Standing Up to POTS (@potsactivist) 's Twitter Profile
Standing Up to POTS

@potsactivist

SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.

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linkhttps://linktr.ee/sutp calendar_today30-12-2014 01:47:29

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Managing your symptoms, researching new treatment, scheduling appointments...it can all feel overwhelming. It's okay to take a break from it all. What's one way you take a break from #POTS? #dysautonomia #awareness #selfcare

Managing your symptoms, researching new treatment, scheduling appointments...it can all feel overwhelming. It's okay to take a break from it all. 

What's one way you take a break from #POTS?

#dysautonomia #awareness #selfcare
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Drs Anna Cabeca & Dempsey cover hormones, symptoms, treatments, natural alternatives, importance of vaginal health for overall health, & how women don’t need to suffer so much with menopause or hormonal issues. Listen on your favorite platform or at ThePOTScast.org

Drs Anna Cabeca & Dempsey cover hormones, symptoms, treatments, natural alternatives, importance of vaginal health for overall health, & how women don’t need to suffer so much with menopause or hormonal issues.  Listen on your favorite platform or at ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Progress doesn’t always move in a straight line. Some days you’re climbing, others you're just barely getting through. What do you do keep your spirits up on those tough days? #POTS #motivationalmonday #dysautonomia

Progress doesn’t always move in a straight line. Some days you’re climbing, others you're just barely getting through. What do you do keep your spirits up on those tough days?

#POTS #motivationalmonday #dysautonomia
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Sam was enjoying a post-graduation road trip when some unlucky medical issues left her with POTS and non-epileptic seizures. Now she is raising awareness, sharing her experiences and tips as a TikTok influencer. Listen on your favorite platform or at ThePOTScast.org

Sam was enjoying a post-graduation road trip when some unlucky medical issues left her with POTS and non-epileptic seizures.  Now she is raising awareness, sharing her experiences and tips as a TikTok influencer.  Listen on your favorite platform or at ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Exercise can benefit most #POTS patients, but the journey is not a straight line. It's important to go slowly, listen to your body, and keep your focus on your long term goal of increasing stamina over time. doi.org/10.3390/jcm132… #SUTP #dysautonomia #spoonie

Exercise can benefit most #POTS patients, but the journey is not a straight line. It's important to go slowly, listen to your body, and keep your focus on your long term goal of increasing stamina over time. doi.org/10.3390/jcm132… #SUTP #dysautonomia #spoonie
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Just because your battle is invisible does not make it any less real. You don't have to prove your pain to deserve compassion. Share this with someone you know fighting a difficult battle to remind them of their strength. #POTS #dysautonomia #motivationalmonday #invisible

Just because your battle is invisible does not make it any less real. You don't have to prove your pain to deserve compassion. Share this with someone you know fighting a difficult battle to remind them of their strength.

#POTS #dysautonomia #motivationalmonday #invisible
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in POTS symptoms, care seeking, diagnostic delay, and other aspects of the patient journey. Listen on your favorite platform or ThePOTScast.org

Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in POTS symptoms, care seeking, diagnostic delay, and other aspects of the patient journey.  Listen on your favorite platform or ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Building core strength is critical to overall function for many people with #POTS. A strong core can allow other muscles to rest during activity, saving energy overall. Most of this core work can be done on the floor, an added benefit! doi.org/10.3390/jcm132… #SUTP #dysautonomia

Building core strength is critical to overall function for many people with #POTS. A strong core can allow other muscles to rest during activity, saving energy overall. Most of this core work can be done on the floor, an added benefit! doi.org/10.3390/jcm132… #SUTP #dysautonomia
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Chronic illness doesn't just affect your health, it can alter your abilities, independence, control. Sometimes healing means allowing the space to grieve those very real losses. How do you cope with the loss? #pots #dysautonomia #motivationalmonday

Chronic illness doesn't just affect your health, it can alter your abilities, independence, control. Sometimes healing means allowing the space to grieve those very real losses. How do you cope with the loss?

#pots #dysautonomia #motivationalmonday
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Caitlyn was a 4th grade teacher, mom, group fitness instructor, and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was “too much,” what did she do? She wrote. ThePOTScast.org

Caitlyn was a 4th grade teacher, mom, group fitness instructor, and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was “too much,” what did she do? She wrote.  ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

The priority in building stamina for people with #POTS is to be able to complete your activities of daily living safely. Slowly work your way up - laps around the sofa, standing at the counter - until you can live comfortably in your home. doi.org/10.3390/jcm132… #SUTP

The priority in building stamina for people with #POTS is to be able to complete your activities of daily living safely. Slowly work your way up - laps around the sofa, standing at the counter - until you can live comfortably in your home. doi.org/10.3390/jcm132… #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Fighting an invisible battle is hard enough. But it’s even harder when you have to convince others it’s real. The best way you can show up for those you love is to believe them. Tag someone who makes you feel seen. #POTS #dysautonomia #motivationalmonday #invisible

Fighting an invisible battle is hard enough. But it’s even harder when you have to convince others it’s real. The best way you can show up for those you love  is to believe them. 

Tag someone who makes you feel seen.

#POTS #dysautonomia #motivationalmonday #invisible
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

This is an excellent discussion for those interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Dr. Cutchins and Dr. Tania Dempsey share their latest thinking on how to treat these complex patients. ThePOTScast.org

This is an excellent discussion for those interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Dr. Cutchins and Dr. Tania Dempsey share their latest thinking on how to treat these complex patients. ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

A very small percentage of people develop #POTS symptoms after #COVID vaccine. The symptoms usually appear in the first two weeks and include signs of orthostatic intolerance including dizziness and high heart rate. doi.org/10.1186/s12872… #SUTP #dysautonomia

A very small percentage of people develop #POTS symptoms after #COVID vaccine. The symptoms usually appear in the first two weeks and include signs of orthostatic intolerance including dizziness and high heart rate. doi.org/10.1186/s12872… #SUTP #dysautonomia
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Your journey matters more than you know. Sharing your experience might give someone the inspiration to keep going. Share this graphic with someone who inspires you. #POTS #chronicillness #invisibleillness #motivationalmonday

Your journey matters more than you know. Sharing your experience might give someone the inspiration to keep going. Share this graphic with someone who inspires you.

#POTS #chronicillness #invisibleillness #motivationalmonday
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Alici’a spends a LOT of time hugging garbage pails. She did not get support from her school or insurance company, as hoped, so she found other ways to reach her goals and pursue her dreams. ThePOTScast.org

Alici’a spends a LOT of time hugging garbage pails.  She did not get support from her school or insurance company, as hoped, so she found other ways to reach her goals and pursue her dreams.  ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

When #POTS symptoms flare, it's okay to decrease your exercise protocol until the flare passes. Instead, try core stability exercises that you can do on the floor. Pace yourself and try techniques that help you to relax as your recover. doi.org/10.3390/jcm132… #SUTP

When #POTS symptoms flare, it's okay to decrease your exercise protocol until the flare passes. Instead, try core stability exercises that you can do on the floor. Pace yourself and try techniques that help you to relax as your recover. doi.org/10.3390/jcm132… #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

It's okay to grieve the life you pictured before #POTS. That other life deserves to be mourned. It’s how we honor what mattered. #dysautonomia #motivationalmonday #chronicillness

It's okay to grieve the life you pictured before #POTS. That other life deserves to be mourned. It’s how we honor what mattered.

#dysautonomia #motivationalmonday #chronicillness
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Dr. Jen Curtin is integrating HIPAA-compliant artificial intelligence and other technologies to improve patient care and offer innovative services. Don’t miss this episode for a view of the future of medical care! Listen on your favorite platform or at ThePOTScast.org

Dr. Jen Curtin is integrating HIPAA-compliant artificial intelligence and other technologies to improve patient care and offer innovative services. Don’t miss this episode for a view of the future of medical care!  Listen on your favorite platform or at ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Gaslighting is a real problem for many #POTS patients who are doing their best to exercise and decrease their symptoms. A negative encounter with a practitioner who assumes that lack of progress results from lack of effort is not helpful. doi.org/10.3390/jcm132… #SUTP

Gaslighting is a real problem for many #POTS patients who are doing their best to exercise and decrease their symptoms. A negative encounter with a practitioner who assumes that lack of progress results from lack of effort is not helpful. doi.org/10.3390/jcm132… #SUTP