🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Meet Jill & Arlo, a mother and son living with RUNX1-FPD. Jill has already raised $12,000 to help families like hers access clinical trials. It’s not too late for you to help too! Start a fundraiser or donate today! All gifts through May 31st are MATCHED! Givebutter:

ATTN #RUNX1 Clinicians: RRP offers specialized resources, peer groups, educational events & research opportunities specifically for RUNX1-FPD patients. Please refer your patients directly to Amanda Eggen ([email protected]) & share our site: runx1-fpd.org.

Registration is now open for the 9th Annual Virtual #RUNX1 Scientific Conference. This year’s theme, “Navigating New Frontiers,” highlights emerging insights in #RUNX1FPD research, including inflammation, immune regulation, gene networks, and novel therapeutic approaches. The

ATTN #RUNX1 Clinicians: RRP offers specialized resources, peer groups, educational events & research opportunities specifically for RUNX1-FPD patients. Please refer your patients directly to Amanda Eggen ([email protected]) & share our site: runx1-fpd.org.

📣 We’re Extending the Campaign to June 12! 📣 Thanks to your incredible support, we’re so close to reaching our $50,000 goal, but, we’re not stopping yet! To help us cross the finish line, we’re extending the X-Out Blood Cancer Campaign through June 12! Every dollar raised

Your Experience Matters! Help Shape the Future of RUNX1-FPD Care. If you are an individual with RUNX1-FPD, your voice can help change the landscape of research, treatment, and support for this #raredisease. Join the RUNX1 Patient Data Hub (PDH), a secure, global platform where

Thank you Ximena Jordan Bruno for sharing this article! Studying young AML patients and their treatment responses is especially important to our RUNX1-FPD community, as the average age of AML onset for patients is 29 years. #RUNX1 #AML

🎗️ Today is National Cancer Survivors Day 🎗️ Today we honor the strength, resilience, and hope of everyone affected by cancer: those newly diagnosed, those in treatment, those in remission, and the families, caregivers, and loved ones supporting them. Let’s celebrate progress

Now accepting abstract submissions for the 9th Annual Virtual #RUNX1 Scientific Conference on September 9th and 10th, 2025. Share your work with the international RUNX1-FPD community! Details and guidelines here: runx1researchprogram.org/xRUNX1SciCon20…

The NIH has published the first dedicated study on pregnancy and delivery outcomes in individuals with RUNX1-FPD. Key findings: • Bleeding risks can be managed with proper care • Early diagnosis matters Read the full study: runx1-fpd.org/runx1-patients… #RUNX1FPD #RareDisease

We’ve Got 2 Extra Weeks to Reach $50K! Thanks to your incredible support, we’re giving the X-Out Blood Cancer Campaign two more weeks to make an even bigger impact for RUNX1-FPD families. And here’s the best part: Every dollar donated during this extended time will still be

Registration is open for the 9th Annual Virtual RUNX1 Scientific Conference! This year’s theme “Navigating New Frontiers” reflects our focus on the latest in #RUNX1FPD research. From inflammation and immune regulation to gene networks and novel therapies, don’t miss this premier

With just 1 week to go and a generous donor matching every gift, we’re only $387 shy of our $50,000 goal to support RUNX1 patients! Your gift can help RUNX1-FPD patients access life-changing clinical trials by breaking down financial barriers like travel and lodging costs.

⏳ Just a Few Days Left to X-Out Blood Cancer! ⏳ Thanks to a generous donor matching each gift dollar for dollar, we have already raised over $49,000 for RUNX1-FPD Patients! We are so close to our $50,000 but we need your help to cross the finish line. Double your impact.

The May Newsletter is here and it’s packed with updates you won’t want to miss! • X-Out Campaign extended through June 12 • Launch of New RUNX1 Tissue Bank • Register now for our 2025 Virtual Conference & Patient Meeting • Read the latest on RUNX1-FPD research, webinars, and

Be part of the future of RUNX1-FPD research at the 9th Annual Virtual RUNX1 Scientific Conference! This year’s theme, Navigating New Frontiers, explores cutting-edge topics like inflammation, immune pathways, gene regulation, and new treatment strategies. Register now to

Abstract submissions are now open for the 9th Annual Virtual #RUNX1 Scientific Conference, happening September 9–10, 2025. Share your latest research with the global RUNX1-FPD community. Submission guidelines: runx1researchprogram.org/xRUNX1SciCon20…

Tomorrow is the LAST day of our X-Out Blood Cancer campaign! We’re less than $400 away from hitting our $50,000 goal, and every gift is matched dollar for dollar. Every donation counts. Please help us fund travel costs for patients participating in the first-ever RUNX1 clinical

Today’s the day! It’s the LAST DAY of our X-Out Blood Cancer campaign and we’re SO close to our $50,000 goal. Your gift today helps cover travel costs for patients with RUNX1-FPD so they can access clinical trials that could change lives. Be part of this journey and help us

Help connect your RUNX1-FPD patients to research opportunities that offer access to emerging care strategies and contribute to the future of treatment. Current Research Opportunities: • Clinical Trials: Patients may qualify for a sirolimus trial evaluating a low-dose treatment