy Officer, Jonathan Schwartz will be speaking at the #WorldOrphanUSA this week. We’re looking forward to bringing our perspective to this conference with the goal of fostering collaboration to help #RareDisease patients.
