End the Carers Allowance cliff-edge! Many reporting the scandal that those caring 35+hrs/wk oft for vulnerable loved ones must repay £1,000s just for slipping a quid or two over the max earnings threshold (currently £151/wk). Ending that clawback's important. Yet the cliff-edge

For neurologists wishing to develop EEG / epilepsy surgery / ICU cEEG skills. The post is ABN approved, the candidate will achieve competences to be an epileptologist. Based on the current post holder Rachel Todd the programme produces world class epileptologists!

We’re so excited to announce that the wonderful R.W. Alley has once again agreed to hold a virtual masterclass, where he will teach you how to draw your very own #Paddington Bear! 🐻 Tickets available now for just £5 🎟️: store.epilepsy.org.uk/products/paddi…

Our helpline will be closed today due to the bank holiday. Visit our website to find places that are available where you can talk to someone or seek medical advice during this time. Our helpline service will resume on Tuesday 27 August at 8:30am. epilepsy.org.uk/support-for-yo…

Our hearts go out to the family of Alaina Dildine who died in a tragic, but preventable drowning. #EpilepsyAwareness "Forcing a student with a known seizure disorder into a swimming pool with no lifeguard and no written safety rules, policies or procedures, and then failing to

Our online talk and support groups can help you connect with others affected by epilepsy. With group themes ranging from employment to those new to epilepsy, it's a great way to find advice and support for your epilepsy situation. Book your place today! epilepsy.org.uk/support-for-yo…

Day 23 of weight loss for #epilepsysurgery Steps today: 9690 (will be 10,000 cause it’s an annoying number otherwise!) Weight loss to date: 1kg Diet: struggling to restart after the cruise with another birthday this weekend. But… I WILL get back on track

Please can we talk about guilt? Who else feels guilty for the emotions, tiredness and worry that comes with having #epilepsy and how do you manage to not feel guilty when you have no choice but to rest? #EpilepsyAwareness

So true… ‘just breath’, ‘just relax’, ‘drink some water’ I’ve had them all when coming round from a seizure. People need to understand we have NO control over what is happening and drinking water isn’t safe until we are fully recovered.

Day 25 Weight loss for #epilepsysurgery Did 12,500 steps yesterday visiting Bangor Uni with daughter, then this morning we dug up side of garden. Unfortunately, my brains decided Ive done too much and been getting brief focal seizures. My fault. Need to rest. #epilepsyawareness

One of the shocking things about being diagnosed as #Autistic in the #NHS is that you get told, given a website to read and left to get on with it! I’m still reeling from the news that I spent nearly 50years not knowing why I struggle so badly with social and sensory issues.

Excellent articles in the Autumn edition of Epilepsy Action members magazine. Always look forward to reading this and learning new things about #epilepsy and the #epilepsycommunity. Felt a buzz of pride to see my name in it as a new Trustee too. Thank you to all who voted 💜

#epilepsyjourney #epilepsia #neurologicaldisease #neurologicaldisorder #epilepsyawareness #epilepsy #epilepsystrong #epileptic #seizures #seizuressuck #epilepsyadvocate #epilepsymatters #epilepsywarrior #livingwellwithepilepsy #seizureawareness #seizure #epilepsynodrama #illness

Week 4(?) Weight loss for #EpilepsySurgery Think I’ve earned my afternoon nap 😴 20 mins weights session, 3.5mile walk and an hour of gardening. Feel like I’ve got superpowers today 😂. Let’s just hope I’ve not done too much and the #seizures stay away Diet back on track too

Week 4 ongoing: weight loss for #EpilepsySurgery Focal seizures overnight and feeling very tired this am😴 Do people ignore their #seizures and carry on with workouts? I think I’m going to have to have a rest day today 😢 to try to avoid more. Diet: going well 💯

Researchers at Kings College are investigating the link between epilepsy and autism. If you have both conditions and would like to help, contact [email protected] King's College London

Darn it - as lovely as it was having a ‘normal day’ it’s resulted in focal seizure clusters so now having to take day off and use clonazepan to try and reset

In our webinar on 20 September, #epilepsy experts will address several topics on "ADHD in Children with Epilepsy," from prevalence & presentation to pharmacological & psychological-based treatment methods. Free registration: ilae.org/webinar-20sept… Stéphane Auvin Kette Valente

Mat sadly lost his life to epilepsy five years ago. Having been a keen runner, Mat completed the #GreatNorthRun seven times. This year, his family and friends have come together to run the famous course in his memory. Read about their story here: epilepsy-institute.org.uk/eri/about-epil…

Horrible night and day of #focal seizures. Hopefully, clonazepam will stop them over next couple of days. Can’t recall details of the #seizures, just know they were very unpleasant. Think I had a bit of twitching in right hand at end of one, but ringing in left ear too at times