#NACFC2020 #NACFC please get behind the call for global access for CFTR modulators. This is about human rights of people to have best attainable health. #cysticfibrosis doesn't need to take lives before age 15 (Bulgaria), 10 (Macedonia) & 21 (South Africa) anymore Vertex Pharmaceuticals

#NACFC2020 #NACFC

#NACFC2020 #NACFC

Dying patients w/ #cysticfibrosis are urging compassion & reasonable behaviour by Vertex Pharmaceuticals to get life-saving drugs like #kaftrio to all patients, in line w/ UN Human Rights guidelines. Thank you for covering ed silverman STAT

‘Dying waiting’: Advocates urge Vertex to widen global access to cystic fibrosis drugs statnews.com/pharmalot/2020… via STAT #vertexsaveus #vertexsaveme #vertexsavethem #cysticfibrosis $vrtx UN Human Rights

We thank @JenTaylorCousar pquinton for thinking about those around the world left dying without access to Vertex Pharmaceuticals drugs - what we really need is the company to establish a global access to medicines policy to include them all. Please work with us to set up #vertexsaveus

So no 'compassion' to be shown to #cysticfibrosis patients in most of South America, Africa and Asia then Vertex Pharmaceuticals? #Lifesavingdrugsforcf #muco #mukovisizdose #cfaware #sistiesefibrose #mukovistsidoz #cističnafibroza @VertexSave #vertexsaveus #vertexsavethem #cfawareness

This has to change.

Przyłącz się do akcji #VertexSaveUs #vertexsaveme #vertexsavethem @VertexSave Vertex Pharmaceuticals oddechzycia.pl/aktualnosci/pr…

‘Why should I die when I’m so young, I have a lot of plans, I have a lot of dreams. Why right now should I say goodbye to my friends to my family’ Monika is 24. She has #cysticfibrosis Vertex Pharmaceuticals Please treat the sickest wherever they live, you can afford some compassion $vrtx

‘I’m same person as my friends w/ #cysticfibrosis in US, in UK in Germany. Why I don’t have any drugs to help me, to save my life?’ Vertex Pharmaceuticals this is the reality of your lack of global compassionate access ‘Please Vertex save us’ #vertexsaveus #vertexsaveme #vertexsavethem

Ndumiso is from Zimbabwe, he now lives in #SouthAfrica & was the 1st black person w/ #cysticfibrosis to join @SACFA_Central. Ndumiso is brave campaigner 4 awareness of pan-ethnic nature of CF, lack of which restricts diagnosis as discussed at #NACFC @JenTaylorCousar #vertexsaveus

Ndumiso also battles his own #cysticfibrosis He & 000’s others in #africa need current drugs & more clinical trials by Vertex Pharmaceuticals. Please don’t discriminate with compassion & establish a strategy for all by geography & genotype #vertexsaveus #vertexsaveme #vertexsavethem $vrtx

'I don't want to die. I want to live' Humanity is defined by kindness, mercy & sympathy. #vertexsaveus Alethia Young Geoff Meacham Robyn Karnauskas geoffrey porges Kostas Biliouris Brian Skorney Geoff Meacham Alethia Young Etzer Darout Cory Kasimov HARTAJ SINGH Robyn Karnauskas $vrtx Vertex Pharmaceuticals

.Vertex Pharmaceuticals is pleased to announce approval for reimbursement for our first #cysticfibrosis medicine for eligible people living with #CF in Poland.

2020 pushed the #NHS to breaking point - here's how we fix it in 2021. Join the nationwide campaign for an #NHSNewDeal today: justtreatment.org/join

Congratulations to my colleague @RobinSwannMoH for the speed of the covid vaccine rollout in Northern Ireland. It's a big UK team effort. We're making great progress & more to do. Meanwhile: Stay at home. Protect the NHS. Save lives.

A graduated easing of the advice for CEV people is planned to begin on 12 April 2021. More info ➡️health-ni.gov.uk/news/updated-a… Guidance & advice ➡️nidirect.gov.uk/articles/coron…

I'm pleased to read this for those w/ cysticfibrosis I know will benefit & this intensifies the need for affordable prices for #trikafta globally for ALL age groups. This cruel disease can be stopped in its tracks for 00000's #trikafta4all #CFAwarenessMonth #globalcffamily $vrtx

FREE SCHOOL MEALS INFORMATION. Children with a statement of special educational needs and who require a special diet can avail of free school meals support. 1/3