🚨Our new paper shows that attention & emotional factors predict the # of ED visits & hospitalizations for pain 3 years later among children with #SickleCell. Optimizing health outcomes means paying attention to cognitive functioning and mental health too. onlinelibrary.wiley.com/share/author/V…

Can the role of neurocognitive functioning and emotional factors predict future healthcare visits for #SCD pain up to three years later? New study says yes. …ovationdistrict.childrensnational.org/neurocognitive…

Looking for a full-time pediatric music therapist position in hematology/oncology embedded within THE BEST psychosocial team around? Come work with us in Washington, DC Children's National Hospital 🏥! cnhs.taleo.net/careersection/…

Happy to be part of this amazing Children's National Hospital 🏥 team providing comprehensive care for #SickleCell. Our pain #psychology treatment helps patients develop skills to manage pain, cope w/ stress, set goals, get good sleep, & prioritize positive relationships. …ovationdistrict.childrensnational.org/first-of-its-k…

Individuals with #SickleCellDisease have a life expectancy ~20 yrs shorter than average. Americans who are insured by Medicaid, Medicare, or both had worse survival Blood Journal ashpublications.org/bloodadvances/…

Brain tumors are the most common solid tumors affecting children. The disease and current treatments carry risks for lifelong complications, especially since kids’ brains are still developing. An extraordinary $96M investment is here to change that. …ovationdistrict.childrensnational.org/96-million-phi…

Psychosocial factors, like other aspects of health, are important to consider before #genetherapy for #SickleCell. Backed by The Cure Sickle Cell Initiative (CureSCi), our team of psychologists, patients, & caregivers developed a guide to facilitate pre-gene therapy assessments of readiness & resilience.

🚨Our 4-session telemedicine-based CBT+ACT treatment specifically designed for youth with #SickleCell is feasible, acceptable, and associated with reductions in #pain interference. @mconnollyphd Christina Sharkey, PhD onlinelibrary.wiley.com/doi/abs/10.100…

Telemedicine-based behavioral intervention program eases pain of SCD - Children's National @mconnollyphd …ovationdistrict.childrensnational.org/telemedicine-b…

🚨Tune in #SickleCell community!

Original: Elizabeth Prince, @LydiaPecker (Johns Hopkins Hematology), and co. report on patients with SCD beginning buprenorphine treatment for their chronic pain: — Self-report ⬆ in functioning, but treatment alone cannot substitute complex needs of patients Full: jpain.org/article/S1526-…

Yall might not want me to chair another conference again because if we are going to do it, we are going to do it!! Welcome to #SPPAC2024 in NOLA!! Society of Pediatric Psychology

So proud of this work with all-star colleagues on prioritizing psychosocial well-being in the context of gene therapy for #SickleCell jamanetwork.com/journals/jaman…

Healio spoke with Steven Hardy of Children's National Hospital 🏥 about a consensus statement in JAMA Network Open stating that patient readiness will greatly affect the success of gene therapy for sickle cell disease at the individual and collective levels. #sicklecell healio.com/news/hematolog…