Every morning Every crash Every small win Every friend let down Every dismissal or disbelief Every medicine or therapy that fails Every false dawn WE GO AGAIN!! Because we have to Together Every single day Sending love & strength today to all #PwME #PwLC #ME #MECFS #LongCovid

Last year, following the inquest into my daughter's death from ME a minister said the govt was “committed to funding high-quality research”. Since then? Nothing. No more research funding. No sign of the NHS delivery plan. Today is World ME Day. Time for Wes Streeting to step up.

Now I’ve settled at my in-laws’ place in SE England, I want to get an official ME diagnosis. Have been looking at the local service and it looks ok to me? Would love some advice from the community on getting diagnosed and what to watch out for. I’m currently moderate & 3y8m in.

Published today! Victoria Bastos, Kerrie Greene et al found two distinct immunotypes of ME/CFS based on the cerebrospinal fluid analysis. Great collaboration with Michael VanElzakker Amy Proal, PhD and the Bragée clinic in Sweden. (1/) academic.oup.com/jimmunol/artic…

"Mason Foundation awards $1.44 million to fight [ME/CFS]" eqt.com.au/mediacentre/20… Great to see this significant funding for ME/CFS research in Australia 👏🍾 #MEcfs #CFS

Congratulations to "M.E. Awareness and Reform" from The Times and The Sunday Times for being awarded winner of Campaign of the Year at The Press Awards 2025!

Pleased to have 3 abstracts accepted for the Chartered Society of Physiotherapy conference in Nov. Thanks Chartered Society of Physiotherapy (CSP) Physios For ME

Released this month is a German language version of our book "A physiotherapist's guide to understanding and managing ME/CFS" We had no input on cover or translation choices, but are pleased our key messaging has broadened its reach amazon.de/dp/3456863713?…

Well that's a wrap. 40 follow-up measurements (across Liverpool and Manchester) completed for our #tvns study. Thank you to all #ME participants. KarenLesliePhysio now to complete the interviews and your PhD! Time for a short break by the sea for me. Physios For ME

‼️Michelle Bull Dr Michelle Bull 💙 Physios For ME Living with ME/CFS and Long Covid: Managing symptoms Norsk tekst Evening lecture #MECFS & #LongCovid Conference #DiggingDeeper Stavanger, Norway 8May2025 @ Norges ME-forening - Rogaland Fylkeslag Sissel Sunde 🇳🇴 Per Oddvar Navestad #PEM #LifeMatters youtube.com/watch?v=vv0pUw…

Just saw this in the physio frontline journal! All advocacy is important however small! Thanks Chartered Society of Physiotherapy (CSP) Physios For ME

This is a great piece 👏 pnas.org/doi/10.1073/pn…(20.4,19.1%25%20of%20long%20COVID%20patients

Look at this awesome visual. And look at the state of graded exercise 🤦‍♀️

BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…