PKD International (@pkd_int) 's Twitter Profile
PKD International

@pkd_int

A Global Alliance of #PKD Patient Groups promoting research and improved care for everyone affected by #ADPKD and #ARPKD

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linkhttp://www.pkdinternational.org calendar_today26-04-2011 18:58:49

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When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference. In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: endpkd.ca/vegetables_and… PKD Foundation of Canada

When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference.

In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: endpkd.ca/vegetables_and…

<a href="/endPKD/">PKD Foundation of Canada</a>
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Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases? This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals. 👉 mhtoolkit.eurordis.org #PKDInternational EURORDIS-Rare Diseases Europe

Did you know there’s a Mental Health &amp; Wellbeing Toolkit created specifically for people affected by rare diseases?

This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals.

👉 mhtoolkit.eurordis.org

#PKDInternational
<a href="/eurordis/">EURORDIS-Rare Diseases Europe</a>
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🤝🇦🇺 Proud to Partner with PKD Australia 🌏 💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide. #PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases

🤝🇦🇺 Proud to Partner with <a href="/PKDAustralia/">PKD Australia</a> 🌏

💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide. 

#PKDInternational #ADPKD #ARPKD  #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases
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🗓️ September 20, 2025 PKD International is honoured to join the celebration of the 20th anniversary of our founding member AIRP - Associazione Italiana Rene Policistico ets, marking two decades of dedication to the fight against polycystic kidney disease. 👉 renepolicistico.it/save-the-date

🗓️ September 20, 2025 

PKD International is honoured to join the celebration of the 20th anniversary of our founding member <a href="/AIRPonlus/">AIRP - Associazione Italiana Rene Policistico ets</a>, marking two decades of dedication to the fight against polycystic kidney disease.

👉 renepolicistico.it/save-the-date
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Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last. Read the full article by the PKD Foundation of Canada to learn how small: endpkd.ca/a_simple_guide…

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💛 Together, we can transform the future of PKD care Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

💛 Together, we can transform the future of PKD care 

Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope. 

💻 Be part of the change today: pkdinternational.org/donate

#PKDInternational #DonateForPKD
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🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch

🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients &amp; push research forward.

#PKDInternational #EndPKD #ADPKD #PKDResearch
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🌍 Today is #PKDAwarenessDay ! The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease (#PKD).

🌍 Today is #PKDAwarenessDay !

The global community comes together to raise awareness, share knowledge, and support one another.

Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease (#PKD).
PKD International (@pkd_int) 's Twitter Profile Photo

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU #PKDInternational

Researchers from the #ARegPKD registry &amp; #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU

#PKDInternational
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In this video, Professor Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.

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💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine. 🔗 Read the full article on PKD Foundation of Canada: endpkd.ca/hydration_and_…

💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.

🔗 Read the full article on <a href="/endPKD/">PKD Foundation of Canada</a>:
endpkd.ca/hydration_and_…
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On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP - Associazione Italiana Rene Policistico ets : 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place. We are proud to stand alongside AIRP in this shared mission 👉 renepolicistico.it/save-the-date

On September 20, 2025, at the Auditorium Testori in Milan, the event “<a href="/AIRPonlus/">AIRP - Associazione Italiana Rene Policistico ets</a> : 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.

We are proud to stand alongside AIRP in this shared mission

👉 renepolicistico.it/save-the-date
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❤️ Today we celebrate 20 years of AIRP - Associazione Italiana Rene Policistico ets in Milan! PKD International President Flavia Galletti proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛 #PKDInternational #PKD #ADPKD #ARPKD

❤️ Today we celebrate 20 years of <a href="/AIRPonlus/">AIRP - Associazione Italiana Rene Policistico ets</a> in Milan!

PKD International President Flavia Galletti proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛

#PKDInternational #PKD #ADPKD #ARPKD
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🌟 Live from TheRaCil Project Annual Meeting in Strasbourg! PKD International is represented by our President, Flavia Galletti, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛 #PKDResearch #ADPKD #ARPKD

🌟 Live from <a href="/TheRaCilProject/">TheRaCil Project</a> Annual Meeting in Strasbourg!

PKD International is represented by our President, Flavia Galletti, PELSI Board member, ensuring the patient voice shapes research &amp; care for #PKD. 💛

#PKDResearch #ADPKD #ARPKD
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🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the PKD Foundation webinar on the unique challenges of #ADPKD for women, pregnancy & children. 💛 All info in the original post.👇

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Diagnosing autosomal recessive polycystic kidney disease (#ARPKD) in children can be challenging. Researchers have now identified a unique urinary peptide pattern that can help distinguish ARPKD from other kidney conditions 👉theracil.eu/publications/u… TheRaCil Project

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📣 Parents of kids with rare/undiagnosed conditions — your experience can drive change! Tell us what helps & what’s missing. Your answers shape better support & policies. 👉Take the #RareBarometer survey: tiny.cc/RB-MH 🌍In 25 languages #RareDiseases #Advocacy

📣 Parents of kids with rare/undiagnosed conditions — your experience can drive change!

Tell us what helps &amp; what’s missing. Your answers shape better support &amp; policies.

👉Take the #RareBarometer survey: tiny.cc/RB-MH
🌍In 25 languages

#RareDiseases #Advocacy
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🌍 Welcome to our global PKD family! We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨ #PKD #PKDCommunity #PatientAdvocacy

🌍 Welcome to our global PKD family! 

We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C.  as our newest member. 🇲🇽✨

#PKD #PKDCommunity #PatientAdvocacy
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🌍 Global Collaboration for a PKD-Free Future We are proud to partner with PKD Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease (#PKD) 🔗 Learn more at pkdcharity.org.uk

🌍 Global Collaboration for a PKD-Free Future

We are proud to partner with <a href="/PKDCharity/">PKD Charity UK</a>, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease (#PKD)

🔗 Learn more at pkdcharity.org.uk
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#PKDInternational was pleased to participate in the annual members’ meeting of SwissPKD, which took place yesterday in Zurich. 💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.

#PKDInternational was pleased to participate in the annual members’ meeting of <a href="/SwissPkd/">SwissPKD</a>, which took place yesterday in Zurich. 

💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.