Sylvia Penny (@pennysfromwales) 's Twitter Profile
Sylvia Penny

@pennysfromwales

Mother/carer, son autistic spectrum +++, daughter v severe ME. Keen to raise awareness of caring, autism, ME & dementia. All views my own.

ID: 47095215

calendar_today14-06-2009 13:56:24

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Dementia Who! (@dementiawho) 's Twitter Profile Photo

I lived what the AARP caregiving report 2025 describes the unpaid hours, the complex care, the burnout no one saw. 63 million of us are doing this work. Most without pay, training or rest. Here’s what the report got right from someone who’s been there.

Clh 🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@clhclhhiggsees) 's Twitter Profile Photo

Dementia Who! Spot on. We provided complex nursing care, medication and used equipment to support someone's daily needs. I never ever had training on any of the tasks I had to do , and in fact was refused the training or support. Thanks for sharing.

Older People’s Commissioner for Wales (@talkolderpeople) 's Twitter Profile Photo

Do you want to know more about social services in Wales? Our resource page ‘A Guide to Social Services in Wales’, outlines how to get the help you need from social services, and how to ensure that your voice is heard when your needs are assessed. olderpeople.wales/resource/socia…

Do you want to know more about social services in Wales?

Our resource page ‘A Guide to Social Services in Wales’, outlines how to get the help you need from social services, and how to ensure that your voice is heard when your needs are assessed.

olderpeople.wales/resource/socia…
Ediz (@ediz1975) 's Twitter Profile Photo

Please watch this 2 minute clip and tell me this is seriously ok .. The the cyclists hit a child, cyclists cycling agressivly into vulnerable people…. Let’s stop floating bus stops now….

Richard Burgon MP (@richardburgon) 's Twitter Profile Photo

Doctors play a vital role at key moments in our lives. They care for us. They cure us. They do not take the decision to strike lightly. They are striking for an extra £4 per hour for first year doctors with £100,000 student debt. The government needs to move on this. Solidarity

Disability News Service (@johnpringdns) 's Twitter Profile Photo

The government has quietly published 12 research reports, nearly all related to disability employment, disability poverty and the benefits system, all on the same day, just 8 days after MPs voted to impose £2 billion-a-year cuts to disability benefits. disabilitynewsservice.com/government-qui…

Autism-101 (@autism1o1) 's Twitter Profile Photo

Autistic people are often infantilized and treated like children. Autistic adults have a hard time accessing services, healthcare, and accommodations because much of society sees autism as a childhood disorder. image: Sensory Stories🌈

Autistic people are often infantilized and treated like children. Autistic adults have a hard time accessing services, healthcare, and accommodations because much of society sees autism as a childhood disorder.

image: <a href="/SensoryStories/">Sensory Stories🌈</a>
Adam (@abrokenbattery) 's Twitter Profile Photo

Clip from Shannonside Northern Sound, Joe Finnegan spoke with Shirley McCreery about her daughter Sarah’s struggle to get diagnosed. She was given a diagnosis of CFS and bad advice to do graded exercise. Only after seeing Dr Nigel Speight did they finally get proper help.

Sylvia Penny (@pennysfromwales) 's Twitter Profile Photo

I’ve thought long & hard about posting this photo. This is just a small part of what I am living with. I have a 2nd Third Nerve Palsy, meaning I have sight loss Been living with Sciatica since April & had 3 falls in past 5 wks due to weakness in legs. I care alone & unrecognised.

I’ve thought long &amp; hard about posting this photo. This is just a small part of what I am living with. I have a 2nd Third Nerve Palsy, meaning I have sight loss Been living with Sciatica since April &amp; had 3 falls in past 5 wks due to weakness in legs. I care alone &amp; unrecognised.
VOICES ADFOCAD (@voiceswales) 's Twitter Profile Photo

VOICES ADFOCAD is proud to announce that we will be hosting the 3rd annual Cardiff and Vale Carers Assembly at Sophia Gardens Cricket Ground, Cardiff on Friday October 10th (World Mental Health Day). Details of how to register and how to join the livestream if you cannot attend

Mike O'Brien🏴󠁧󠁢󠁷󠁬󠁳󠁿#UnpaidCarerAssembly (@mikeo56977865) 's Twitter Profile Photo

VOICES ADFOCAD is proud to announce that we will be hosting the 3rd annual Cardiff and Vale Carers Assembly at Sophia Gardens Cricket Ground, Cardiff on Friday October 10th (World Mental Health Day). Details of how to register and how to join the livestream if you cannot attend

Kerry Newnham (@squashedhedgi) 's Twitter Profile Photo

I think that the #me community needs a discussion about how we are still letting the term Chronic Fatigue syndrome anywhere Near this #mecfs.

Mike O'Brien🏴󠁧󠁢󠁷󠁬󠁳󠁿#UnpaidCarerAssembly (@mikeo56977865) 's Twitter Profile Photo

📢NOW OPEN📢 Registration for the 2025 Cardiff and Vale Carers Assembly is now open. Event Details: Friday October 10th, Sophia Gardens Cricket Ground, 10am to 4:30pm. Doors open at 9:30am for registration and refreshments. Sign up here: forms.cloud.microsoft/Pages/Response… Details of

📢NOW OPEN📢

Registration for the 2025 Cardiff and Vale Carers Assembly is now open.

Event Details: Friday October 10th, Sophia Gardens Cricket Ground, 10am to 4:30pm. Doors open at 9:30am for registration and refreshments.

Sign up here:

forms.cloud.microsoft/Pages/Response…

Details of
Ellis Palmer 📻 (@ellispalmer94) 's Twitter Profile Photo

Not going to lie, the trauma of this incident and the anxiety that I’m going to be left on the train without assistance once again hits me every time I go to Euston!

Older People’s Commissioner for Wales (@talkolderpeople) 's Twitter Profile Photo

Clh 🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁷󠁬󠁳󠁿 Dementia Hwb Swansea Hi, alongside the overall guide, there are factsheets that provide additional information. Factsheet 2 (Voice and Control) includes info on advocacy: olderpeople.wales/wp-content/upl… Factsheet 8 (What can you do if you don’t receive the help you need?) covers complaints:

Easy Read Wales (@easyreadwales) 's Twitter Profile Photo

Cardiff Council want to know what you think of their Neurodivergent Friendly Cardiff: 2025–2030 strategy ldw.org.uk/er-work/easy-r… Please send Cardiff Council your answers by 30 September 2025.