RRPFORG (@rrpforg1) 's Twitter Profile
RRPFORG

@rrpforg1

The RRPF exists to support patients, caregivers with education and access to RRP resources, as well as fund vital research. We are a Rare As One org.

ID: 1370135613438103558

linkhttp://www.rrpf.org calendar_today11-03-2021 22:12:48

82 Tweet

46 Followers

103 Following

RRPFORG (@rrpforg1) 's Twitter Profile Photo

Shop for your holiday cards today and support the RRPF! Go to minted.com/holiday and enter the code below for 20% off!

Shop for your holiday cards today and support the RRPF!  Go to minted.com/holiday  and enter the code below   for 20% off!
RRPFORG (@rrpforg1) 's Twitter Profile Photo

The RRPF is reminding you that we can be found on LinkedIn, Instagram and Facebook…as well as our website RRPF.org.

RRPFORG (@rrpforg1) 's Twitter Profile Photo

Work on your shopping list today and support the RRPF while benefitting from 20% off! Minted.com offers holiday cards, stationary, unique invitations, art, home decor and an array of gifts! Use the code FUNDRAISERRPF at checkout for all your holiday needs.

RRPFORG (@rrpforg1) 's Twitter Profile Photo

You can follow the RRP Foundation on the following social media accounts to keep up with the latest news and general engagement with the foundation. Facebook: Recurrent Respiratory Papillomatosis Foundation Twitter: @rrpforg1 Linkedin:@rrpforg Instagram:@rrpforg

You can follow the RRP Foundation on the following social media accounts to keep up with the latest news and general engagement with the foundation.   

Facebook: Recurrent Respiratory Papillomatosis Foundation 
Twitter: @rrpforg1
Linkedin:@rrpforg
Instagram:@rrpforg
RRPFORG (@rrpforg1) 's Twitter Profile Photo

Support the RRPF when you purchase your Holiday cards! #laryngealpapillomatosis #recurrentrespiratorypapillomatosis #fundraiser #investintheRRPF #CureRRP

Support the RRPF when you purchase your Holiday cards! #laryngealpapillomatosis #recurrentrespiratorypapillomatosis #fundraiser #investintheRRPF #CureRRP
RRPFORG (@rrpforg1) 's Twitter Profile Photo

Are you a clinician that treats RRP patients? Have you wish their was a resource you could share with them about the RRP journey! It’s coming!! A patient toolkit is a 2023 project! Support the RRPF on Giving Tuesday to partner with us on this project! #laryngealpapilloma #HPV

Andra Stratton (@livinlavidalopo) 's Twitter Profile Photo

I have had some of the worst experiences of my life going through TSA pat down as someone who’s body type sets off the screening due to my #RareDisease. Thanks for the support Mark Hamill

JAMA Oncology (@jamaonc) 's Twitter Profile Photo

Study shows incidence of suicide among pts undergoing cancer operations was significantly elevated compared to general population, highlighting need for programs to actively implement regular suicide screening among such pts ja.ma/3iFveia

RRPFORG (@rrpforg1) 's Twitter Profile Photo

Any type of illness that alters your ability to communicate, as well as your airway, brings a despair only those impacted truly understand. We see this in so many RRP patients.

RRPFORG (@rrpforg1) 's Twitter Profile Photo

Visit rarediseaseday.org/downloads/ to add a social media profile, filter, banner, and more! Let's wear our stripes proudly! "Alone we can do so little; together, we can do so much." -Helen Keller

Visit rarediseaseday.org/downloads/  to add a social media profile, filter, banner, and more! Let's wear our stripes proudly!

"Alone we can do so little; together, we can do so much."
-Helen Keller
RRPFORG (@rrpforg1) 's Twitter Profile Photo

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh. We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh.

We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…
RRPFORG (@rrpforg1) 's Twitter Profile Photo

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh. We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh.

We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…
RRPFORG (@rrpforg1) 's Twitter Profile Photo

The RRPF is thrilled about this award. Elevating the voices of patients around the globe can and will drive us closer to non-surgical treatments!

RRPFORG (@rrpforg1) 's Twitter Profile Photo

We are here! April 17, 2023, a RRPF bucket list day! #IPVC2023 #recurrentrespiratorypapillomatosis #HPV #whilewebreathewehope

We are here! April 17, 2023, a RRPF bucket list day! #IPVC2023 #recurrentrespiratorypapillomatosis  #HPV #whilewebreathewehope