Simon Privett (@simonprivett) 's Twitter Profile
Simon Privett

@simonprivett

Epilepsy Advocate. 28 years experience of living w seizures. Epilepsy Awareness professional. PPI for #ExeterNurse MSci Course. Views my own.

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calendar_today07-11-2010 08:40:29

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The Creative Shootout (@thecreativeso) 's Twitter Profile Photo

Got 60 secs to support 630,000 people? Creativity has the power to make a difference. We’re calling on all creative minds. Your entry must be viewed by the judges in 60 secs or less, showing why you think YOU have what it takes to create change for Epilepsy Action Link in bio

Got 60 secs to support 630,000 people?

Creativity has the power to make a difference. We’re calling on all creative minds. Your entry must be viewed by the judges in 60 secs or less, showing why you think YOU have what it takes to create change for <a href="/epilepsyaction/">Epilepsy Action</a>

Link in bio
Simon Privett (@simonprivett) 's Twitter Profile Photo

For those in my network who may be interested in contributing to research in Exeter. If you’re over 18, have been living with epilepsy for over ten years, and would be willing to take part in an interview via Teams, Anika (@study25924) wants to hear from you!

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Dear Chancellor Rachel Reeves, we’ve joined with Turn2us - Tackling Financial Insecurity Together and over 60 organisations, urging you to use language that supports, rather than stigmatises, when discussing social security in your #Budget2024 Let's build a new narrative Our letter: turn2us.org.uk/New-Narrative

Simon Privett (@simonprivett) 's Twitter Profile Photo

I’ve signed. If you’re affected by epilepsy in any way, I would encourage you to do so too. If you aren’t affected by epilepsy, but care about the effects on those valproate has harmed, sign. If you don’t care, well, that’s on you.

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Sir Kier Starmer has called the benefits system "unsustainable" ahead of the upcoming Spring Budget. Changes are expected to the welfare system which is being criticised for pushing disabled people, including those with epilepsy, into poverty. Read more: epilepsy.org.uk/news/starmer-c…

Sir Kier Starmer has called the benefits system "unsustainable" ahead of the upcoming Spring Budget.

Changes are expected to the welfare system which is being criticised for pushing disabled people, including those with epilepsy, into poverty.

Read more:
epilepsy.org.uk/news/starmer-c…
Simon Privett (@simonprivett) 's Twitter Profile Photo

Living with uncontrolled epilepsy in the midlands area? Systems Modelling & Quantitative Biomedicine at Birmingham are looking for volunteers for a really interesting study into the effects of stress hormone cortisol on seizures. Email [email protected] for more info or to volunteer!

Living with uncontrolled epilepsy in the midlands area? <a href="/SMQB_UoB/">Systems Modelling & Quantitative Biomedicine</a> at Birmingham are looking for volunteers for a really interesting study into the effects of stress hormone cortisol on seizures. Email I.marinelli@bham.ac.uk for more info or to volunteer!
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

📢 It’s National Epilepsy Week — and we’ve got a message for the government: please, don’t take the PIP. 📮 We’ve delivered a letter to the Chancellor asking her to rethink these plans. 📢 Now we need your voice too. Go to epilepsy.org.uk/DontTakeThePIP and find out how to get involved

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

A big thank you to Andy MacNae MP for raising the impact changes to PIP could have on people with epilepsy this #NationalEpilepsyWeek. We are calling on MPs to oppose these changes #Don'tTakethePIP brnw.ch/21wSQ7p

Simon Privett (@simonprivett) 's Twitter Profile Photo

Delighted to see Neuronostics shortlisted for a SPARKies People’s Choice Award. Use the link below to vote and make sure epilepsy tech is recognised! share.hsforms.com/1HDhtDrXyTlay_…

Simon Privett (@simonprivett) 's Twitter Profile Photo

If you follow me, you know I have epilepsy. But what if someone else you know has epilepsy but hasn’t felt confident enough to share it? How would you react? #Epilepsy #EpilepsyAwareness #ChangeTheNarrative #EndTheStigma

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

What would your boss do if you told them you have epilepsy? 👔 Workplaces must be safe for everyone—with or without epilepsy. 👉 Watch, share, and challenge stigma where you see it. #EpilepsyAtWork #ChangeTheNarrative #EpilepsyAwareness

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Thank you to Helen Maguire MP for raising awareness of epilepsy in Parliament. Your voice helps bring much-needed attention to the challenges faced by those living with epilepsy, and we’re grateful for your support. #DontTakeThePIP

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Our 'If I Told You' campaign shows epilepsy is more than seizures for many like Isabella it affects love, friendships, and daily life in ways many don’t see. Our new video explores this, watch now: youtu.be/DMoYoH9Civs?fe… Read Isabella's story here: getsurrey.co.uk/news/health/i-…

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

🚨 Urgent PIP Update! 🚨 Thanks to YOU, we’ve reached 40% of MPs with our #DontTakeThePIP form! 🙌 But the vote’s next week – we need one final push: ✅ Fill in the form if you haven’t ✅ Ask your MP to vote NO Let’s protect PIP – together epilepsy.org.uk/DontTakeThePIP

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

We stand with our ambassador Paula McGowan as she and Tom mark a major milestone in their campaign for safer, more personalised care. Find out more with our resource for people with epilepsy and learning disabilities: epilepsy.org.uk/professional/b… bbc.co.uk/news/articles/…

Simon Privett (@simonprivett) 's Twitter Profile Photo

It’s been too long. Successive Governments have failed to act on the findings of the report, leaving affected families without the redress they need. It’s time for Wes Streeting to step up and deliver for those affected by Foetal Valproate Syndrome.

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

We’re thrilled to launch a limited-edition merch range, designed with Olivia Colman herself, to celebrate #NationalDoodleDay based on her doodle. Preorder your merch today: brnw.ch/21wUv1N And stay tuned… there’s so much more to come! #OliviaColman #DoodleDay2025

Simon Privett (@simonprivett) 's Twitter Profile Photo

The Epilepsy Action National Doodle Day auction is now live! From a portrait of Sir David Attenborough to cute pics of animals, an Ab Fab Doodle from Joanna Lumley, and cartoons by RW Alley (Paddington) and Staz Johnson (Marvel), there’s something for everyone! ebay.us/m/uxf5u3