Sign up to our newsletter to get the latest research, blogs and other updates delivered straight to your inbox. Stay informed and connected with #osteosarcoma community! 💚 Subscribe for free today: lght.ly/gd4mfim

We are looking for people to share their experience as an osteosarcoma patient to help us raise awareness of this rare cancer. If you would like to share your story please email us at [email protected] to discuss further. Thank you!

This Rare Disease Day, Bionews is bringing together voices from across the rare disease community for a weeklong series of powerful conversations about living with a rare disease and how it affects our mental health with Dr. Al - bionews.com/keepin-it-rare/ Biotechnology Innovation Organization

NORD Rare Disease Center of Excellence at UNC North Carolina Children’s Hospital are hosting a hybrid symposium on 28 February titled "Beyond the Horizon: The Changing Landscape of Rare Disease Treatments." Register at lght.ly/gk9m2g3 Rare Disease Day National Organization for Rare Disorders (NORD)

Join National Organization for Rare Disorders (NORD) in celebrating the Faces of Rare. Their Faces of Rare wall features people who live with rare conditions. If you live with #osteosarcoma, you can also join the wall to share your story. Find out more 👇 lght.ly/llea6gk

For #RareDiseaseDay, Bionews is bringing together voices from across the rare disease community for a series of powerful conversations with Dr. Al Freedman, one of the world’s leading therapists specialising in rare diseases. Find out more here: lght.ly/mlk6gnj

📖 Did you know that you can share your story with the #RareDiseaseDay team? 💚 We encourage patients to share their story to help raise awareness of #osteosarcoma. View other peoples stories and share your own: lght.ly/dfla6e0

Happy #RareDiseaseDay! 💚 Today, we want to raise awareness around #osteosarcoma - a type of cancer that arises in the bone & affects 3.4 people per million every year worldwide! Please help us make noise today. Check out our toolkit & share it online: lght.ly/525879k

View the research grants we co-fund with the The Bardo Foundation to help better understand osteosarcoma and find a cure for this rare cancer- osteosarcomanow.org/osteosarcoma-r… Help us continue to fund vital research by donating at bit.ly/41dv7he #cancerresearchmatters #osteosarcoma

Today is International Women's Day. We want to recognise all of the women who have impacted those with rare diseases including patients, researchers, clinicians, and staff. Thank you for being outstanding in your field. It is an honour to be part of your journey #WomensDay

OsteoBites is a weekly webinar and podcast where Osteosarcoma Experts share their research, hope, and innovation. This is run by the amazing MIB Agents Osteosarcoma Alliance The sessions are led and paneled by OsteoWarriors. Find out more by visiting mibagents.org/education/oste… #osteosarcoma

No parent should ever have to explain a cancer diagnosis to their child. We are so proud to work with The Bardo Foundation to fund vital medical research for osteosarcoma. You can support us by making a donation at myrovlytistrust.org/donate-2/ Thank you.

📝 Sarcoma UK is running its National Sarcoma Survey to gather vital insights from those affected by #sarcoma. Your experiences can help shape support services, research and policy change. Survey closes on 31 March. Share your voice today: lght.ly/8feh6ki

Treatment for progressing bone sarcomas can be challenging. A recent trial looked at combining two treatments. These were an immunotherapy treatment and a TKI Inhibitor treatment, called nivolumab and sunitinib. We discuss the trial in our new blog: lght.ly/ji8olnm

Sarcoma UK is launching a new research call for projects dedicated to improving outcomes for adolescents and young adults (AYA) with sarcoma (15-39 years old), with grants of £100,000 and £200,000 available. More info can be found at bit.ly/3QSvzM6 #osteosarcoma

Sending best wishes for a Happy Easter from all at the Myrovlytis Trust. Our offices will be closed on Friday 18 and Monday 21 April 2025. You can find out more about Osteosarcoma Now by visiting our website lght.ly/530fbd8

It is with great sadness that we announce the passing of our founder, Dimitris. This is a major loss to the communities we support as we request voluntary liquidation. Find out more about Dimitris and our future by visiting lght.ly/d5nak9m The Bardo Foundation

We are looking forward to joining the The Osteosarcoma Institute and the FDA Oncology at the Advancing Osteosarcoma Drug Development workshop on 10 October 2025. Visit bit.ly/4kLiRLw to book your space for this hybrid event #osteosarcoma #CancerTreatment #research

Big changes are coming to Osteosarcoma Now❤️ ONTEX will be back online and updated this week. We are sorry for any inconvenience caused. Feel free to drop us a message with any questions. We love hearing from you 🤗⭐️😀

The Osteosarcoma Now Clinical Trial Explorer (ONTEX) summarises each clinical trial to give a clear picture of its aims and what it involves. To find out more and search for the latest clinical trials visit osteosarcomanow.org/clinical-trial… #ClinicalTrials #osteosarcoma #childhoodcancer