📢📢We are speaking to advocates, creators & influencers who discuss #LynchSyndrome/#BRCA on social media & it's truly amazing to learn about their work to share information, personal stories and expertise!🤳👩‍🎓 Would you like to know more about our project? Have a look at this👇

📢Do you have a hereditary cancer syndrome? We're looking for people with: - Lynch syndrome - BRCA Take part in workshop to discuss how to improve testing of family members. Anyone in UK & these conditions welcome to take part. Email: [email protected]. Further detail 👇

In our journey into patient experiences of #BRCA and #Lynchsyndrome #hereditarycancer, we are also finding out about books and memoirs written by patients for other patients and for health professionals. These are the first entries of our project's library 👇

#lynchsyndrome

Do you have any recommendations of #hereditarycancer memoirs?

We are looking forward to present our work on social media visuals of ill health at #SMsociety in London tomorrow!

Hi jj singleton! We’re researching experiences of cancer genetic risk and social media and are looking to interview people who have shared content about Lynch Syndrome. Would you be interested in talking to us? If so we can send you more info via DM/email. Thanks so much!

Hi Rob the 🇨🇦 Cubs Fan! We’re researching hereditary cancer syndromes and social media and are looking to interview people who share content about Lynch Syndrome on Twitter. Would you be interested in talking to us? If so we can send you more info via DM/email. Thanks so much!

We are interviewing! Do you write about #BRCA and/or #Lynchsyndrome on social media? We would like to hear about how you do it! We are trying to understand how social media can contribute to personal experiences of learning about or coping with #hereditarycancer👇

Join/Share: #gyncsm advocacy chat Wed Sep 11th at 8pmET gyncsm.blogspot.com

Work starts on a cancer vaccine for people with #Lynchsyndrome ⁦Cancer Research UK⁩ news.cancerresearchuk.org/2024/09/10/lyn…

📢📢We presented at BSA Medsoc AKA @[email protected]! 🎙️We are exploring how images shared on social media may influence how we understand #BRCA and #LynchSyndrome #hereditarycancer. Get in touch if you want to know more, we have a paper in the making... (Pic by super kind Natalie Tyldesley-Marshall (She/Her/Hers)).

📢📢How do images of #hereditarycancer become popular on social media? We have a new article out in Sociology of Health and Illness Journal where we analyse #BRCA pictures from Facebook, Instagram and X. The paper is available open access at: onlinelibrary.wiley.com/doi/10.1111/14… 👇

It's good to be back in the conferencing world after🤰 leave! I'm at #ECREA2024 in Ljubljana presenting our work from Previvorship where we analysed images of #BRCA #hereditarycancer across platforms. 🔊Thurs 26th, 14.30, FDV15

At #ECREA2024? Make sure you don't miss Hannah Ditchfield presenting on social media visualities of ill health from our project Previvorship ! 👉Today, Thurs 26th at 14.30, FDV15👈

Great talk and insightful visualisation on pictures of hereditary cancer from Hannah Ditchfield / Previvorship project #ECREA2024

📢📢Hannah Ditchfield Hannah Ditchfield presented our latest findings on the images of #BRCA #hereditarycancer that you are most likely to come across on social media. Spoiler alert: they are highly gendered, racialised and never represent affected organs beyond the (female) breast.

#lynchsyndrome

Do you post/read about #BRCA or #LynchSyndrome on social media? Talk to us! 👉Our research participants receive a £20 voucher and help us understand how social media influence understandings of #hereditarycancer! 👈 Interested? Email: [email protected]

📢Yumeng Guo has now joined Previvorship! 🥳 Yumeng’s research explores the intersection of official risk communication and digital platforms during health emergencies. At Previvorship, Yumeng will contribute to the organisation and analysis of interview data. Welcome Yumeng!