Exciting update: The FON Registry now has 1,000 patients enrolled! 🥳 This is an encouraging achievement as we continue to accelerate learning and improve outcomes for all individuals with single ventricle heart disease & #Fontan circulation. Your support is invaluable! 💛

Happy Monday! Have a wonderful week! 🌊 #MotivationMonday

Happy Monday! Do you lead with compassion? 💗 #MotivationMonday

Happy Monday! Even a small step is still step! Have a great week! #MotivationMonday

You have mail! 📧 Check your inbox for the NPC-QIC Quality Times July Newsletter!

Have you seen our Research Explained page? The Research & Publications Committee select manuscripts that are relevant to families and create a “Research Explained” summary to make the findings easy to understand. Visit buff.ly/49KU2Kp to learn more! #WeShareWednesday

FON is now accepting Research Proposals! We invite researchers from all backgrounds to submit their proposals and help improve outcomes and quality of life for all individuals with single ventricle heart disease and Fontan circulation! Visit buff.ly/3Lg1iE6 to learn more!

#SVHeartFacts CHDs including hypoplastic left heart syndrome can often be detected during pregnancy. #HLHSAwareness #CHDAwareness

Happy Monday! We hope your creativity flows easily this week! 🧡 #MotivationMonday

#SVHeartFacts Did you know the occurrence rate of single ventricle heart defects and hypoplastic left heart syndrome? #HLHSAwareness #CHDAwareness

A new NPC-QIC Research Explained article is now available! Research Explained breaks down the key findings and importance of publications relevant to SVCHDs and HLHS, making them easier to understand for patients and families. Visit buff.ly/49KU2Kp to learn more.

Did you know that surgical procedures for HLHS are conducted in three stages? Learn more about the surgical procedures in the NPC-QIC Single Ventricle Journey: A Guide for Parents & Families on our website: buff.ly/3Ugudxx #SVHeartFacts #HLHSAwareness

Did you know that all 50 states have newborn screening programs to identify congenital heart defects? Early screening and detection allows for prompt care and treatment! #SVHeartFacts #CHDAwareness #HLHSAwareness

Registration is now open for our Fall 2024 Learning Session! All network members including patients, families, and care center teams are invited to attend. There is no registration fee for patients and families. Visit buff.ly/4ckX9K5 for details and to register!

Registration is open for the Fall 2024 Learning Session in St. Louis, Missouri from October 25-26! Visit buff.ly/3SVI3UE for the latest Learning Session details and to register!

Have you registered for the FON & NPC-QIC Fall 2024 Learning Session? Join us on October 25-26 in St. Louis, Missouri! Visit buff.ly/3SVI3UE for the latest Learning Session details and to register!

Are you attending our Fall 2024 Learning Session next month? Repost or download and share this graphic to let your community know you'll be in attendance! Be sure to tag NPCQIC and FON! Still need to register? Visit buff.ly/3SVI3UE for registration details.

Are you presenting at our Fall 2024 Learning Session next month? Repost or download and share this graphic to let your community know! Be sure to tag NPCQIC and FON! Want to attend and still need to register? Visit buff.ly/3SVI3UE for registration details.

Earlier this year, NPC-QIC published a new manuscript- Structured Tube Weaning Using the Hunger Provocation Method in Infants with Single Ventricle Heart Defects: A Multicenter Study. Visit buff.ly/4enoT22 to learn more. More NPC-QIC publications: buff.ly/4gA7h5g

Our Fall 2024 Learning Session is next month Can't join us in person this year? Register for our virtual attendee option! Virtual attendees will have access to live stream plenary sessions and our Single Ventricle Patient Day breakouts. Details: buff.ly/3SVI3UE