SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile
SclerodermaSalfordManchester

@sclerodermam

Scleroderma research at the University of Manchester & Salford Royal Hospital.
For nailfold capillaroscopy research from our group, check out @McrNCM

ID: 1101513890133954562

calendar_today01-03-2019 16:05:51

126 Tweet

197 Followers

81 Following

SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile Photo

Clinicians with an interest in SSc: please complete this anonymous 15-minute survey on autologous hematopoietic stem cell transplantation (AHSCT), specifically focussing on experiences and preferences regarding post-AHSCT management. soscisurvey.de/postASCT/

Hector Chinoy (@drhectorchinoy) 's Twitter Profile Photo

Collating the Voice of people living with Autoimmune Diseases (CoVAD 3) Survey. We aim to understand your life so that physicians may understand healthcare interventions needed to improve those with chronic diseases. If you are >18, can you spare 15 mins? surveymonkey.com/r/TV6JF75

Collating the Voice of people living with Autoimmune Diseases (CoVAD 3) Survey. We aim to understand your life so that physicians may understand healthcare interventions needed to improve those with chronic diseases. If you are >18, can you spare 15 mins? surveymonkey.com/r/TV6JF75
NCA Research NHS (@ncaresearchnhs) 's Twitter Profile Photo

Important work here from an international survey of patients’ unmet needs and treatment preferences concerning digital ulcers in systemic sclerosis - senior author is Dr Michael Hughes from @salfordco_nhs @sclerodermaM academic.oup.com/rheumatology/a…

World Scleroderma Foundation (@worldsclerofnd) 's Twitter Profile Photo

πŸ‘‰Join Us in Prague! Don't miss out on this chance to be at the forefront of scleroderma research and advocacy. Learn more and register now: web.aimgroupinternational.com/2024/sclerosis… We can't wait to welcome you in Prague ! EUSTAR

πŸ‘‰Join Us in Prague! 
 Don't miss out on this chance to be at the forefront of scleroderma research and advocacy. Learn more and register now: web.aimgroupinternational.com/2024/sclerosis… We can't wait to welcome you in Prague ! <a href="/EUSTAR_org/">EUSTAR</a>
SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

If you are a patient with an autoimmune or rheumatic disease, we encourage you to ask your family and friends to take this survey this survey. Anyone with an autoimmune disease is eligible. Please find the link to the CoVAD-3 survey here: bit.ly/49UlEx0

If you are a patient with an autoimmune or rheumatic disease, we encourage you to ask your family and friends to take this survey this survey. 

Anyone with an autoimmune disease is eligible. 

Please find the link to the CoVAD-3 survey here: bit.ly/49UlEx0
SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile Photo

Direct patient involvement in research from Salford Royal Northern Care Alliance NHS Foundation Trust (NCA) NCA Research NHS. Patient-recorded nailfold capillary images recorded with a mobile phone camera, poster presentation 290 at SSc World Congress 2024 #sscworldcongress #prague2024

Direct patient involvement in research from Salford Royal <a href="/NCAlliance_NHS/">Northern Care Alliance NHS Foundation Trust (NCA)</a> <a href="/NCAresearchNHS/">NCA Research NHS</a>. Patient-recorded nailfold capillary images recorded with a mobile phone camera, poster presentation 290 at SSc World Congress 2024 #sscworldcongress #prague2024
SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile Photo

Great to hear the latest in nailfold capillaroscopy from A schofield πŸ‡ͺπŸ‡Ί πŸπŸ•· , Dr Clare Pain, and Graham Dinsdale πŸ‡ͺπŸ‡Ί 🐝 at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! nicola whitehill NCA Research NHS #bsr24

Great to hear the latest in nailfold capillaroscopy from <a href="/a_schofie/">A schofield πŸ‡ͺπŸ‡Ί πŸπŸ•·</a> , Dr Clare Pain, and <a href="/DinsdaleGraham/">Graham Dinsdale πŸ‡ͺπŸ‡Ί 🐝</a> at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! <a href="/cosmicfairy444/">nicola whitehill</a> <a href="/NCAresearchNHS/">NCA Research NHS</a> #bsr24
Research for the Future (@research_future) 's Twitter Profile Photo

πŸ”΅ π—₯π—²π—°π—Ώπ˜‚π—Άπ˜π—Άπ—»π—΄ π—»π—Όπ˜„ – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss

πŸ”΅ π—₯π—²π—°π—Ώπ˜‚π—Άπ˜π—Άπ—»π—΄ π—»π—Όπ˜„ – MISDOSS
Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma.
Message us or visit:
researchforthefuture.org/studies/misdoss
SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile Photo

We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. NCA Research NHS Northern Care Alliance NHS Foundation Trust (NCA)

We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. <a href="/NCAresearchNHS/">NCA Research NHS</a> <a href="/NCAlliance_NHS/">Northern Care Alliance NHS Foundation Trust (NCA)</a>
SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🀝

Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment,  and transforming #scleroderma care: 

Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🀝
Dr Rebecca Goulding (@rgouldinguom) 's Twitter Profile Photo

NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey

NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey
SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3

Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. 

On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. 

Sign up now! bit.ly/3TtaHg3
BSR (@rheumatologyuk) 's Twitter Profile Photo

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO SRUK | Scleroderma & Raynaud's UK

NCA Research NHS (@ncaresearchnhs) 's Twitter Profile Photo

Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @salfordco_nhs SclerodermaSalfordManchester. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.