👉🏻 The 4th ERICA Assembly is taking place in Udine from the 11th to the 13th December. 🎤 Today we presented the methodology created by ERN ReCONNET for the development of Red Flags on early diagnosis. 🔗 More info on the ERICA here: erica-rd.eu/about/governan…

THE FULL PROGRAM OF THE 2nd ERN ReCONNET CONGRESS IS AVAILABLE ONLINE! 📷 Discover the latest advancements in research and clinical care 📷 Engage with top experts in the field 📷 Connect with colleagues from across Europe Find the programme here: ern-reconnetcongress.com/topics

🎓 The ERN ReCONNET 🇪🇺 #webinar “Obstetric manifestations in past and present antiphospholipid syndrome (APS) classification criteria: what has been changed” is on our YouTube channel! 🔗Click here to access: youtu.be/pKg6y-E0Eog 🌐 More info on APS here: bit.ly/41CxNnP

📢 It´s World Health Day! Let's unite to promote health and well-being for all. Health is a fundamental human right, and together, we can work towards a healthier, more equitable world. #eularADVOCACY #EULAR #WorldHealthDay #HealthForAll #Wellbeing #Healthcare

✅ Amazing opportunity to hear Marta Mosca officially open the 2nd @ERN_ReCONNET congress during which we will fast-forward ⏩ the care of patients with rare connective tissue & Musculoskeletal diseases 👍 🇪🇺

The Second day of the 2nd International Scientific Congress of ERN RECONNET just started!

The Second ERN ReCONNET International Congress on rare and low prevalence connective tissue disease started yesterday in Prague. Amazing discussions full of new data to improve the knowledge on #connectivetissuediseases #ShareCareCure #EuropeanReferenceNetwoworks

🌍✨ We're live from Prague for the 2nd ERN ReCONNET Congress, taking place April 9th to 11th! Bringing together experts, patients, clinicians, and researchers from across Europe to share knowledge, strengthen collaboration, and advance the care in rCTDs. #ERNs #RareDiseases

Silvia Aguilera gave a great talk 🙌 about the difficulties of living with antiphospholipid syndrome ERN ReCONNET 🇪🇺 #2ERNReCONNETCongress SAF España congratulations 🎊

😃We are at the ERN ReCONNET 🇪🇺 International Congress on rare and low prevalence connective tissue disease! 🦋Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

✅ Happy to report that the @ERN_RECONNET #CROSSADAPT methodology for the cross-cultural adaptation of PROs for (rare) #autoimmune diseases has been accepted for publication 😊 With #CROSSADAPT we are now able to develop new PRO instruments simultaneously in MULTIPLE languages 👍

⏳ New deadline: 25th May! 🗣️ Living with a rare CTD? Share your story in the #ERNReCONNET survey to help shape better patient pathways. 💬 10 min, 10 languages, anonymous. 👉🏻Click here to submit your story🔗 bit.ly/3FNfK7g #PatientStories #ERNs #patientpathways

Register now for the 🆕ERN ReCONNET 🇪🇺 #webinar “From basics to updates for cutaneous lupus erythematosus (CLE)” with Dr François Chasset moderated by Dr Maarten Limper. 🗓️May 14th - 16 CEST ✍️Register here🆓bit.ly/4dpRAfT

🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲❗ And now it is easier than ever to raise #LupusAwareness thanks to #Lupus100 and #LupusGPT! Check lupus100.org & lupusgpt.org & find reliable information about #lupus in many languages! #MakeLupusVisible

✅ Are you looking for a NEW METHODOLOGY for the efficient #CROSSCULTURAL adaptation of #PRO instruments in MULTIPLE LANGUAGES SIMULTANEOUSLY? ➡️ Check our latest paper about the new @ERN_RECONNET #CROSSADAPT methodology 👍 doi.org/10.1186/s13023…

Today we celebrate the International Behçet’s Disease Awareness Day — a rare, multisystemic condition with a profound impact on the quality of life of those affected. #BehcetsDay #RareDiseases #BehcetClinicPisa #KnowToCare #May20 #RareDiseaseAwareness #TogetherForRare

🚨 ERN ReCONNET - SLICC - SLEuro expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations ⬇️ CHECK LINK: doi.org/10.1016/S2665-…

🚨🚨🚨 AHHH we have just been granted a 🔓 FREE 50-DAY ACCESS LINK to the expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations Can you please re-tweet the link so that a MAXIMUM have access for free 🔄 LINK: authors.elsevier.com/a/1l8og9UBHvvg…

Register now:🆕ERN ReCONNET 🇪🇺 #webinar “Thrombocytopenia in systemic lupus erythematosus (SLE)” with Dr. Karina de Leeuw and Dr. Hilde Kooistra, moderated by Dr. Maarten Limper. 🗓️June 18th - 16 CEST ✍️Registration is🆓 rb.gy/liwmgi ⚙️ on SLE bit.ly/4k2X5CZ

Thank you to everyone who stopped by the ERN ReCONNET booth at #EULAR2025 Congress in Barcelona! It was great to meet our members and connect with new people interested in our Network💙 #ERNReCONNET #RareDiseases #Networking #ShareCareCure