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The REFoRMS team are excited to be at the #rhabdomyosarcoma workshop today!! We’re looking forward to a day of inspiring chat with parents, clinicians & researchers to help us develop an online resource to display information on trials for children with relapse/refractory RMS

We are raring to go to talk about the living-REFoRMS project and how we are going to develop an online resource for information on studies for children with relapsed/refractory #rhabdomyosarcoma Big thanks to @CCLG_UK and Alice's Arc for their help with funding this work!

Following on from the successful #rhabdomyosarcoma workshop, the REFoRMS team are processing all of the info, preparing a report of the event alongside a tech briefing to outline the plans for the resource and what info it needs to contain/look like! 😃 #Research #PPIinvolvement

📢 The 1st spin-off project from the baseline review has been published! The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇 onlinelibrary.wiley.com/doi/10.1002/pb…

Project update: The 3rd living-reforms update report (LSR-3) is now available to read on the @CCLG_UK website! 😀 cclg.org.uk/our-research-p… The REFoRMS review has now identified 165 published early phase studies including >1300 CYP with relapsed/refractory #rhabdomyosarcoma

Super excited to be involved in this year's @CCLG_UK Research Discovery Day in partnership with Candlelighters Trust! Early phase trials will be a key discussion point on this day, so make sure to look out for information on the REFoRMS project!😀

Project update: The 4th living-reforms update report (LSR-4) is now available to read on the @CCLG_UK website! 😀 cclg.org.uk/write/MediaUpl… This review has now identified over 166 published early phase studies with >1300 CYP with relapsed/refractory #rhabdomyosarcoma

The Living-REFoRMS reports are now also available to read on the Alice's Arc website! alicesarc.org/our-research/ It's so important to have our findings publicly available for everyone to read online so this is great news! 😀 #rhabdomyosarcoma #childhoodcancerawarenessmonth

One of our researchers Jess Morgan recently did a short talk at the @CCLG_UK research discovery day! She explained what early phase trials are, and how the REFoRMS project is involved in understanding this #research! Check it out here 👇 youtu.be/235_VVuYCuE?si…

The 5th update for the living-REFoRMS project (LSR-5) is now available to see on the Alice's Arc website! alicesarc.org/wp-content/upl… This review has now identified >170 published early phase studies with >1350 children and young people with relapsed/refractory #rhabdomyosarcoma

The sixth update of the Living-REFoRMS review evaluating new early phase studies for children & young people with relapsed/refractory #rhabdomyosarcoma has begun! Meanwhile, the team are continuing to progress with developing the website to present the data from this review! 😃