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Important update on #BringMillieHome We're still talking to Lucy and Abbie on a regular basis.

'[This is] a very good example of what medical professionals do. They've forced Carla into a position where she can no longer tolerate treatments, be it the feed, the IV drip, because of the fact they're doing it all incorrectly and have been doing it incorrectly from the start.'

It's been a busy week at the Collaboration. This video had already been recorded once, & then at 5:45pm on a Friday night things drastically change #SaveCarlasLife #BringMillieHome #ExposeMENow FYI we're NOT on purdah & nor are we too short staffed to function effectively 🙃

#SaveCarlasLife Don't. Look. Away. Carla's father Pierre recorded this video late on Friday 24 May for you all to hear. What has happened to them has happened to #BringMillieHome has happened to Karen Gordon. Except we are documenting it in real time #ExposeMENow Watch & share

We have an announcement. We're upset, sad, sorry, exhausted, and devastated. But there's nothing we can do. Please watch and feel free to comment #ChronicIllness #MEcfs #LongCovid

Just to make it very clear, as we said in our video on Monday, we are still supporting Carla and Millie as we have been - nothing has changed in that respect - and we'll still be providing updates as and when things happen.

BBC London News segment on Severe ME/CFS youtu.be/Os74emLs_4Q?si… via YouTube

Father of woman with ME/CFS scared she will "die in hospital" - BBC News bbc.co.uk/news/articles/…

#SaveCarlasLife After we had a meeting with Pierre, Caroline, & Dr Weir & sent repeated communications to West Middlesex hospital last week things have not improved. In fact they have gotten worse. The BBC story made no difference. Pierre would like to speak to you all #MEcfs

Karen Gordon is being held hostage at an NHS hospital with a now 24 hour ultimatum between 2 choices that will both kill her. ⬇️ Excerpts from my letter to her hospital below New post on my blog: whitneydafoe.com/mecfs/?post=de… NHS Michael Gordon #SaveKaren #NHSmurdersMEpatients

‼️Please help.‼️If you or anyone you know in the UK is able, please deliver my letter pleading to save Karen Gordon’s life to the Conquest Hospital Hastings.  It is URGENT as in TODAY. Her life is at stake. You can download my letter by clicking the link below to print out

We have an update on #SaveCarlasLife from Pierre, her father. Photos from the incident in question are in this thread. He is making a formal complaint to the hospital #MEcfs

Help Save Toffee’s Life gofund.me/ecc056bb

My daughter Isla suffered so much, ill with ME from age 6, told to push through the pain to get better, years of deterioration and disbelief. Involvement of Social Services because of concerns of Fabricated Illness and later her MCAS symptoms put down to anxiety. She died in May

I emailed Natasha Devon about Carla Naoum and Karen Gordon after her radio show. I received this reply. It sounds promising #SevereME #pwME #SaveCarlasLife Michael Gordon

URGENT #SaveCarlasLife: West Middlesex Hospital has now sectioned her under the Mental Health Act #MEcfs #ThereForME It is being challenged. Please read the below, watch the videos from Pierre in the article, and consider what I've said. Share widely: thecanary.co/long-read/2024…

To clarify for those who can't read the article: NICE guidelines on severe ME are not worth the paper they're written on. I say that from having first hand experience of both Carla & Millie's situations Please STOP thinking they're a silver bullet in this #MEcfs #SaveCarlasLife

What is the future of my life with ME/CFS? I can't live with this disease for another 5 years, I just can't. This disease is totally incompatible with life, it's just impossible. Most people are in control of their destiny, but for ME/CFS patients, we can't control anything.