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We tried to raise awareness on #VEXAS syndrome with Marcela Ferrada Jerome HADJADJ Eduardo Martín-Nares Paul Breillat, collegues taking care of VEXAS patients all over the world including @ David Beck in #ACR2024!!!

Happy to hear my fellow Yves-Jean Zhu presenting his lab work on SITRAME syndrome in #ACR2024! We need to know more on the pathophysiology of this disease! Thank you Filière de santé FAI²R to allow him to present his work in Washington! .

👏🏼Congrats Marcela Ferrada for presenting your work on relapsing polychondritis 🔸3 subtypes of RP 🔸 Tracheomalacia and ear damage effectively categorize patients into these subgroups 👂🏽 🫁 #ACR24 Peter Grayson Peter Merkel

Today in ACR2024 we met the Mayo clinic VEXAS team with @ Mathew Koster frome the US and Padova team from Italy with Sara Bindoli to exchange on the French VEXAS cohort. We again raised awareness on VEXASX syndrome together with the " V" of VEXAS.

Abstracts due Dec 18th! Register for the International Society of Systemic #Autoinflammatory Diseases (ISSAID) Congress April 8-10 2025 in Paris, France! + a Young Investigator meeting on the 7th. TBD patient program elsewhere. #RheumTwitter #immunology issaid.org/issaid2025/ind…

🔥 🚨☄️ abstract submission is open for #ISSAID2025 in Paris 8-10 April 2025! ➡️ Don't miss the dead line: 18th december!!! Submit now!!!!💪 issaid.org/issaid2025/abs…

La winterschool organisée à Strasbourg par le CRMR RESO | PACIFIC a été l'occasion de faire une mise à jour sur le syndrome #VEXAS . Avec Chasset F et près de 100 jeunes internistes et rhumatologues, nous avons sensibilisé avec le "V" du #VEXAS pour limiter l'errance !

🔥📽️Prochain CINéclub ce jeudi 05/12 à 13h30! 📚Au programme cette fois-ci: 👤❓Le B.A.BA du syndrome H avec Jouret Maurine 🧶💉Amylose AA à l'anakinra avec Sophie Georgin-Lavialle 👀🔍Un cas mystère avec Alexandre Le Joncour

🧡💡 Pourquoi l’enquête #AMYlife est-elle importante ⁉️ Votre participation contribue à améliorer les soins et à sensibiliser à l’#amylose à l’échelle mondiale. 🌍 📣 Réalisée par l’ @AmyloidosisAlliance ✨ 🔗 amyloidosisalliance.org/amylife/

Interesting talk from Olivier Hermine INEM NECKER looking at the mechanisms underlying erythroblastopenia in #VEXAS - possible role of defects in ubiquitination and ribosomes. #ASH24 ASH

Thank you dr.nilton.salles & damp.lom for inviting me to speak today about #VEXAS syndrom in the first brazilian symposium on relapsing polychondritis. Hopefully it will help to diagnose more patients with or without polychondritis 💪🖖 🙏

Today, with San Juan Weather Gilles Grateau we gave lectures on #AAamyloidosis in the Algerian 🇩🇿 national congress of nephrology. FMF must always be searched. Cryopyrinopathies in case of deafness🦻. VEXAS in case of macrocytosis🧓. 🖖 ➡️We also gave the results of the #AAchallenge. 🏆💪

📊 Le saviez-vous ? Cela ne prend que 10 minutes par questionnaire 📣 ⚠️ Vos réponses sont collectées de manière totalement anonyme: vos données personnelles ne seront ni stockées ni utilisées. Commencez ici 👇🏻 🔗 amyloidosisalliance.org/amylife/ #EnquêteAMYlife #amylose #

Nonischemic cardiac involvement in VEXAS syndrome is rare, primarily pericarditis, myocarditis, and heart vasculopathy; these are directly linked with VEXAS’s systemic inflammation. ja.ma/3VBtNBJ Marie Robert Benjamin Terrier Arsene Mekinian Rim Bourguiba Sophie Georgin-Lavialle

Journée du 17 janvier 2025 : Inscrivez-vous !! Maladies autoinflammatoires à l'âge adulte : actualités Organisation : Sophie Georgin-Lavialle / Léa Savey ⚠️A l'Institut Mutualiste Montsouris⚠️ Inscription par mail : [email protected] Gratuit pour les internes (sur inscription)

New great article from the JIRcohort ! Congrats to François Rodrigues, Sophie Georgin-Lavialle & team on their work: Characteristics of Familial Mediterranean Fever After 65 Years of Age. 👏 jircohorte.org/post/character… #Research #Rheumatology #FMF

Iron deficiency in familial Mediterranean fever: #Irondeficiency can cause fatigue even in the absence of #anemia doi.org/10.1002/ajh.27… #hematology Ilenia Di Cola

What Happens When Some Cells Are More Dad Than Mom (and Vice Versa)? Latest from us. Published today. News here cuimc.columbia.edu/news/what-happ… article here: nature.com/articles/s4158… O'Jay Stewart BogunovicLab and a huge international team thank you 🙏🏼 Columbia Children's Health Lipschultz Precision Immunology Institute