Abby Turnwald (she/her) Yes! I will DM you

Do you know an amazing peds PT/OT/ST? I run monthly virtual sibling support groups for siblings of individuals with rare diseases (6-11 yr), and they have questions about what happens in therapy. I’d love to have therapists to join our group and talk to the sibs. #raredisease

We are preparing for our annual Ohio Siblings Network Gala! The Gala raises funds to support our mission to empower siblings and advocates to create a better world inclusive of people with disabilities. #disability #sibling #nonprofit #raredisease #glasschildren #sponsor

I’m starting a new, virtual Sibshop for siblings 6-11 years old in Ohio. All siblings (6-11 years old) are welcome, but we hope to reach siblings of individuals with rare diseases/genetic conditions. If you are interested, please fill out this survey: forms.gle/gYDyUp5erQZLaA…

This summer I had the incredible opportunity to present to families about the impact on siblings and run workshops for siblings of all ages at five conferences! Are you hosting a conference in 2025? I’d love to talk about opportunities for siblings. #genechat #raredisease

Much needed vacation to the wildflowers of Colorado 🌸 #Colorado #goldendoodle #dogs

Abby Turnwald (she/her) Thank you for joining us and for highlighting the importance of including siblings in our support framework!

Thank you The E.WE Foundation for inviting me to speak at the Leap Into Advocacy Summit! I loved getting to share the importance of supporting siblings. The more we talk about siblings, the more awareness we’ll create. Let’s keep the conversation going! #raredisease #genechat

Starting off conference season with the MFDM family conference. These siblings were amazing! Thank you MFDM for letting me run a sibshop! If your org is planning a conference and wants to include siblings, feel free to reach out! #raredisease #genechat

Bhooma Aravamuthan MD DPhil Cincinnati Children's Skyline Chili Graeter's Ice Cream AACPDM I’m a genetic counselor at Cincy Children’s and work with a lot of our CP families. I was so happy to hear about the push for genetic testing and your insights! Great lecture!

Thank you Effie Parks for having me on Effie Parks (effieparks.com) to talk all things genetic counseling and testing! Make sure you listen to this episode, and subscribe to Once Upon a Gene! 🧬 #raredisease #genechat

Monique Terrell Child Neurology Society Hi! I’m a neurology genetic counselor and would love to come to this year’s CNS conference, but options for registration don’t include generic counselors leaving us with the most expensive registration category, which is sadly outside our budgets for travel and conferences.

Talking about SibShops at the Ohio Association of County Boards of DD Conference! #sibling #sibshop #disability

So excited to add a 5th sibling workshop to my calendar for this summer! I love running these workshops and watching siblings connect. Angelman, EFTUD2, Polymicrogyria, SATB2, SCN2A families, make sure you sign your child (sibling) up for the sibling workshop at the conference!

Mary Overfield I am so so sorry. Keeping you and your family in my thoughts.

This weekend we hosted the annual Ohio Sib’s conference. Such a great turnout and so much valuable information shared! #siblings #disability #raredisease

Thinking of all the #raredisease siblings on National Siblings day. These are some words often used to describe siblings of individuals with rare diseases. What word best describes a sibling in your life?