Pituitary Ireland (@pituitaryirela1) 's Twitter Profile
Pituitary Ireland

@pituitaryirela1

Pituitary Ireland is a Non Profit patient Support Group established to offer support & info to people living with rare diseases of the Pituitary Gland.

ID: 1140958262877138947

linkhttp://www.pituitaryireland.ie calendar_today18-06-2019 12:23:42

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It’s #MedSafetyWeek All medicines can cause side effects. help prevent them by taking your medicines as instructed.Make sure to take your medicines in the right dose, at the right time, and in the right way.👉 hpra.ie/report

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Calling Healthcare professionals to participate in a Global Cushing’s survey, you will help us learn more about Cushing’s Disease and its impacts on people’s lives. Please find the survey link For Health Care Professionals: In English: surveymonkey.com/r/CushingHCP

Calling Healthcare professionals to participate in a Global Cushing’s survey, you will help us learn more about Cushing’s Disease and its impacts on people’s lives.

Please find the survey link For Health Care Professionals:
In English:  surveymonkey.com/r/CushingHCP
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Calling Healthcare professionals to participate in a Global Cushing’s survey, you will help us learn more about Cushing’s Disease and its impacts on people’s lives. Please find the survey link For Health Care Professionals: In English: surveymonkey.com/r/CushingHCP

Calling Healthcare professionals to participate in a Global Cushing’s survey, you will help us learn more about Cushing’s Disease and its impacts on people’s lives.

Please find the survey link For Health Care Professionals:
In English: 
surveymonkey.com/r/CushingHCP
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Please participate in this Cushing’s Survey open to People living with the rare disease & HCP’s. Link : wapo.org/are-you-a-pers…

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If you live with Addison’s disease or adrenal insufficiency then it's very important that others are aware in case of an emergency or crisis. The Pituitary Foundation Have (2) different types available for order from their Website. 🟣🔵🟠 order 👉️ pituitary.org.uk/product/adults…

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there has been a lengthy collaborative move to change the name of Diabetes Insipidus to AVP-deficiency. This has been driven by patients. A new education video for has been launched. Below you will find the link to a 2 minute 40 second clip ⤵️ m.youtube.com/watch?v=JZlm52…

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Happy New Year 2025 As we enter a new year, we want to thank everyone in the pituitary community, patients, families, healthcare professionals, and supporters, for their dedication and trust in us. Happy, healthy, and prosperous New Year! Pituitary Ireland

Happy New Year 2025 

As we enter a new year, we want to thank everyone in the pituitary community, patients, families, healthcare professionals, and supporters, for their dedication and trust in us. 
Happy, healthy, and prosperous New Year!

Pituitary Ireland
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28 February is Rare Disease Day. Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Access resources to help promote Rare Disease Day rarediseaseday.org/downloads/

28 February is Rare Disease Day. 

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Access resources to help promote Rare Disease Day

rarediseaseday.org/downloads/
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💚🤍🧡 May your troubles be less, And your blessings be more, And nothing but happiness Come through your door. ☘️☘️☘️ May your heart be light, Your laughter be bright, And your day be filled With Irish delight! Happy Saint Patrick’s Day 🇮🇪🇮🇪🇮🇪

💚🤍🧡

May your troubles be less,
And your blessings be more,
And nothing but happiness
Come through your door.

☘️☘️☘️

May your heart be light,
Your laughter be bright,
And your day be filled
With Irish delight!

Happy Saint Patrick’s Day 

🇮🇪🇮🇪🇮🇪
Pituitary Ireland (@pituitaryirela1) 's Twitter Profile Photo

Watch This short video which provides insight into the care of an individual with AVP-Deficiency (AVP-D), formerly known as Cranial Diabetes Insipidus. People with AVP-D must always have access to water and require the essential medication Desmopressin. youtu.be/BlNxPjUwBjU

Watch This short video which provides insight into the care of an individual with AVP-Deficiency (AVP-D), formerly known as Cranial Diabetes Insipidus. 

People with AVP-D must always have access to water and require the essential medication Desmopressin.
youtu.be/BlNxPjUwBjU
Pituitary Ireland (@pituitaryirela1) 's Twitter Profile Photo

New video out now! 🚨 Cushing’s disease is a rare and complex endocrine disorder. Hear from 8 patient advocates and Dr. Noa Tal in this new "Walk w/ WAPO " video for Cushing’s Awareness Day. 🎥 Watch it and share: Walk with WAPO for Cushing’s youtu.be/--4wtOLtPAY #Cushings

New video out now! 🚨
Cushing’s disease is a rare and complex endocrine disorder. Hear from 8 patient advocates and Dr. Noa Tal in this new "Walk w/ WAPO " video for Cushing’s Awareness Day.
🎥 Watch it and share: Walk with WAPO for Cushing’s 
youtu.be/--4wtOLtPAY
#Cushings
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In this article, Prof Niamh Martin explores what Cushing’s is, the role of cortisol in health and disease, and ongoing research in this area. You can watch it here on YouTube : youtu.be/v51C6s2Sr2M?si… #Cushing'sAwarenessDay2025 #Cortisol #CushingsResearch

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Adrenal function recovers for most Cushing’s patients after surgery to remove a tumor, with faster recovery tied to a younger diagnosis age. buff.ly/TzvwAk7 #cushingsdisease #cushingssyndrome #cushingsawareness #cushings

Adrenal function recovers for most Cushing’s patients after surgery to remove a tumor, with faster recovery tied to a younger diagnosis age. 

buff.ly/TzvwAk7 

#cushingsdisease #cushingssyndrome #cushingsawareness #cushings
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📣 Living with Addison’s Disease ?Join a webinar on Sick Day Rules, hosted by Addison's Disease Self-Help Group (ADSHG) & The Pituitary Foundation , with Aldons Chua, Endocrine Nurse Specialist. 🗓️ Date: Wednesday, 28 May ⏰ Time: 6:00–7:00 PM (BST) 👉 Register here : addisonsdisease.org.uk/Event/sick-day… #AddisonsDisease

📣 Living with Addison’s Disease ?Join a webinar on Sick Day Rules, hosted by <a href="/AddisonsUK/">Addison's Disease Self-Help Group (ADSHG)</a> &amp; <a href="/Pituitary_org/">The Pituitary Foundation</a> , with Aldons Chua, Endocrine Nurse Specialist.

🗓️ Date: Wednesday, 28 May
⏰ Time: 6:00–7:00 PM (BST)

👉 Register here : addisonsdisease.org.uk/Event/sick-day…

#AddisonsDisease
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🌍 A historic day for our community! On May 24, #WHA78 adopted the #Resolution4Rare — recognizing the challenges of living with rare diseases like Addison’s & pituitary conditions. A vital step toward equity in care. Now, let’s turn resolution into action. 💪 #RareDiseases

🌍 A historic day for our community! On May 24, #WHA78 adopted the #Resolution4Rare — recognizing the challenges of living with rare diseases like Addison’s &amp; pituitary conditions. A vital step toward equity in care. Now, let’s turn resolution into action. 💪 #RareDiseases
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🎥 Missed the ISE #AdrenalInsufficiency webinar? Watch it now for FREE on the ISE Global Education Hub! 👨‍⚕️ Expert speakers from 🇸🇪 🇬🇧 🇳🇱 🧬 Topics: APS, adrenal genetics & patient perspectives 👥 400+ attendees joined live! 💻 : bit.ly/4nlSAGa #Endocrinology #Rare

🎥 Missed the ISE #AdrenalInsufficiency webinar? Watch it now for FREE on the ISE Global Education Hub!

👨‍⚕️ Expert speakers from 🇸🇪 🇬🇧 🇳🇱
🧬 Topics: APS, adrenal genetics &amp; patient perspectives
👥 400+ attendees joined live!

💻 : bit.ly/4nlSAGa

#Endocrinology #Rare
The Pituitary Foundation (@pituitary_org) 's Twitter Profile Photo

📢 Research opportunity now available 📢 For full details of the study and how to get involved, please see our website 👉️ pituitary.org.uk/research-oppor…

📢 Research opportunity now available 📢

For full details of the study and how to get involved, please see our website 👉️ pituitary.org.uk/research-oppor…