#RareDisease #RareDisease Day2023 #rddnih

#RareDiseaseDay2023

#Gastroparesis
💚💚💚💚💚💚💚💚💚

Son Ayarlamadaki Düşüşü Sildi!
bitcoin-turkiye.com/Haber/bitcoin_…

#Bitcoin2023 📷 #飯塚昭三さん #今月描いた絵を晒そう #RareDiseaseDay2023 #marathon #хтивийпонеділок #fud #bust #coinbase #gala #btc 📷 #Amerika #binance 📷📷 #sımpson #ledger #nakit #1haziran #kredi #ariana #gala #apple #rusya

Our event in honour of #rarediseaseday2023 is well underway in #Newcastle ! We're looking at our strengths in RD but also trying to identify ways to improve at every step, and make sure our care delivery and research meets unmet needs and leverages new opportunities

Happy #RareDisease Day! Living with a rare genetic disease gives me a unique perspective while working within medical systems. It is important to advocate for patients and their families so everyone can receive equitable care. #RareDisease Day2023 #oipride

Bu Hafta Bitcoin (BTC) Durgun Kalsa da, Bu Altcoin’ler Resmen Uçtu (!)
kripto-turkiye.com
#Bitcoin 📷 #Crypto #Mexc #mexcvietnam #Andalucia #エルデンリングDLC #飯塚昭三さん #今月描いた絵を晒そう #laplus_great #RareDiseaseDay2023 #marathon #хтивийпонеділок #mask #fud #bust

Our front door lit up for #RareDiseaseDay

#RareDiseaseDay 2023 #CareForRare

يُعد مرض التصلب اللويحي من الأمراض النادرة.
ما مدى تاثيره على العين؟

#RareDiseaseDay
#RareDiseaseDay 2023
#اليوم_العالمي_للأمراض_النادرة

Elevated #homocysteine levels: What inborn errors of metabolism might we be missing?
#rarediseaseday2023 onlinelibrary.wiley.com/doi/10.1002/aj…

It's still Rare Disease Day in my house. How about you? #RareDiseaseDay 2023 #RareDiseaseDay #RareDiseases

Μιλήσαμε χτες και σήμερα για τις σπάνιες παθήσεις. Για το πώς κάποτε, φέρνουν μαζί τους αναπηρίες, ορατές και αόρατες. Για τους ανθρώπους που παλεύουν κάθε μέρα μόνο και μόνο για να συνεχίσουν να ζουν κι ότι είναι, συχνά, πιο κοντά μας από ότι φανταζόμαστε.
#RareDiseaseDay2023

We'll light up tonight to mark #RareDiseaseDay2023

The dream team 💜 Office for Rare Conditions Glasgow Glasgow Children's Hospital Charity RAREAwareGlasgow Turner Syndrome Soc #RareDiseaseDay2023

#rarediseaseday2023 aims to raise awareness & generate change for the 300 million people living worldwide with a rare condition, as well as their families and carers. Phenylketonuria (PKU) affects 1 in 10,000 babies born in the U.K. I hit the jackpot having 2 kids with #PKU 💚💚

It is important for patients with Loeys-Dietz to understand their genetic diagnosis - management and recommendations can vary based on gene and even mutation/variant. #RareDiseaseDay2023 #AortaEd #GeneChat

Fantastic to hear about colleagues’ research at National Horizons Centre on #RareDiseaseDay2023 and to learn about DYRK1A syndrome from Teddy’s parents, raising awareness of this condition. Thank you for organising Popplewell Research Group

Flying the UK HSP Support Group Hereditary Spastic Paraplegia flag with trustee Mike & Mitesh Patel at #RareDiseaseDay2023 Westminister Reception by Genetic Alliance UK

Лицата со ретки болести заслужуваат постојано да работиме на унапредување на нивната состојба и обезбедување на правичен пристап до здравствените услуги.

Не само на #ДенНаРеткиБолести , секој ден да ги поддржиме лицата со ретки болести.

#RareDiseaseDay2023 #LightUpForRare

A small number of people with ACTA2 mutations who have a specific change in their ACTA2 gene have Smooth Muscle Dysfunction Syndrome. In addition to aortic disease, they are at a high risk of stroke, lung disease, and other problems in other at a young age. #RareDiseaseDay2023

Agradecemos a todos los ponentes y asistentes al 3er Simposio Internacional del Día de las Enfermedades Raras #SIDERmx2023 Tuvimos un excelente evento compartiendo información y experiencias sobre las #EnfermedadesRaras en México y Latinoamérica #RareDiseaseDay2023