And since you are all here, my brilliant colleagues from Future of Privacy Forum are organizing this training on understanding the data flows and some technical aspects of data governance of AI, on May 20: eventbrite.com/e/understandin…

Make sure you join us on #AXSChat Twitter chat. Tuesday 27th at 3 pm NYC, Debra Ruh, Neil Milliken and I talk with Dr. Rachele Hendricks-Sturrup Health Policy Counsel and health lead at the Future of Privacy Forum. #AI #Privacy #Inclusion

A1 Acceptance of the importance of #diversity is key to ensure that community voices are heard. Researchers and data experts should feel comfortable reaching out to diverse communities as collaborators and persons with lived experience, not as mere research subjects. #AXSChat

A2 Blending #privacy into the #design process is the art of #privacybydesign. Blending other aspects into the design process, like #ethics, #security, and #accessibility, is the art of #humancentereddesign. Both arts are equally important. #AXSChat

A3 Awareness around key issues is paramount to any engagement initiative at every level. For purposes of #accessibility is important to meet people where they are to effectively serve and engage them as stakeholders. #AXSChat

A4 #Data misuse was an issue that predated COVID-19 and is an issue that continues today. Knowing what tools are at your disposal to protect yourself and your work or business from #data misuse is the first step in the right direction. #AXSChat

A5 Any inferential dataset, when applied broadly, has the potential to perpetuate conscious or unconscious #bias. Dangers might include improper diagnosis or even inaccurate profiling of an individual, which might create harmful consequences for persons & populations. #AXSChat

A6 Most things in life are not one-size-fits-all and technology is no exception, as we see especially during COVID-19. Developers should get feedback from #diverse users to improve the #accessibility of tech and address the #digitaldivide through smart design. #AXSChat

A nice weekend read about Dan Breznitz's new book entitled, "Innovation in Real Places" ssir.org/books/reviews/…

The #callforproposals for the 2021 virtual #AllInData4Health National Meeting is now live! Looking forward to diving into community work around racial equity, navigating the spectrum of community engagement, & advancing policy change. Submit by June 11: bit.ly/3vYufe8

Responsible data sharing requires that we hear from community service providers. Take the All In National Inventory of Data Sharing Collaborations Survey today! #communitydata #communityhealth #healthequity #health #HealthForAll #data tinyurl.com/DASHinventory2…

In their new Forefront article, Caleigh Propes (she/her), Trevan Locke + Dr. Rachele Hendricks-Sturrup from Duke-Margolis discuss how a point-of-care trial is an operational approach to conducting clinical trials that integrates clinical research and routine care delivery. bit.ly/3cfbBdN

This is so important. See also this recent article in JPCRR exploring how patient perspectives are critical to optimizing care following FH test results: institutionalrepository.aah.org/jpcrr/vol8/iss… Harvard Medical School Dr. Rachele Hendricks-Sturrup @TheFHFoundation National Lipid Association #FHAwarenessDay #PROs #KnowFH

Happy to share some of my latest work entitled "A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers," published today in the Journal of Personalized Medicine. lnkd.in/ewkAuGeW #realworlddata #privacy

Happy #ResearchWednesday! Check out an article by #HPI's #FangZhang and Christine Lu that assesses how privacy-related experiences may shape participants' willingness to share data with researchers. Read it here: mdpi.com/2075-4426/12/1…

Let’s make this happen! We have until March 20th at 10 PM. #TheExpanse

The #GA4GH Equity, Diversity, and Inclusion (EDI) Advisory Group has published a paper in Cell Genomics! 🤩Read now: doi.org/10.1016/j.xgen…

Cell Genomics Manuel Corpas School of Life Sciences, University of Westminster Neerjah Skantharajah Shakuntala Baichoo Khalid Fakhro Sylvia Gayle ... Dr. Rachele Hendricks-Sturrup, Ashley Hobb, Stephanie Li, Bastien Llamas, Dr. Catalina Lopez-Correa (She/Her 🏳️‍🌈🇨🇦🇨🇴), Mavis Machirori, Jorge Melendez-Zajgla, Mareike A. Millner, Angela Herring Page, Laura Paglione, Maili Raven-Adams, Lindsay Smith, Ericka M. Thomas, and Judit Kumuthini.

This roundtable, moderated by Malaika Simmons, featuring Dr. Rachele Hendricks-Sturrup, Gabriella Waters, Dr. Laurie Novak, Martin Were and Sajid Hussain, explores several ways to enhance ethics and equity in #AI/ML, including the study of workflow impacts. Read here: ow.ly/kk3O50Q4Fwo

Join Session Two of our ELSIconversations series with Duke-Margolis on 4/5 at 12pm ET discussing pharmacogenomic testing in psychiatric care. Join the conversation with: Deepak Voora, MD, Robert Schuck, PhD, Gary Proctor, MD and Dr. Rachele Hendricks-Sturrup. Register: ow.ly/7zTc50QXfaX