🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We’ve raised $63,000 to fund Dr. Zhou’s cutting-edge antibody therapy at Yale—but we’re not done yet! Donate today: Using Facebook: buff.ly/hHykMNh Using our webpage: buff.ly/hHqZRrq Using PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9

The most amazing day at the Oxford NF2 Patients day on Saturday 10th May We were even more delighted to receive this feedback These are special connections within our NF2 community that emerge through our shared lived experiences. We are now actively looking at replicating this

And there is still MUCH more to come from NF2 awareness month starting with this! We are really excited to let you know about an upcoming feature in the UK wide published chat magazine We have more fundraising stories to share with you too and loads of pics #endNF2 #NF2awareness

New auditory brainstem implant shows promise for patients with Neurofibromatosis type 2 news-medical.net/news/20250516/…

The amazing team at Oxford hoisting an NF2 patient day. Thankyou for this and for raising awareness of NF2

Saturday on the blog in NF2 Awareness month and today we are reliving that fabulous Brain Health Day grab a cuppa and have a read here: nf2biosolutions.org/2025/05/01/bra… #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Sunday on the blog and we have a double helping for you today because we have so much fun stuff for you to read and to shout about from our wonderful team! So first up is the Oxford clinic patients Day! Read all about it here: nf2biosolutions.org/2025/05/19/oxf… #endNF2 #schwannomatosis #NF2

Your second sunday blog - what a treat to read about the RETREAT trial? Our team member Kim took part in this clinical trial in February 2025, they are still recruiting for participants so please do consider of you are eligible. Have a read here: nf2biosolutions.org/2025/05/19/ret…

still time to register if you want to attend. link in post

Effect of bevacizumab on non-target intracranial meningiomas and non-vestibular schwannomas in NF2-related schwannomatosis: NF104 pubmed.ncbi.nlm.nih.gov/40434540/

We would like to invite you to a virtual coffee morning to "Meet the Researchers" They want to hear YOUR story. Interested? Please sign up here: forms.gle/3pxcdmMfLoRZ2y… This will be via google meets, which has accessible live captions if you need them. See you there! #endNF2 #NF2

Celebrating #VolunteersWeek, we are a patient led charity and made up ENTIRELY of volunteers, noone gets paid so every penny of your hard earnt fundraising and donations goes to our NF2 research. So we would like to thank each and everyone of you #endNF2 #NF2 #schwannomatosis

🎥 Missed the live webinar? The recording is now available! Learn about a groundbreaking AAV9-based gene therapy approach to treat NF2, presented by leading researchers in the field. ▶️ Watch the full recording now: 🔗 buff.ly/RqYqfJc

We would like to say a MASSIVE Thankyou to EVERYONE who contributed to our birthday celebrations - YOU ALL SERIOUSLY ROCK We cannot do anything without you! THANKYOU FROM THE BOTTOM OF OUR HEARTS Please send a great big thanks to anyone who donated to YOUR fundraiser or ours #NF2

If you are out & about today passing a newsagent then pick up a copy of the CHAT Magazine as my article is in it about NF2!! Please let me know if you see it! Page 19 #NF2 #NF2FAMILY #NF2WARRIOR

We are delighted to let you know that our very own COO Jo Ward has been selected to be a member of the LifeArc Lived Experience Advisory panel (LEAP) LifeArc are committed to accelerating the development of therapies for rare diseases. rarediseasetrials.org.uk/research-area #endNF2 #NF2

June is Pride Month and we are proud supporters #Pride2025 #pride📷 #PrideMonth2025 #endNF2 #StrongerTogetherAgainstNF2 #nf2charity #nf2gene #nf2research #nf2cure

Science, medicine, friendship and legacy at Dafydd Gareth Evans Festschrift today! Honouring his incredible achievements: true global impact spanning discovery of new diseases and their genetic foundations, to defining diagnostic criteria, to changing clinical practice. 🧬🧫🔬