June #Scleroderma AwarenessMonth
blog.raynaudsscleroderma.co.uk/2017/05/sclero…
Read more: royalfreecharity.org/news/fundraisi…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher
Journal of Scleroderma, February 2023:
journals.sagepub.com/toc/jsoa/8/1
#Scleroderma FreeWorld #Raynauds FreeWorld #Research
Donate:
m.youtube.com/watch?v=0W0d5k…
royalfreecharity.org/make-a-donatio…
#RareDisease #Autoimmune #NoCure #UnknownCause #LifeChanging #SystemicSclerosis #Scleroderma #Raynauds
Annual Monitoring Tests:
blog.raynaudsscleroderma.co.uk/2017/04/annual…
This year, 2024, I will have spent over half of my life, 27 years, living with a scleroderma (systemic sclerosis) and Raynaud's diagnosis, and all that entails. 🤢
Read more: royalfreecharity.org/news/fundraisi…
#SclerodermaFreeWorld
Skin Tests
blog.raynaudsscleroderma.co.uk/2017/04/skin-t…
Read more: royalfreecharity.org/news/fundraisi…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability #ThickSkin
Christmas Newsletter 2023
royalfreecharity.org/news/fundraisi… justgiving.com/fundraising/sc…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #Degenerative #Chemotherapy #SSc
Specialist Nurse Advice Phone Details Royal Free London
Read about scleroderma research:
royalfreecharity.org/focus/sclerode…
royalfreecharity.org/news/story/gra…
royalfree.nhs.uk/services/scler… royalfreecharity.org/news/fundraisi… #Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds
'Ah Great, Another Day To Spend In Bed' :
blog.raynaudsscleroderma.co.uk/2017/05/ah-gre… royalfreecharity.org/news/fundraisi…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher
Scleroderma Family Day - THIS Saturday, 20 May 2023
Please click the link below to join the FREE webinar:
us02web.zoom.us/j/81974905241?…
Passcode: 225735
More info:
royalfree.nhs.uk/services/servi…
#Scleroderma FreeWorld #Raynauds FreeWorld #Research #SystemicSclerosis #Scleroderma #Raynauds
Today is #WorldLupusDay . Symptom overlaps between scleroderma and lupus include fatigue, skin rashes, hair loss. Treatment medications are also similar, with no cure and limited understanding as to cause royalfreecharity.org/news/fundraisi…
#SclerodermaFreeWorld #RaynaudsFreeWorld
#Research
Taking Part in Clinical Trials blog.raynaudsscleroderma.co.uk/2017/04/taking…
Read about scleroderma research Royal Free London:
royalfreecharity.org/focus/sclerode…
royalfreecharity.org/news/story/gra…
royalfree.nhs.uk/services/scler…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #NoCure
June #SclerodermaAwarenessMonth
Flashback 2016:
blog.raynaudsscleroderma.co.uk/2017/05/june-s…
2024, I will have spent over half of my life, 27 years, living with a scleroderma (systemic sclerosis) and Raynaud's diagnosis, and all that entails. royalfreecharity.org/news/fundraisi…
#SclerodermaFreeWorld
#research
The countdown is on, 1 month until #Scleroderma AwarenessMonth 🌻
Flashback 2017:
blog.raynaudsscleroderma.co.uk/2017/07/flashb…
Donate: royalfreecharity.org/donate #Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
1 week to go 😊
Scleroderma Unit Royal Free London:
blog.raynaudsscleroderma.co.uk/2024/04/sclero…
Read about scleroderma research:
royalfreecharity.org/focus/sclerode…
#Scleroderma FreeWorld #RaynaudsFreeWorld
#Research #Scleroderma #NoCure #UnknownCause #LifeChanging
Delighted to have been featured in Chat magazine 2019. royalfreecharity.org/news/fundraisi…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability
The Full Time Job of Symptom Management:
blog.raynaudsscleroderma.co.uk/2017/04/sclero…
Read more: royalfreecharity.org/news/fundraisi…
Leave a gift in your Will : royalfreecharity.org/giftsinwills/
Royal Free Charity provides a free Will writing service
#Scleroderma FreeWorld #RaynaudsFreeWorld
#Research #Scleroderma #SSc
The Importance of A Multidisciplinary Healthcare Team:
blog.raynaudsscleroderma.co.uk/2018/04/the-im…
Read about scleroderma research Royal Free London:
royalfreecharity.org/focus/sclerode…
royalfreecharity.org/news/story/gra…
royalfree.nhs.uk/services/scler…
#Scleroderma FreeWorld #RaynaudsFreeWorld
#Scleroderma #SystemicSclerosis
Today is #WorldPHDay . #PulmonaryArterialHypertension #PAH is recognised as high blood pressure in the lungs and can result in right heart failure Royal Free London
royalfreecharity.org/focus/sclerode…
#Scleroderma FreeWorld #Raynauds FreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds
2 weeks to go, Annual SclerodermaRF Family Day Royal Free London
blog.raynaudsscleroderma.co.uk/2024/04/sclero…
Read about #scleroderma #research :
royalfreecharity.org/focus/sclerode…
#SclerodermaFreeWorld #Raynauds FreeWorld #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
Prof Herrick SclerodermaSalfordManchester is a blessing to our global scleroderma community. #Scleroderma FreeWorld #Raynauds FreeWorld #Research #Autoimmune #Scleroderma #Raynauds #systemic #Lifechanging #India #jaipur #wrf Rohit Aggarwal American College of Rheumatology BSR Dr. John Cush Janet Pope WRF Summit