
RareShare
@rareshareorg
RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
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http://RareShare.org 09-06-2011 22:31:23
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Urgent action needed! The Creating Hope Reauthorization Act is key to supporting children with rare diseases. We can’t let the progress stop here! Contact your Senator TODAY! National Organization for Rare Disorders (NORD) Before September 30th, Take Action!: rarediseases.org/driving-policy…

















💜 We’re counting down to Rare Disease Day on February 28, 2025! Over 300 million people worldwide live with a rare disease—yet many still lack a diagnosis and treatment. At Rare Genomics, we’re committed to empowering families with genomic insights and expert connections.


