NNPDF (@nnpdf) 's Twitter Profile
NNPDF

@nnpdf

National Niemann-Pick Disease Foundation

ID: 20239272

linkhttp://www.nnpdf.org calendar_today06-02-2009 14:15:48

1,1K Tweet

479 Followers

97 Following

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With your support, more families in our community will gain access to programs and resources that offer the support they need following a diagnosis of Niemann-Pick. Make a gift today at t.ly/NNPDFdonate #NiemannPickAwareness #ASMD #NPC

With your support, more families in our community will gain access to programs and resources that offer the support they need following a diagnosis of Niemann-Pick. Make a gift today at t.ly/NNPDFdonate  

#NiemannPickAwareness #ASMD #NPC
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Dan and Dee Reynolds shared their powerful family journey with Niemann-Pick at our recent family conference. Their story highlights the importance of connecting through shared experiences and supporting one another. Watch at t.ly/l4w5C #NiemannPickAwareness

Dan and Dee Reynolds shared their powerful family journey with Niemann-Pick at our recent family conference. Their story highlights the importance of connecting through shared experiences and supporting one another. Watch at t.ly/l4w5C  
#NiemannPickAwareness
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By supporting NNPDF during Niemann-Pick Awareness Month, you will bring more patients and families access to Family Service Programs that can ease the burden of Niemann-Pick disease. Make a gift today at t.ly/NNPDFdonate

By supporting NNPDF during Niemann-Pick Awareness Month, you will bring more patients and families access to Family Service Programs that can ease the burden of Niemann-Pick disease. Make a gift today at t.ly/NNPDFdonate
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Your support helps NNPDF create new programs and explore opportunities to better serve this resilient community. Please consider making a gift to help us continue this important work in the year ahead at t.ly/NNPDFdonate #NiemannPickAwareness

Your support helps NNPDF create new programs and explore opportunities to better serve this resilient community. Please consider making a gift to help us continue this important work in the year ahead at t.ly/NNPDFdonate 
#NiemannPickAwareness
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For over 30 years, NNPDF has advocated for the Niemann-Pick disease community. Raising awareness of this rare disease helps us reach more families, offer vital support, and drive progress. Support our mission with a gift at t.ly/NNPDFdonate

For over 30 years, NNPDF has advocated for the Niemann-Pick disease community. Raising awareness of this rare disease helps us reach more families, offer vital support, and drive progress. Support our mission with a gift at t.ly/NNPDFdonate
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Global Wave of Light 10/15/2025 – 7PM (your local time) Join families and advocates worldwide to honor those affected by Niemann-Pick. Light a candle to remember, raise awareness, and shine hope. Learn more at t.ly/XosFT #WaveOfLight #NiemannPick

Global Wave of Light   10/15/2025 – 7PM (your local time)
Join families and advocates worldwide to honor those affected by Niemann-Pick. Light a candle to remember, raise awareness, and shine hope. Learn more at t.ly/XosFT

#WaveOfLight #NiemannPick
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IntraBio is hosting an NPC Patient & Caregiver Advisory Board in Denver on November 21–22, 2025. Share your experience to help shape future support. Learn more at t.ly/ptgVI

IntraBio is hosting an NPC Patient & Caregiver Advisory Board in Denver on November 21–22, 2025. Share your experience to help shape future support. Learn more at t.ly/ptgVI
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Join our Community Connections Chat on October 20 at 6:00pm ET with Justin Hopkin and Josh Baker. Take a break, join the conversation, and connect with others in your Niemann-Pick community to chat and simply be together. Register at t.ly/x9I47

Join our Community Connections Chat on October 20 at 6:00pm ET with Justin Hopkin and Josh Baker. Take a break, join the conversation, and connect with others in your Niemann-Pick community to chat and simply be together. Register at t.ly/x9I47
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Mandos Health is pleased to share the following October 2025 Community Update with the NNPDF. Read the update at t.ly/xr0VE

Mandos Health is pleased to share the following October 2025 Community Update with the NNPDF. Read the update at t.ly/xr0VE
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We’re deeply grateful for our NNPDF Board of Directors. Your dedication brings strength and hope to Niemann-Pick families. Learn more and support our mission during Niemann-Pick Awareness Month at [email protected]

We’re deeply grateful for our NNPDF Board of Directors. Your dedication brings strength and hope to Niemann-Pick families. Learn more and support our mission during Niemann-Pick Awareness Month at nnpdf@nnpdf.org
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Join our Community Connections Chat on 10/22/2025 at 5:00pm ET with Dawn Stites and Taylor Sabky, NNPDF Board Members. Take a break and connect with others in your community to chat, share, and just be together. IEP questions welcome!! REGISTER HERE: t.ly/WTcmY

Join our Community Connections Chat on 10/22/2025 at 5:00pm ET with Dawn Stites and Taylor Sabky, NNPDF Board Members. Take a break and connect with others in your community to chat, share, and just be together. IEP questions welcome!! REGISTER HERE: t.ly/WTcmY
NNPDF (@nnpdf) 's Twitter Profile Photo

Is someone you love living with the effects of Niemann-Pick disease? NNPDF is dedicated to supporting families every step of the way with programs, resources, and advocacy. Learn more about our work or make a donation at nnpdf.org

Is someone you love living with the effects of Niemann-Pick disease? NNPDF is dedicated to supporting families every step of the way with programs, resources, and advocacy. Learn more about our work or make a donation at nnpdf.org
NNPDF (@nnpdf) 's Twitter Profile Photo

We’re deeply grateful for our NNPDF Board of Directors. Your dedication brings strength and hope to Niemann-Pick families. Learn more and support our mission during Niemann-Pick Awareness Month at nnpdf.org

We’re deeply grateful for our NNPDF Board of Directors. Your dedication brings strength and hope to Niemann-Pick families. Learn more and support our mission during Niemann-Pick Awareness Month at nnpdf.org
NNPDF (@nnpdf) 's Twitter Profile Photo

We’re honored to share Jillian Arnold’s journey with Roman and Stella’s ASMD diagnosis. Featured at our recent family conference, their story reminds us of the strength that comes from community in facing rare disease. Watch at t.ly/3PVx0

We’re honored to share Jillian Arnold’s journey with Roman and Stella’s ASMD diagnosis. Featured at our recent family conference, their story reminds us of the strength that comes from community in facing rare disease. Watch at t.ly/3PVx0
NNPDF (@nnpdf) 's Twitter Profile Photo

For over 30 years, families have come together to learn, connect, and share hope at our Family Support & Medical Conference. The courage of families facing Niemann-Pick inspires us to keep building a community of care and support. Join us our mission at t.ly/NNPDFdonate

For over 30 years, families have come together to learn, connect, and share hope at our Family Support & Medical Conference. The courage of families facing Niemann-Pick inspires us to keep building a community of care and support. Join us our mission at t.ly/NNPDFdonate
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Over 30 years ago, families united in hope to fight Niemann-Pick disease. Their advocacy, strength, and dedication laid the foundation of our organization and advanced research, leaving a lasting legacy that continues to inspire and shape the community we have today. 💙

Over 30 years ago, families united in hope to fight Niemann-Pick disease. Their advocacy, strength, and dedication laid the foundation of our organization and advanced research, leaving a lasting legacy that continues to inspire and shape the community we have today. 💙
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The October 2025 newsletter is here! Discover details about the upcoming Family Event (register by October 30), a message from the Board Chair, and how to apply for our Bringing Holiday Cheer program. Read more at nnpdf.org/october-2025-n….

The October 2025 newsletter is here! Discover details about the upcoming Family Event (register by October 30), a message from the Board Chair, and how to apply for our Bringing Holiday Cheer program. Read more at nnpdf.org/october-2025-n….
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Your support means no family faces Niemann-Pick alone. Please consider making a gift to help us continue to create new programs and explore opportunities to better serve our community. Give at t.ly/NNPDFdonate

Your support means no family faces Niemann-Pick alone. Please consider making a gift to help us continue to create new programs and explore opportunities to better serve our community. Give at t.ly/NNPDFdonate
NNPDF (@nnpdf) 's Twitter Profile Photo

Families impacted by Niemann-Pick don’t have to face it alone. NNPDF provides programs, resources, and a caring network to help every step of the way. Learn more at nnpdf.org. Supporting One Another. Supporting Our Community. #NiemannPickAwareness

Families impacted by Niemann-Pick don’t have to face it alone. NNPDF provides programs, resources, and a caring network to help every step of the way. Learn more at nnpdf.org.
Supporting One Another. Supporting Our Community.
#NiemannPickAwareness
NNPDF (@nnpdf) 's Twitter Profile Photo

When you give, you’re helping build a stronger, more supportive community for families facing Niemann-Pick. Learn more and join us in making a difference at nnpdf.org. Supporting One Another. Supporting Our Community. #NiemannPickAwareness #AMSD #NPC

When you give, you’re helping build a stronger, more supportive community for families facing Niemann-Pick. Learn more and join us in making a difference at nnpdf.org.
Supporting One Another. Supporting Our Community.
#NiemannPickAwareness #AMSD #NPC