Pathways Project (@pathways_pwcf) 's Twitter Profile
Pathways Project

@pathways_pwcf

Pathways is a HRCI/HRB funded research project aiming to support young people with Cystic Fibrosis. We invite young adults with #CF to join us as co-researchers

ID: 1715284354023182336

linkhttp://pathwaysresearchstudy.com/home calendar_today20-10-2023 08:30:40

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8 Followers

79 Following

CF Ireland (@cf_ireland) 's Twitter Profile Photo

“Pathways” is a research project that seeks to support adolescents with CF to successfully manage their health as they prepare for their transition to adult services. The team are currently inviting people with CF & their families to join the panel. Visit buff.ly/48Q4HUy.

“Pathways” is a research project that seeks to support adolescents with CF to successfully manage their health as they prepare for their transition to adult services. The team are currently inviting people with CF & their families to join the panel. Visit buff.ly/48Q4HUy.
Pathways Project (@pathways_pwcf) 's Twitter Profile Photo

We have started recruiting! Congratulations to the Pathways Team CHI at Crumlin @Galway_Psychol CF Ireland Dr. Caroline Heary We're delighted to already have young people & parents signing up to interview and share their experience #selfmanagement #transitionreadiness

We have started recruiting! Congratulations to the  Pathways Team <a href="/CHIatCrumlin/">CHI at Crumlin</a> @Galway_Psychol <a href="/cf_ireland/">CF Ireland</a> <a href="/caroline_heary/">Dr. Caroline Heary</a> We're delighted to already have young people &amp; parents signing up to interview and share their experience #selfmanagement #transitionreadiness
Angeline Traynor (@angelinetraynor) 's Twitter Profile Photo

Are you a person with CF, age 16-25? We need to hear from you. What are the most important issues to you? Join our Youth Advisory Panel and shape research aiming to improve quality of life for PWCF. @Galway_Psychol Dr. Caroline Heary CF Ireland Visit: psychologygalway.qualtrics.com/jfe/form/SV_eP…

Are you a person with CF, age 16-25? We need to hear from you. What are the most important issues to you? Join our Youth Advisory Panel and shape research aiming to improve quality of life for PWCF. @Galway_Psychol <a href="/caroline_heary/">Dr. Caroline Heary</a> <a href="/cf_ireland/">CF Ireland</a>  Visit: psychologygalway.qualtrics.com/jfe/form/SV_eP…
Angeline Traynor (@angelinetraynor) 's Twitter Profile Photo

Not long now! Join us CF Ireland Annual Conference 2024, to hear about our research: Pathways to Improving Transition to Adult Services & Enhancing Self-Management in Adolescents with Cystic Fibrosis: A New Era of Treatments Pathways Project @Galway_Psychol @CH Children's Health Ireland St Vincent's University Hospital (SVUH)

Not long now!  Join us <a href="/cf_ireland/">CF Ireland</a> Annual Conference 2024, to hear about our research: Pathways to Improving Transition to Adult Services &amp; Enhancing Self-Management in Adolescents with Cystic Fibrosis: A New Era of Treatments <a href="/PATHWAYS_PWCF/">Pathways Project</a> @Galway_Psychol @CH <a href="/CHI_Ireland/">Children's Health Ireland</a> <a href="/svuh/">St Vincent's University Hospital (SVUH)</a>
Pathways Project (@pathways_pwcf) 's Twitter Profile Photo

Interested in taking part in our survey on healthcare transition? Our survey is open to young people aged 18-25yrs living with cystic fibrosis. Pathways Project Scan the QR code or visit: pathwaysresearchstudy.com

Interested in taking part in our survey on healthcare transition? Our survey is open to young people aged 18-25yrs living with cystic fibrosis.
<a href="/PATHWAYS_PWCF/">Pathways Project</a>
Scan the QR code or visit: pathwaysresearchstudy.com
cf/Aware (@cfaware) 's Twitter Profile Photo

NICE approves three cystic fibrosis drugs for NHS use - The Pharmaceutical Journal pharmaceutical-journal.com/article/news/n…

CF Ireland (@cf_ireland) 's Twitter Profile Photo

The new Pathways Project survey is for young people living with cystic fibrosis aged 13-25 & explores the transition from paediatric healthcare to adult health care. To take part visit buff.ly/3Y4UUaA

The new <a href="/PATHWAYS_PWCF/">Pathways Project</a> survey is for  young people living with cystic fibrosis aged 13-25 &amp; explores the transition from paediatric healthcare to adult health care. To take part visit buff.ly/3Y4UUaA
CF Ireland (@cf_ireland) 's Twitter Profile Photo

If you are a parent of a child with CF who is about to start primary school, CFI and our parent facilitator will be on hand for guests to ask questions, share experiences and connect with others. Join us on 7th August at 7pm online - register here: buff.ly/3RAPLD0

CF Ireland (@cf_ireland) 's Twitter Profile Photo

“CFI hosts a superb, well-organized Head2Head Walk. Support from walkers, volunteers, and stewards from Howth to Bray was fantastic. The journey was filled with positivity and camaraderie!” - Gráinne Mulhern, Head2Head Walker 2023. Register NOW: buff.ly/4c7p5SH

“CFI hosts a superb, well-organized Head2Head Walk. Support from walkers, volunteers, and stewards from Howth to Bray was fantastic. The journey was filled with positivity and camaraderie!” - Gráinne Mulhern, Head2Head Walker 2023.
Register NOW: buff.ly/4c7p5SH
Angeline Traynor (@angelinetraynor) 's Twitter Profile Photo

Your opinion is needed. What do you think about transition from paediatric to adult services for PWCF? Our survey is open internationally to young people aged 13-25yrs living with CF. Scan the QR code or visit: pathwaysresearchstudy.com CF Ireland European Patients' Forum Cystic Fibrosis Trust

Your opinion is needed.  What do you think about transition from paediatric to adult services for PWCF?  Our survey is open internationally to young people aged 13-25yrs living with CF. Scan the QR code or visit: pathwaysresearchstudy.com <a href="/cf_ireland/">CF Ireland</a> <a href="/eupatientsforum/">European Patients' Forum</a> <a href="/cftrust/">Cystic Fibrosis Trust</a>