We are excited to announce the closing of our $92M series C financing! This milestone will enhance our efforts in advancing BE-101 for Hemophilia B through clinical proof of concept and progress BE-102 for Hypophosphatasia to the clinic. be.bio/be-bio-announc…

When Neeru Bhardwaj was diagnosed with the rare genetic condition #hypophosphatasia (HPP), it set off a chain reaction embarking on a journey of discovery finding ways to support one another through the uncertainty of embracing family genetics. Read here: bit.ly/Siblings-Siste…

At the European Society of Endocrinology (ESE) & ESPE Joint Congress, we’re reinforcing our commitment to advancing research of rare bone metabolic and endocrine diseases and contributing to discussions to improve understanding of conditions like #Hypophosphatasia and #Hypoparathyroidism.

Symptoms of hypophosphatasia (#HPP) can appear at any age and accumulate or worsen over time, causing significant disability, impaired mobility or life-threatening complications.

We are excited to have communication expert, Meghan Dillon, VP of Digital from Green Room Communications, as our TAC speaker for tonight’s meeting at 8 PM Eastern. Meghan will share tips and tricks on how teens can make an impact. Sponsored by Alexion Pharmaceuticals U.S.. #SoftBonesHPP

Connect with us! Do you live in Louisiana or Texas? Join South Central Region Leads Amedie P., Cami R. and Cassandra S. for a Zoom Chat on July 31, 2025 at 7 PM Central. Registration is required. Please register below. 👇 ow.ly/UB6M50W4aNu #SoftBonesHPP #RegionMeeting

Are you a patient on therapy (Strensiq)? Join Alexion, AstraZeneca on June 10th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Reserve your spot today! Registration is required. Please register below. ow.ly/26mS50W4pZu #SoftBonesHPP #HPPCommunity #Strensiq

Looking for something to do during your visit to Williamsburg, VA? 🛍️ Check out the Williamsburg Premium Outlets, an outdoor shopping destination with over 120 stores. Make sure to check out the HPP AND ME National Patient Meeting forum for updates. #SoftBonesHPP #HPPCommunity

Thank you, BeBio for your dedication to studying hypophosphatasia!

How can low ALP and high B6 guide an HPP diagnosis? Listen now as Dr. Michael Lewiecki outlines the updated criteria to diagnose adult-onset HPP. Hear the full discussion on Medlive below. ow.ly/TJB850W80kY #SoftBonesHPP #HPPCommunity #ALP

A HUGE thank you to Meghan Dillon from Green Room Comms. for speaking at our last Teen Advisory Council (TAC) meeting and encouraging our members to brainstorm ways in which their voice could influence others and make a real impact. Join TAC below! ow.ly/faiv50W9bOB #SoftBonesHPP

Have you seen this piece? Last year, Maryanne G., a member of the hypophosphatasia (HPP) community, submitted a piece titled “Beacon of Hope” for the 2024 Rare Artist Contest hosted by the EveryLife Foundation. Learn more below. 👇 ow.ly/Rs0v50WaU0c #SoftBonesHPP

Friendly Reminder! Join us tomorrow for an HPP AND ME Zoom Chat at 1 PM Eastern. Registration is required. Please register below. 👇 ow.ly/ci5K50WaIMs #SoftBonesHPP #HPPCommunity #HPPANDME

Attention all attendees! We are less than one month away from the National Patient Meeting. Please watch your email for important information. View our agenda here: ow.ly/9gY450WeQMv We can't wait to see you! #SoftBonesHPP #HPPCommunity #NPM2025

Time to make a splash with these new designs, featuring our lovable mascot, the Hippo and our iconic Soft Bones key. Come rep these styles while raising awareness. Get 20% off everything from June 26-30th! Shop now! 👇 ow.ly/45bc50WggU8 #SoftBonesHPP #hypophosphatasia

Friendly Reminder! Do you live in Louisiana or Texas? Join South Central Region Leads Amedie P., Cami R., and Cassandra S. for a Zoom Chat on July 31, 2025, at 7 PM Central. Register below. 👇 ow.ly/oZnE50WijTb #SoftBonesHPP #HPPCommunity #RegionProgram

Walking the walk. Meet Stephen A., patient and advocate. Stephen brings a wealth of #hypophosphatasia knowledge after decades of pain, countless surgeries, and a quest to seek answers. Learn more him below. 👇 ow.ly/LjJw50WiCVt #SoftBonesHPP #HPPCommunity

✨ You’re invited! ✨ Join us on Monday, July 29th at 8 PM Eastern, for our next HPP AND ME Zoom Chat. Whether you're newly diagnosed or have been here for a while, let’s talk, connect, and grow together. Register below. us06web.zoom.us/meeting/regist… #SoftBonesHPP #HPPCommunity

Our Spring Newsletter is hot off the press! Click the link below to get the full scoop! ow.ly/Ai6P50WkHC7 #SoftBonesHPP #HPPCommunity #RareDisease #Newsletter #Stories #RareDisease

Two weeks to go! Are you or a loved one traveling to the National Patient Meeting while on treatment? Make sure to check out our Traveling with Strensiq® resource below. 👇 ow.ly/CxBK50WkvQ3 See you soon! #SoftBonesHPP #HPPCommunity #NPM2025 #hypophosphatasia