Jura-Service-Tweet zu #Mockridge Vom sachlichen Schutzbereich von Art. 5 Abs. 1 GG (Meinungsfreiheit) sind (fast) alle Äußerungen, die ein wertendes Urteil ausdrücken, umfasst. Vom gesellschaftlich akzeptablen Äußerungen, können diese durchaus abweichen. Und das tun sie!

A German U clinic that proposes a psychosomatic pathomechanism for #MECFS blocks patients whose tweets align with international research, even if they have never tagged this clinic. It seems to be just another systematic repression of #pwME. We need good journalism!

I am often confronted with the hypothesis that mental illnesses favor #MECFS. As a lawyer, I don't get involved in scientific discussions. But what I am qualified to say: This must not have any influence on the patient's right to appropriate and curative research and care.

Today is that kind of a day… 1. Pacing with 2. Minimal activities; 3. Feeling intoxicated and 4. Flu-like symptoms. Despite some rumors, I am nowhere near being in remission. (sent from my iBed) #MECFS

Woke up in a crash. Felt terrible. Poisoned. Weak. Now with my medicine: #MECFS

Addressing some questions: 1. I don't recommend Pregabalin; first of all, because I'm not qualified to recommend any treatment for #MECFS, and second because there is no evidence (I only share my experiences); 2. I can't explain anything about it (visited the wrong faculty).

Just bought a house today! If you would’ve told me three years ago when I was still bedridden I would have told you that you are insane. Now it happened. You can predict the future and the journey with #MECFS

The suffering of #MECFS patients over the past decades could fill hell itself. And yet, we are still fighting for recognition and treatment. It’s incomprehensible and leaves me speechless every single day.

#MECFS is a monster.

Today is the day where #PTSD kicks in. Flashback of lying motionless in the dark. Every breath could have been my last. I’m in the dark. I can’t escape. I feel not seen. I will never be the same. ———— Sorry. Mirror into my soul. #MECFS will always be a part of me.

I hope there will be something in the next 5-10 years. Then I’m mid-40s. If I won't be able to take care of my garden with 50, I’m officially pi…ed! Fck #MECFS

We now have an Off-Label-Guideline for #LongCovid by the Bundesgesundheitsministerium. It recommends some drugs (we all already use) for certain symptoms (makes it easier to get it from docs and the insurance has to pay for it). This only for conditions with #PEM due to #Covid-19, because.

I continue to defy the crappy geopolitical situation: I just had a nice Zoom conversation with a #MECFS researcher from Stanford. I'm sitting in a village in GERMANY, she's sitting in her office in Stanford in the USA, she's from IRAN… We are all human!

The silver lining of studying ME/CFS is finding true friends and family through patient-centered research. By collaborating closely, we deepen our understanding and unite in compassion. Together, we make a difference. Martin #MECFS #Research #PatientCentered

#SevereME is a haunting. It is a horrifying presence that never leaves you, not at night or during the day. It torments you. Until many vanish. First, their personalities. Then, quite often - too often - their lives. #MECFS

Many asked me what I visualized when I was very severe. Now that this imagination has become a reality, I want to share with you what went on in my mind and what I can now realize with moderate #MECFS. (My film score is for our movie but I wanted to give a prieview).

As long as I have #PEM, it is not possible to become a fully-fledged member of this performance-driven society. #MECFS

I believe in the chance of a possibility. That’s all there is left for my life with #MECFS