While the benefits of #ConsumerInvolvement go beyond many measurable impacts, trials with higher levels of #involvement were over 4x as likely to recruit to target - Tanya Symons
Fantastic presentation by Nikki Davis, consumer representative with PC4.
#PC4symp2021 #consumerinvolvement
So pleased to see the launch of the ACTA Australian Clinical Trials Alliance CT:IQ #ConsumerInvolvement in #clinicaltrials resource. One of 5 projects delivered with MTPConnect and Department of Industry, Science and Resources support. A fantastic initiative.
This morning I had the honour of talking about my life, cystic fibrosis and where we have come over the past 60 years as part of the #WayanScientificRetreat and why it is critical to have consumer involvement is research. #consumerinvolvement
Often consumers can feel their involvement is tokenistic. I felt like my involvement was groundbreaking at the time #consumerinvolvement #MPevent2023 Monash Partners
Anne Mckenzie Telethon Kids Institute running another wonderful involving consumers in research workshop ONJCancerCentre for @VicCompCancerCr. #consumerinvolvement #research #consumers
👋 I’m compiling a list of deadlines for 2023 local & int’l #conferences in #MentalHealth #DigitalHealth #HealthCommunication #SharedDecisionMaking #HealthLiteracy #Codesign #ConsumerInvolvement #PatientCentredCare can you help? Already have SMHR AACBT & @ICCH
Marita Hennessy Catherine Houghton Andrew Hunter Louise Murphy QUESTScentre Interesting read on training for #PPI partners. Thanks for sharing Marita Hennessy #CCI #ConsumerInvolvement
🔵 Tell us about your experiences of taking part in research (PRES)
Every year NIHR CRN Greater Manchester carries out the PRES (Participant in Research Experience Survey). Results help to understand people’s experiences of taking part in research.
👉 bit.ly/GMPRES21
On today: workshop on consumer involvement in research - tweet ur thoughts using #pacerinvolve w/ Nicki Scholes Talia Gutman PANELA LOPEZ Sydney Health University of Sydney NHMRC Chris Maher @BrideeJohnston Kids Research NSW Health Health Consumers NSW @allisontong1
Ping Janelle Bowden Anne Mckenzie Shyam …wouldn’t it be tremendous if we had something similar here in Australia? #consumerinvolvement #research #clinicaltrials
Maureen Smith speaking at #VirtuallyCochrane - what an incredible woman! So delighted to have her on our #PPI #consumerinvolvement committee helping us work out what to do in our #knowledgetranslation project! Cochrane PPI Ignite UL @PPI_NUIG HRI
Join an expert panel for our lunchtime webinar focused on the involvement of consumers in health research. Panellists from University of Sydney, Health Consumers NSW, Sydney Health Partners, WentWest Ltd PHN & consumers with direct experience will answer questions on getting started & strengthening your approach
I know meaningful #ConsumerInvolvement in #clinicaltrials is important but how do I go about this? Tanya Symons, Dr Nicola Straiton (she/her) & Anne Mckenzie have the answer - the @ACTA - @CT:IQ Consumer Involvement & Engagement toolkit!! #ACTAconf
Thank you again to our wonderful panelists & attendees for engaging in a great webinar!
Listen back to today's webinar #ConsumerInvolvement #SystematicReviews here:
➡️bit.ly/3iXcHcQ
Cochrane Ireland Cochrane Consumers @RMEngagement @PPI_NUIG JJull Maureen Smith
Wow a hat-trick for ENZAMET! Congratulations 2020 ACTA Consumer Involvement Award Winner #ACTASummit ANZUP #consumerinvolvement
Sue Walker Melinda Cruz Turner 💫 PSANZ Melinda Cruz Turner 💫 is a superstar. Her work alongside other leaders like Anne Mckenzie led the way on #consumerinvolvement in research in this country. Such an inspiration.
Ping ACTA: Australian Clinical Trials Alliance Dr Nicola Straiton (she/her) Anne Mckenzie CT:IQ - new Australian publication on barriers & enablers to #consumerinvolvement in research led by #AHRA .
One of the most engaging and informative #research workshops I’ve been to! Here’s to less box-ticking #NHMRC category descriptors & to more purposeful, meaningful #ConsumerInvolvement in #research Thank you Talia Gutman & Nicki Scholes PACER Network #pacerinvolve
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Prof Coralie English (she/her) 😷🌈 Meredith Burke HMRI - Hunter Medical Research Institute strokebrainPRC CRE Stroke Rehab University of Newcastle Super nice pulling this together!
Will be a very practical exercise in working through how researchers can use & value the skills & lived experience of their research end-users - and even still have their ethics applications approved! #consumerinvolvement #patientexperience
Prof Coralie English (she/her) 😷🌈 Gillian Mason (she/her) 🏳️🌈 Rachael Peak Gary Crowfoot
Meredith Burke
She’s now presenting the findings of ‘Hunter Stroke Research’ survey... Good work & well done @BayeJasmine! 👏👏👏
#StrokeRegister #ConsumerInvolvement #UndergraduateHonoursSupervision
We examined
i) the experience of being involved in a stroke research register &
ii) the priorities for #stroke research from the perspective of #StrokeSurvivors
Here is the link to full paper: bmcmedresmethodol.biomedcentral.com/articles/10.11…
#StrokeResearch #ResearchPriorities #ConsumerInvolvement
Vivian S. Lee, MD #AI offers several opportunities for #consumerinvolvement ..developed AI program where diabetics could take a photo of their food vs keeping a paper diary to monitor intake #WMIF19
