Nicole Cimbura(@nicolecimbura) 's Twitter Profileg
Nicole Cimbura

@nicolecimbura

ID:778300823495249921

calendar_today20-09-2016 18:32:31

2,7K Tweets

1,3K Followers

1,8K Following

Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

life as a Type 1 diabetic is hard, trying to keep that A1C in a “normal” range. It’s like managing a 2nd job. This awesome kid of mine has been managing this since she was 8. Learn more 👇 instagram.com/reel/CzI5pX2IZ…

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Would you like to participate in an ALS clinical trial & have been turned away? Are you interested in changing the trajectory of ALS? If so you may qualify for Prilenia Pridopidine expanded access program brought to you by . Check this out 👇! Glen Rouse Garrett May

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Here is another EAP brought to you by . Thank you to the many ALS community members who fought diligently to pass this in Congress in 2021. If you don't qualify for an ALS trial you might be fortunate enough to get into this EAP. Learn more here.

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

is having a real impact on the ALS community getting drugs into bodies for those PLWALS who don't qualify for a trial. Here is 1/3 trials funded by the law that was announced at the NEALS conference today. Take a look!

reporter.nih.gov/project-detail…

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Cathy why don't you lean in and help BrainStorm figure out this path if you think it would work?Remember they are a small bio-pharma country from Israel who I'm sure would appreciate assistance.I’ve worked on RTT & EAP & the FDA never mentioned this.Who has succeeded w/ it?

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

I am with you, Sandra, Brian & the rest of the community who would like to have the opportunity to try @BrainStorm’s .We need approval for a phase 4 trial.

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Cost recovery doesn't work for cell therapy, where you must scale up. If BrainStorm’s is not approved & if the $ is found to do another trial w/out approval by the time that trial is complete, everyone living today & the next 2 generations will be DEAD!

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Sandra, I 100% agree with you! Mike died waiting. Mike’s Mayo neurologist spoke at the ad com discussing its unprecedented benefits and yet it was voted down. ALS Advocacy please stop hurting the communities chances for .

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

I 100% stand with this statement! The PIs who have first-hand experience with patients receiving the treatment should carry more weight than the “experts” looking at numbers on a computer.

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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Thank you for sharing Kade's response to what he felt while receiving the therapy in the ad comm. You stated,'He felt good but needed to adjust to his new-found strength on his left side.'That is a good problem to have & not one a 'typical' ALS patient has. Works

Thank you for sharing Kade's response to what he felt while receiving the therapy in the #NurOwn ad comm. You stated,'He felt good but needed to adjust to his new-found strength on his left side.'That is a good problem to have & not one a 'typical' ALS patient has. #NurOwnWorks
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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Thank you, axeALSFoundation, for speaking out today regarding Eric's experience with stating that 'Without NurOwn, he has declined' and 'NurOwn enhances his quality of life.'

Thank you, @stevens_nation, for speaking out today regarding Eric's experience with #NurOwn stating that 'Without NurOwn, he has declined' and 'NurOwn enhances his quality of life.'
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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

Thank you, Ajay Sampat, MD, for speaking at today's ad comm, and I believe the entire community will stand with your statement that 'Any preservation of function is clinically meaningful.' Works

Thank you, @Sampat_md, for speaking at today's #NurOwn ad comm, and I believe the entire community will stand with your statement that 'Any preservation of function is clinically meaningful.' #EveryPointMatters #NurOwnWorks
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Nicole Cimbura(@nicolecimbura) 's Twitter Profile Photo

'We must work quickly to save the next ALS vintage & possibly some of us from this one. Please hurry! The waiting is deadly.' Sandy Morris Thank you, Joe, for your testimony for today's # NurOwn's ad comm; it was so powerful. 🌻🌻🌻

'We must work quickly to save the next ALS vintage & possibly some of us from this one. Please hurry! The waiting is deadly.' @sandymorris333 Thank you, Joe, for your testimony for today's # NurOwn's ad comm; it was so powerful. 🌻🌻🌻 #NurOwnWorks #EveryPointMatters
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