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April 8th: #CushingsAwarenessDay🌟 Today marks Cushing's Awareness Day in honor of Dr Harvey Cushing's birthday and his discovery of this disease. This day is dedicated to raising awareness about this rare disease, which affects over 40 patients per million and often takes

Recognising Cushing's syndrome is a challenge, and it is crucial for physicians to identify patients and guide them onto an appropriate care pathway. Cushing syndrome is rare and manifests itself through muscle weakness, early bruising, unexplained weight gain, moon face,

Cushing’s Syndrome is a rare and underestimated condition mainly caused by an overproduction of cortisol. What is cortisol?  Cortisol is an hormone playing a key role in regulating various body functions and its excess can significantly affect physical and mental health. What

“Cushing has left me feeling like a shadow of my former self, but I'm still fighting every day to regain my strength and reclaim my life." Join Ada, Teresa, and Mario, who share their story on the emotions of living with Cushings to help raise awareness about Cushing's syndrome.

Cystinosis is a rare genetic disorder characterized by the accumulation of the amino acid cystine within cells, leading to damage in various organs, including the kidneys, eyes, muscles, and the brain. On Cystinosis Awareness Day, we stand in solidarity with patients,

At Recordati Rare Diseases, we’re thrilled to be part of the ECE Congress 2024 hold this year in Stockholm, Sweden from 11 – 14 May 2024, mark your calendars! 🗓️ 🔍 What’s in store? - Join us at Booth #28 to explore groundbreaking advancements in endocrinology. - Don’t miss

We are excited to announce that Recordati Rare Diseases will be participating in the upcoming SIOPE Congress, organized by the European Society for Paediatric Oncology, from 13-17 May in Milan! This prestigious event for healthcare professionals brings together leading minds in

Today is the opening of the European Congress of Endocrinology (ECE). At RRD we are proud to be part of this event with healthcare professionals. Meet us at our booth n°28! We will also share latest news on #Cushingssyndrome and #Acromegaly during our Satellite Symposium from

🌟 Join Our satellite symposium! As an Healthcare Professional, would you like to learn more about the latest news about #CushingsSyndrome and #Acromegaly management? Look no further! Gain expert insights from Drs. Fleseriu, MK Biller, Reincke, and Esposito. 🗓️ When: Monday, 13

As the curtains fall on this outstanding ECE edition in Sweden, we express our sincere gratitute to everyone who contributed to its success. 🙌 The opportunity to participate allowed us to connect with international dedicated attendees, fostering valuable conversations and

We’re excited to announce that Recordati Rare Diseases will be hosting a symposium at the SIOPE Congress, on Thurday 16 May, from 1 to 2 PM CET in Milan! Intended for healthcare professionals only, join us for an insightful discussion on "Real world clinical practice in

Today is World Homocystinuras Awareness Day! Homocystinurias are a group of rare genetic disorders affecting how the body processes methionine, leading to elevated homocysteine levels in the blood. This can result in a range of health complications impacting the eyes,

Tomorrow, a dedicated team of 70 colleagues from Recordati Rare Diseases will be participating in the Enfants sans Cancer City charity run in Paris la Défense! We are incredibly proud to support the association Imagine for Margo in their efforts to combat pediatric cancer. Their

🎉 Congratulations to our team of 70 dedicated colleagues who participated in the "Enfants sans Cancer City" charity run, supporting the French patient association Imagine for Margo ! By joining forces with Imagine for Margo, we help fund essential research that is crucial in the

We are thrilled to announce our participation in the upcoming #SSIEM2024 Congress in Porto from September 3-6! This event brings together experts and innovators in the field of inherited metabolic diseases, providing a platform for collaboration, learning, and advancing

Today, we join the global community in recognizing World Lymphoma Awareness Day, a day dedicated to raising awareness about lymphoma and supporting patients and families affected by this challenging disease. With over 1 million people living with lymphoma worldwide, it’s

Looking ahead to the Pituitary Awareness Month coming up in October, Recordati Rare Diseases highlights #ThisCushing, an awareness initiative that aims to provide healthcare professionals and patients with valuable resources to increase their understanding of Cushing's disease

Pituitary Awareness Month begins! Join us in raising awareness about the crucial role of the pituitary gland and rare pituitary disorders. #ThisCushing initiative, Recordati Rare Diseases is sharing scientific content, patient stories and expert insights throughout October to

Ahead of Rare Disease Day on February 28th, we’re sharing the story of Reza, a 13-year-old living with cystinosis - a rare condition that causes the amino acid cystine to build up in organs like the kidneys and eyes. Despite the challenges, Reza is full of optimism and big

On Rare Disease Day, we are proud to share our Rare Disease Patient Community Charter, the result of a yearlong collaboration to ensure patients remain central to our planning, thinking, and actions. Developed with our “patient ambassadors” across Europe and beyond, and with