Canadian Association for Porphyria (@porphyriacanada) 's Twitter Profile
Canadian Association for Porphyria

@porphyriacanada

Providing information and support to Canadians with porphyria and their families since 2014.

ID: 1491545817856897026

linkhttp://www.porphyriacanada.ca calendar_today09-02-2022 22:53:47

155 Tweet

111 Followers

609 Following

Town of Newmarket (@townofnewmarket) 's Twitter Profile Photo

Tonight, #Newmarket’s Fred A. Lundy Bridge will be lit purple for #GlobalPorphyriaAwarenessDay to raise awareness for this rare blood disorder. #purpleforporphyria

Mitsubishi Tanabe Pharma America (@mtpa_us) 's Twitter Profile Photo

In anticipation of Global Porphyria Day, we're highlighting our commitment to the #porphyria community. Danielle Wall, Associate Director of Clinical Operations on our EPP team oversees our efforts in advancing research and care for those impacted by this rare disease.

City of Brampton (@citybrampton) 's Twitter Profile Photo

This evening, the Brampton City Hall clock tower will be lit purple in recognition of Global Porphyria Awareness Day in #Brampton. Let's raise awareness, promote understanding and stand in solidarity with individuals and families affected by porphyria.

This evening, the Brampton City Hall clock tower will be lit purple in recognition of Global Porphyria Awareness Day in #Brampton.

Let's raise awareness, promote understanding and stand in solidarity with individuals and families affected by porphyria.
City of Selkirk (@cityofselkirk) 's Twitter Profile Photo

Tonight we light the Water Tower purple for Global Porphyria Awareness Day. Today is a day to raise awareness and support for those affected by this rare genetic disorder. 💜 For more information and to learn how you can help, visit porphyriacanada.ca #MyPorphyria

Tonight we light the Water Tower purple for Global Porphyria Awareness Day.

Today is a day to raise awareness and support for those affected by this rare genetic disorder. 💜

For more information and to learn how you can help, visit porphyriacanada.ca

#MyPorphyria
Town of Collingwood (@towncollingwood) 's Twitter Profile Photo

The clock tower will be illuminated purple on May 18th in recognition of Global Porphyria Awareness Day and Museum Month. Today is also International Museum Day! @porphyriacanada

The clock tower will be illuminated purple on May 18th in recognition of Global Porphyria Awareness Day and Museum Month. Today is also International Museum Day!

@porphyriacanada
British Porphyria Association (@bpa_porphyria) 's Twitter Profile Photo

Check out Natassja Chadwick's amazing interview on Manx Radio/Newscast: ow.ly/nQfF50RL1hP Tash talks about life with 2 kids with #ErythropoieticProtoporphyria. Amazing #PorphyriaMummyWarrior! Keep up the great work flying the EPP/porphyria flag! #GlobalPorphyriaDay

Check out Natassja Chadwick's amazing interview on Manx Radio/Newscast: 
ow.ly/nQfF50RL1hP 

Tash talks about life with 2 kids with #ErythropoieticProtoporphyria.
Amazing #PorphyriaMummyWarrior!
Keep up the great work flying the EPP/porphyria flag!

#GlobalPorphyriaDay
United Porphyrias Association (@unitedporphassc) 's Twitter Profile Photo

#GlobalPorphyriaDay is here! Raise awareness by: 💜SHARING the #MyPorphyria videos 💜 CREATING your own #MyPorphyria 💜 Snapping a pic while wearing #PurpleforPorphyria Get templates and links: porphyria.org/get-involved/p… Tag @unitedporphassoc and GlobalPorphyria

#GlobalPorphyriaDay is here! Raise awareness by:

💜SHARING the #MyPorphyria videos
💜 CREATING  your own #MyPorphyria 
💜 Snapping a pic while wearing #PurpleforPorphyria

Get templates and links: porphyria.org/get-involved/p…

Tag @unitedporphassoc and <a href="/GlobalPorphyria/">GlobalPorphyria</a>
City of Mississauga (@citymississauga) 's Twitter Profile Photo

Tonight, we are lighting the #Mississauga Civic Centre clock tower purple for Global Porphyria Awareness Day. Learn more at porphyriacanada.ca #purpleforporphyria #porphyriacanada #globalporphyriaawarenessday #myporphyria #porphyria

Tonight, we are lighting the #Mississauga Civic Centre clock tower purple for Global Porphyria Awareness Day. Learn more at porphyriacanada.ca #purpleforporphyria #porphyriacanada #globalporphyriaawarenessday #myporphyria #porphyria
Parc olympique (@parcolympique) 's Twitter Profile Photo

Aujourd'hui, la Tour s'illuminera d'un éclairage mauve pour la journée de sensibilisation à la porphyrie. Organisme (plateformes en anglais) : L’association canadienne de Porphyrie | Canadian Association for Porphyria porphyriacanada.ca

Aujourd'hui, la Tour s'illuminera d'un éclairage mauve pour la journée de sensibilisation à la porphyrie.

Organisme (plateformes en anglais) : 
L’association canadienne de Porphyrie | <a href="/PorphyriaCanada/">Canadian Association for Porphyria</a>
porphyriacanada.ca
City of Vaughan (@city_of_vaughan) 's Twitter Profile Photo

At the request of the Canadian Association for Porphyria , the City of Vaughan has illuminated City Hall purple this evening in recognition of Porphyria Awareness Day. Learn more about City flag-raising, illumination and proclamation requests at vaughan.ca/ProtocolServic…

At the request of the <a href="/PorphyriaCanada/">Canadian Association for Porphyria</a> , the City of Vaughan has illuminated City Hall purple this evening in recognition of Porphyria Awareness Day. Learn more about City flag-raising, illumination and proclamation requests at vaughan.ca/ProtocolServic…
Mitsubishi Tanabe Pharma America (@mtpa_us) 's Twitter Profile Photo

In recognition of #GlobalPorphyriaDay this past weekend, we acknowledge the unique journey and challenges experienced by individuals affected by this rare disease. Our mission is to drive scientific discovery in support of those impacted by #porphyria.

John Horn (@hornjohnhorn) 's Twitter Profile Photo

I'm late to the game here (because I was on a cycle trip across Washington State ... wearing shorts!). Thanks to Canadian Association for Porphyria I have been connected to treatments that are helping me manage #myporphyria. #PurpleforPorphyria #globalporphyriaawarenessday #porphyriacanada

I'm late to the game here (because I was on a cycle trip across Washington State ... wearing shorts!).

Thanks to <a href="/PorphyriaCanada/">Canadian Association for Porphyria</a> I have been connected to treatments that are helping me manage #myporphyria.

#PurpleforPorphyria #globalporphyriaawarenessday #porphyriacanada
Canadian Association for Porphyria (@porphyriacanada) 's Twitter Profile Photo

Join us for this special presentation from Dr. Aneal Khan to learn about the genetic basis of porphyria and the implications of new advancements in genetics. CAP Annual General Meeting to follow. Register to receive the Zoom link (link in bio or forms.gle/ZRyhRgP5m7eqAg…)

Canadian Association for Porphyria (@porphyriacanada) 's Twitter Profile Photo

Make sure your doctor has a copy! For the first time there is guidance for Canadian medical professionals on diagnosing and treating acute porphyrias like AIP, VP and HCP. Get a copy at sciencedirect.com/science/articl… #porphyria

Make sure your doctor has a copy! 

For the first time there is guidance for Canadian medical professionals on diagnosing and treating acute porphyrias like AIP, VP and HCP. 

Get a copy at sciencedirect.com/science/articl…
#porphyria