Sly Raven (@slyraven1432) 's Twitter Profile
Sly Raven

@slyraven1432

#ALS warrior, #mom , Nft and crypto enthusiast. #BlackbirdStables on @photofinishgame (Referral code: KB9TNS3X).

ID: 1478477097207218188

linkhttp://facebook.com/FlightOfTheBlackbird calendar_today04-01-2022 21:24:07

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Sly Raven (@slyraven1432) 's Twitter Profile Photo

Tilt Switch brings home a massive win for #BlackbirdStables! Scoring his best FF yet of 75, he brings home abooout $140 between derby and $Crown. Not bad for a 'game', yeah?

Tilt Switch brings home a massive win for #BlackbirdStables! 
Scoring his best FF yet of 75, he brings home abooout $140 between derby and $Crown.

Not bad for a 'game', yeah?
Sly Raven (@slyraven1432) 's Twitter Profile Photo

Daily #ALS Knowledge: Muscle cramp randomly and severely. Legs, arms, back, etc. The fun ones? Internal muscles. Guts, ribs, diaphragm. Hell, my diaphragm locked up one day, cut off blood supply, I lost responsiveness and got to go to the E.R. I take very mild muscle relaxers

Sly Raven (@slyraven1432) 's Twitter Profile Photo

My little inbred oopsie shows out sometimes. Raven's Folly brought #BlackbirdStables a 2nd place today. Scoring his new personal best FF of 64!

Steve Gleason - "Live Impossible" (@stevegleason) 's Twitter Profile Photo

Today is recognized as Rare Disease Day. Not just for people with ALS, but for 10K other diseases & millions of people. I was honored to speak at the White House Rare Disease Day Forum yesterday with others. Danielle Carnival said it best, “turn these conversations into action.”

Today is recognized as Rare Disease Day. Not just for people with ALS, but for 10K other diseases & millions of people. I was honored to speak at the White House Rare Disease Day Forum yesterday with others. Danielle Carnival  said it best, “turn these conversations into action.”
Sly Raven (@slyraven1432) 's Twitter Profile Photo

Daily #ALS Knowledge: Your body slowly becomes an immoveable prison of flesh, yet your mind stays perfectly competent. Since I have progressed to the point of looking so frail and unable to speak, society treats me less than. I am smart. Graduated with honors from all schools I

Daily #ALS Knowledge:

Your body slowly becomes an immoveable prison of flesh, yet your mind stays perfectly competent.

Since I have progressed to the point of looking so frail and unable to speak, society treats me less than. I am smart. Graduated with honors from all schools I
Sly Raven (@slyraven1432) 's Twitter Profile Photo

#BlackbirdStables has 7 fillies hitting the track next season. A few, will become cornerstones of our breeding. :) Just a little #HorseBusiness

#BlackbirdStables has 7 fillies hitting the track next season. A few, will become cornerstones of our breeding. :)
Just a little #HorseBusiness
Sly Raven (@slyraven1432) 's Twitter Profile Photo

Fixed Point in Tine brings home 2nd place for #BlackbirdStables. Might be zeroing in, he's hit the podium his last 4 races. ;)

Sly Raven (@slyraven1432) 's Twitter Profile Photo

Dear #ALS Community, I have a question. Mom needs help. What services does #Hospice provide if your not dying dying? Any? I qualify of course from the guidelines, Medicare SHOULD pay, but what can they offer me? I dont want pain meds, or at least I dont think I do. Thats my

Steve Gleason - "Live Impossible" (@stevegleason) 's Twitter Profile Photo

Life ain't easy, for anyone. Yet, with support, love and the right mindset, we can keep showing up and discover ways to love this crazy wonderful Life! Thanks Gray and Boatsy for your support. Awesome ain’t easy.

Life ain't easy, for anyone. Yet, with support, love and the right mindset, we can keep showing up and discover ways to love this crazy wonderful Life! Thanks Gray and Boatsy for your support. Awesome ain’t easy.
Sly Raven (@slyraven1432) 's Twitter Profile Photo

Daily #ALS Knowledge: E.R.s are NOT non verbal friendly. I just got home (dehydtated, pain, nausea). I took machine so I could communicate, They didn't understand i cant use it if they dont sit you up. They kept telling me to use it, Im trying to say 'up', #Failed. But! Got 2

Sly Raven (@slyraven1432) 's Twitter Profile Photo

Man, what happened to cheap B ranges? lol. Market stalking has been rough, which is good for #BlackbirdStables in the future! We have 15 B range females at various ages, several 4 matches, and one whos lines have been all 4 matches this far ;)

Man, what happened to cheap B ranges? lol.

Market stalking has been rough, which is good for #BlackbirdStables in the future!

We have 15 B range females at various ages, several 4 matches, and one whos lines have been all 4 matches this far ;)
Sly Raven (@slyraven1432) 's Twitter Profile Photo

Daily #ALS Post: I am officially on hospice. Im actually quite relieved to have it done. They came in like a friendly whirlwind of energy. Ive got a hospital bed, Actually looks comfortable. Im getting in it Thursday for a bath...may not leave again. My legs are making

Daily #ALS Post:

I am officially on hospice. Im actually quite relieved to have it done. 

They came in like a friendly whirlwind of energy. Ive got a hospital bed, Actually looks comfortable. Im getting in it Thursday for a bath...may not leave again. My legs are making