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A link to our survey - designed for patient groups to tell us about their experience of accessing #orphandrugs in the UK!

Really interesting talk by Jin Ding on ‘Patient access to orphan drugs in the UK - from patients’ perspectives’ - focusing on orphan drug access

DrugOrphanisation iHuman

Great to see our own Dr. Jin Ding presenting the Research England participatory research project (associated with the wider DrugOrphanisation project) at the @PRNTUOS launch ent today #RareDisease

Some of our team having g a look around the brand new Social Sciences | The University of Sheffield building.

Some great discussions today at the Social Pharmaceutical Innovation Conference We've covered RWE and pricing, also the use of patient-reported outcomes, and what frameworks are needed #RareDisease

On our way to attend the RE(ACT) Community Congress / IRDiRC Conference in #Berlin react-congress.org/about/ - Very excited and keen to network - expect updates! SocStudiesShef iHuman Wellcome #orphandrugs #RareDiseaseDay #socialscience

Looking forward to day 1 of the RE(ACT) Community and IRDiRC - Martina Cornel opening

Fantastic talk by Tim Buckinx (Epihunter) at the IRDiRC Conference today. Sony's PS6 and next-gen wearables will have EEG sensors to grant emotion data. Great for real-world data for absent seizures RE(ACT) Community #rwd #RareDisease

Lovely to see Dan O'connor from MHRA discuss the need for regulators to adapt, and for the importance of patient voice #reactcongress #irdirc

Great opening plenary at #EPAconf

Getting ready for our own Prof. Paul Martin to present the project to VIVEviden - 'Are we seeing fundamental changes in the development, government. And use of medicine? The University of Sheffield SocStudiesShef iHuman

Last call! If you are a #qualitative researcher (academic or industry) with concerns about how the move to #openaccess / #openscience fits with interpretivist modes of inquiry, then please do take part! Survey: docs.google.com/forms/d/e/1FAI… Project details: sheffield.ac.uk/ihuman/our-wor…

6th Nordic STS Conference 2023 sv.uio.no/tik/english/re…

Lovely to be at the #Nordicsts2023 plenary

Our Paul Martin presenting the project work (mostly from Jin's work package) on the changing ophan drug market #nordicsts2023 #sts #medicalsociology The University of Sheffield SocStudiesShef iHuman

I can't because it's not true - certainly not universally. For many Uni is the best option, and will both boost their earning power, and give unique exposures to outlooks & opportunities. What I have written though, many times, is with the increased payback, it is more