Had one of those ‘fun’ episodes CRPS gives a person with an unexpected flare and dystonia from fingertips to neck on Tuesday. Which caused a faint up (not down this time) the stairs. Starting a new day right with a gentle run to ease the shoulder! gofund.me/d9da10d8

We work with other physiotherapy teams when their patients require Botulinum Toxin injections for spasticity and dystonia. This week we saw 3 patients in Lincolnshire and spent time with the wonderful Nicola Hunt
#spastictymanagement #workingtogether #mdt

Once we launch, expect us to feature information on one of the causes we intend to support, Tyler's Hope for a Dystonia cure. #DystoniaSucks

Can you recognize the symptoms of #dystonia ?

Learn more ▶️ bit.ly/3us5qvG

Let me introduce you to my world living with dystonia. 💪

Dystonia is a movement disorder in which some of your body's muscles contract involuntarily. This can cause your body to twist and move in awkward ways. 🥴

Dystonia can affect a single muscle, a muscle group, or your

Add SCA 21 to the DDx of conditions p/w myoclonus-dystonia (M-D) syndrome:
🧠SGCE M-D
🧠KCTD17 M-D 26
🧠RELN M-D
🧠TOR1a Dystonia
🧠GCH1 DRD
🧠ADCY5 dyskinesia
🧠PRKCG SCA 14
🧠ATP1A3 Rapid-onset dystonia parkinsonism
➕more 🤪
#MedEd #MovementDisorders #Neurology #NeuroX #MedX

Good news! My article received enough citations to be a #TopCitedArticle in Movement Disorders Clinical Practice

…mentdisorders.onlinelibrary.wiley.com/doi/full/10.10…

Well done Steve Petherbridge🇮🇪🇪🇺🇺🇳
Dystonia Ireland

#dystonia is the 3rd most common #neurological incurable movement disorder.

Botox for cervical dystonia drama:

So........ maybe Monday???

Eh, what's a couple more days? amirite?

World first at Alder Hey 🌍 | Earlier this year, we performed Deep Brain Stimulation (DBS) using a new advanced device to help treat dystonia, the first time in the world this new technology has been used on a child! 1/6

Josh Gessner FLATGROUND Pitching I think this is terrible advice. Yips is a form of focal dystonia that isn’t controllable with cognitive behavioral therapy.

The Beast took a break from the gym today and bagged his first turkey, a young gobbler!!!! Bam💪🏻💪🏻💪🏻 #provethemwrong #screwcerebralpalsy #stopcyberbullying #pediatricstrokeawareness #cbr #INBA #cordbloodsavelives #cookchildrens #dystonia

Nick Cleasby Jack Poso 🇺🇸 🎯 I agree. 'In some cases, spasmodic dysphonia may run in families. Although a specific gene for spasmodic dysphonia has not yet been identified, a mutation in a gene that causes other forms of dystonia has also been associated with spasmodic dysphonia.' nidcd.nih.gov/health/spasmod…

Dr. Talyta Grippe is recruiting #dystonia patients in Toronto for a study exploring brain interactions of dystonia patients. The study involves a 4-hour visit, with a virtual info session on May 16. Learn more and register at dystoniacanada.org/study-Grippe.
#dystonia research

These treatments are hit or miss, so I try to take notes and let them know what's working or not.

Read more 👉 lttr.ai/ARy0P

#dystonia #livingwithdystonia #observations #medicalscience #medicine #ActualMedicalScience

I always wondered what was up with Robert F. Kennedy Jr 's voice, then I heard his sisters. So I had to look it up.
Spasmodic dysphonia, also known as laryngeal dystonia, is a disorder in which the muscles that generate a person's voice go into periods of spasm. This results in

Rare Diseases Ireland has launched its 2024 Get Rare Aware campaign to bring together politicians medical experts and people living with rare diseases including in Dublin
Rare Diseases Ireland #GetRareAware
Dublin People Steve Petherbridge🇮🇪🇪🇺🇺🇳 #Dublin
dublinpeople.com/news/health/ar…

Despite having cerebral palsy and dystonia, the beast has never let his conditions define or limit him. He didn't listen to the doctors' prognosis and instead, he pushed himself to prove them wrong and continues to do so today. As tough as it was on us all, I miss the journey.

Morning if u see this post please kindly know ur help is needed and may God bless you

Excited about the excellent dystonia research being done by Mark Moehle and his team at UF Health Norman Fixel Institute for Neurological Diseases #fiberphotometry #electrophysiology @tylershopeCOE