“The short answer for why I am donating regularly is because the day after my wife, Sarah, died was the first time I heard of SUDEP. If we had known about SUDEP, what it was, what it could do, I believe my wife would still be here." - (Thomas Pearmain) sudep.org/why-i-am-donat…

“Thank you SUDEP Action for your support with the Charlie Card. It breaks my heart and terrifies me that this is even needed... I am outraged that medical professionals don't understand that anti-seizure medications are literally lifesaving.” Independent Pharmacies Association (IPA) ESNA

Good luck with your #30for30 challenge, Sammy! 💜

📢 The Epilepsy Research Institute’s 2025–26 Grant Round is open! The ERI and SUDEP Action Emerging Leader Fellowship welcomes proposals across all #epilepsy research areas, up to £300,000 over 1–4 years for researchers. Apply by Mon 6 Oct 2025, 4pm: epilepsy-institute.org.uk/eri/research/a…

Our Fundraising Manager Katie is taking on her 30 for 30 challenge in September: “Every step I take is for those affected by epilepsy, and for the person I’m determined to become again.” Learn more: sudep.org/get-involved/3… #SUDEP #epilepsy #30for30

Worried about your child’s return to school? Arrange a meeting with your child’s teacher or the school’s Special Educational Needs and Disabilities Coordinator (SENDCo) to discuss your child’s specific needs and safety. #SUDEP #epilepsy #backtoschool2025

“Doing something creative for SUDEP Action gives me purpose - I hope that people will find as much joy in my paintings as I do while painting them.” Trustee Rachel Shah takes on the #30for30 Challenge creating 30 paintings in memory of her daughter Emily: sudep.org/artist-rachel-…

I am the love you cannot see And all I ask is – look for me. (I am here by Iris Hesselden) Call our support team on 01235 772852 or email in on [email protected] #SUDEP #epilepsy

Find out what we’ve been up to with our latest newsletter: heyzine.com/flip-book/c76a… #SUDEP #epilepsy #epilepsyawareness #sudepaction

Wednesday 15th October is #SUDEPActionDay2025 We realise the day can intensify thoughts and feelings of losing a loved one to epilepsy but please know our team are here for you. Just call 01235 772852 or email [email protected] #SUDEP #epilepsy #epilepsyawareness

Today is #SUDEPActionDay2025 We are uniting with organisations around the world to #BREAKDOWNBARRIERS surrounding information that people with #epilepsy or those bereaved by it should have access to. Tag us in your messages and photos @SUDEPAction #SUDEP #epilepsyawareness

SUDEP is not a condition. Sudden Unexpected Death in Epilepsy is when someone with epilepsy dies and no other cause of death can be found during the post-mortem. Awareness saves lives. 💜 #SUDEP #epilepsyawareness #epilepsy #sudepactionday

Jane Hanna OBE, for #SUDEPActionDay2025, has identified the top 10 barriers the charity has fought to break down over the past three decades. These include ones we are still striving to break down. Read more: sudep.org/ten-barriers-s… #SUDEP #epilepsy #epilepsyawareness

For #SUDEPActionDay2025, Monica Lennon MSP has called on the Scottish Government and Parliament to strengthen efforts to improve epilepsy safety, ensure clear communication of risk and provide support for bereaved families. Read more: parliament.scot/chamber-and-co… #SUDEP #epilepsy

Do you see patients with epilepsy? Join the 2,000 clinicians who use our award-winning SUDEP and Seizure Safety Checklist. Adult Checklist: tinyurl.com/tmce5mvz Paediatric version: tinyurl.com/2pd7dvrx #SUDEPActionDay2025 #SUDEP #seizures #epilepsy

Emma died of SUDEP in 2023. She was just 26. Her mother Dianne says Emma faced barriers all her life, fighting to get her #epilepsy recognised and for access to services and care. Read Emma's story: sudep.org/stories/emma/ #SUDEPActionDay2025 #SUDEP #epilepsyawareness

We recently asked some of our policy champions to sum us and our work up in a word or two. Here’s our word cloud of responses. Find out more about our work: sudep.org #sudepactionday #SUDEP #epilepsy #epilepsyawareness

Regular check-ins with EpSMon can highlight when its time to speak with your GP, it can also help identify risks that could lead to #seizures. Download today and start your safer #epilepsy journey. Search “EpSMon” on the App Store. #SUDEP #epilepsyawareness #SUDEPActionDay2025

For many people living with epilepsy, stress is a common trigger for seizures. Download our EpSMon app today to help you track how stress, sleep and other factors impact your seizure risk. Just search “EpSMon” on the App Store. #nationalstressawarenessday #epilepsy #seizures

Why does our work matter? “When it comes to talking about epilepsy, there’s a lot of stigma…” Hear from our team and supporters of our work. #SUDEP #epilepsy #epilepsyawareness #sudepaction