For Haemophilia B GT, Pre debate 0% very likely to prescribe,62% likely,23% unlikely,15% very unlikely. Post debate 33% very likely to prescribe,27% likely,27% unlikely, 13% very unlikely 2/2

Welcome our friends, volunteer members of our NMO in Palestine, who come as part of the WFH twinning program, between Venezuela and Palestine , in training, education and project issues, to care for our patients with hemophilia and other coagulation disorders WFH

Who should be treated with Gene Therapy? Simple initial answer by Pierce #ISTH2024 SSC-Whoever has access and has gone through shared decision making and wants this treatment

Pierce #ISTH2024 puts Gene Therapy in context with other haemophilia innovations

The WFH 2023 Annual Report is out! Celebrating 60 years of impact, advocacy, and support. Discover our accomplishments and ongoing commitment to #TreatmentForAll. Read more about how we're changing lives worldwide: bit.ly/4eW4ouP #BleedingDisorders

Working meeting with our twin organisation from the Jordanian Society for Haemophilia and Thallasaemia under WFH Twinning programme

Very interesting visit IBTS Education & Research with our Jordan twins WFH . Thanks to Aileen Farrelly for the very informative tour IrishHaemophiliaSoc

The past two days the I.H.S. and our twins from Jordan have visited the NCC at St James's Hospital, the IBTS Education & Research and the comprehensive care centre at CHI at Crumlin for wonderful tours of each. Thanks to everyone who led these tours!

Sadly, our twinning visit has come to an end. Yesterday, our Jordanian guests visited our Chairperson's house where they saw how Irish homes are set up for children with haemophilia. In the evening, we enjoyed a tour of Trinity College Dublin, and a lovely meal to say goodbye.

We are sorry that the WFH twinning programme is coming to a close, but we are happy to have spent this week taking part in productive meetings and we look forward to maintaining our friendship with Jordan. Thank you to Rana Saifi for all your insights this week!

The IHS are organising a series of 6 clinical webinars on different aspects of inherited bleeding disorders. While directed at clinicians, patient leaders are welcome to attend. More information can be found at this link where you can also register: conferenceorganisers.ie/ihs24-webinar-…

We encourage clinicians and health care profesdionals interested in haemophilia and inherited bleeding didorders to register and attend WFH EHC_Haemophilia EAHAD National Bleeding Disorders Foundation

The Irish Haemophilia Society have organised a series of 6 clinical webinars with great speakers that will take place over the next few months. Follow the link to see the topics and register. tinyurl.com/2t6xfp9j #hemophilia IrishHaemophiliaSoc Brian O Mahony

Our commentary on the regressive and unsafe WHO decision to add pathogen reduced cryoprecipitate to the core essential medicines list with non inactivated cryo as an alternate therapy. Safe and effective CFCs on complementary list. This is a dangerous signal to Governments.

The WFH reached many milestones in 2023. Watch the video to see some of these milestones and help us to continue our mission and achieve our 5-year goals by donating now: bit.ly/4d4o0LL

For 60 years, #hemophilia treatment has advanced dramatically. Yet, the World Health Organization (WHO)'s 2023 Essential Medicines List does not reflect current guidelines and still includes outdated options like non pathogen-reduced cryoprecipitate. Learn more in The Lancet Haematology: bit.ly/4cnAqgy

A new study sheds light on quality of life and activity levels in people with moderate hemophilia. Nordic findings show that joint issues hurt quality of life and activity. Read more below 👇

📰A study found that PwH A and B, and those with inhibitors, receiving episodic care vs. prophylaxis faced more frequent bleeds and a higher treatment burden. Regular prophylaxis led to better outcomes, showing the need for improved therapies. Read more: bit.ly/3T8HtmJ

🧬Roctavian, the first #GeneTherapy for #hemophilia A, offers new hope but faces challenges with declining factor VIII levels over time. This review focuses on the clinical development of Roctavian. Read more➡️ bit.ly/3Z4sygV

We had a fantastic Mild Haemophilia Information Day on Saturday with Beatrice Nolan! She went through all the basics & shared some interesting data on the prevalence of the severities worldwide & the number of women diagnosed. This was highly engaging with Q&As throughout.