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“What criteria are helpful for choosing a patient representative on your solution design team?” - question asked at #ICHOM2024 Any reactions? Thoughts?

“How can we reduce the trust and transparency gap that we have in health care?” - question asked of a panel at #ICHOM2024

“How can this collaboration move from individual patient engagement (shared decision making) to structurally involving the patients collectively?” - question asked at #ICHOM2024

Pinching myself to believe I’m here in Vienna, Austria, to hear myth busting Dr Liz O'Riordan talk about her journey as a breast surgeon, cancer patient, and caregiver for her mother

Chris Arndt is a former financial analyst who has run the numbers. If you are worried about government debt, vote for Kamala Harris

Peer advice from a fed, for other feds: A guide to using Signal for government workers a.wholelottanothing.org/a-guide-to-usi…

View the findings from the first probability-based national survey to measure the #raredisease population. SSRS is proud to work w/Susannah Fox , ARCHANGELS.me & The Association on Aging in New York to bring awareness to this important research: ssrs.com/insights/rare-…

50% of people living in a #RareDisease household have, in the past year, gone online to find other people who might have health concerns similar to their own. Of those, 8 in 10 were successful in finding #PeerHealthAdvice ssrs.com/insights/rare-…

.NIH + U.S. FDA canceling their #RareDiseaseDay event was a punch in the gut for a community that is too often dismissed or forgotten. Thanks to Isa Cueto for sharing our new research & my disappointment statnews.com/2025/02/25/uni…

63% of adults living in #raredisease households have, in the past year, seen a doctor or other health care provider, online or via a telehealth appointment. Study conducted by SSRS for Susannah Fox, ARCHANGELS.me & Association on Aging in NY. eurekalert.org/news-releases/…

📢#RareDisease is NOT rare. 📢New national survey finds 8% of U.S. households are directly affected by rare disease. SSRS is proud to work w/ Susannah Fox , ARCHANGELS.me & the Association on Aging in NY on this study: ssrs.com/insights/rare-… #RareDiseaseDay2025

Check out my favorite #historicalnovels about ordinary people overcoming extraordinary obstacles via Shepherd.com 📚. #histnov #fiction #justread #inspiration #motivationMonday shepherd.com/best-books/ord…

Vaccines have granted families in wealthy countries the luxury of forgetting what measles, polio, rubella, and other preventable diseases are like. We're looking at how many millions of lives vaccines have saved. Read the full story: nature.com/articles/d4158…