📅This week is #DementiaActionWeek .

🩺Here James Rupert Fletcher outlines the systematic weaknesses and the bureaucracy inherent to current dementia research legislation and makes policy recommendations.

🔗Read more here: blog.policy.manchester.ac.uk/posts/2023/09/…

This is brilliant from James Rupert Fletcher - negotiating ethical issues in dementia research. Time for co-production of ethics with people with dementia? I’d favour an ethical panel you turn to to negotiate ethics throughout the research rather than the current yes/no at the start.

#MentalHealthAwarenessWeek Mental health is crucial but often invisible. Each person may face unseen battles, so it's essential to be kind and empathetic. Simple acts of kindness can greatly comfort those struggling silently, helps build a compassionate and supportive community♥️

Excellent resource from the impressive ⁦British Geriatrics Society⁩ A must resource for all in rehab services to use Reablement, Rehabilitation, Recovery: Everyone’s business | British Geriatrics Society bgs.org.uk/Rehab

Politics is so often presented as Westminster drama but this is what it’s really about. People are dying of treatable illnesses because the Tories decided to shred the NHS. Human beings - mums, sons, sisters - will literally die because the Tories are in power. It’s horrific.

Adelina ComasHerrera Alzheimer's Society A bit rich coming from an organisation which made that horrid advertisement..instilling fear and stigma and setting back positive progress back a decade.
NO-ONE WILL BE RUSHING TO GET AN EARLY DIAGNOSIS after that 'you die and die and die' ad.

Adelina ComasHerrera Alzheimer's Society But who, after hearing Alzheimer's Society recent 'die again and again and again' messaging, would seek a #dementia diagnosis now? It makes me so sad that that so many years of work have been undone.

Adelina ComasHerrera Innovations in Dementia Alzheimer's Society People are reportedly now afraid of getting an early diagnosis for Dementia according to recent Research that has been published!

Can you blame them after the Alzheimer’s Society Advertising Campaign ‘THE LONG GOODBYE’, where ‘we die again and again and again and again’! A

The Alzheimer's Society own survey of experiences of dementia show high rates of fear about getting a diagnosis, fear of disclosure and experiences of stigma
Improving diagnostic rates may also require some careful work on comms how to avoid contributing to stigma and fear #ASAC24

Last night Professor Pip Logan, Uni of Nottingham #WeAreUoN lead for the NRC, shared the importance of rehab research and innovation in driving clinical excellence Pint of Science UK in #Nottingham .

Find out more about the event: pintofscience.co.uk/event/rethinki…

chiller ★ Prof Katherine Sleeman Neil Chadborn The 'incurable' part can't be defined by the person involved. It's too often defined by their income level, insurance coverage or government policy though, and rarely by the actual medical condition or treatment options and disability supports.

We too welcome this strong commitment from Andrew Gwynne MP.

However, we calling for it to go one step further: a better quality of diagnosis.

Not all dementias look or are treated the same.

Half of people with Lewy body dementia are told they have - and are treated for - something

It's a pleasure to celebrate the achievements of the Ethnicity and Health Unit and our Director Mala Rao on her CBE.
🇺🇦 Ganesh Sathyamoorthy 💙 opening the evening after a lovely network and mingle with budding people passionate about Ethnicity and Health.

💜 A free Dementia and Carers Marketplace is taking place tomorrow (May 16) from 10am to 2pm at #Rushcliffe Arena in West Bridgford, offering a range of support for people living with dementia, their families, and for all carers.

➡️ shorturl.at/djkvU

#Rushcliffe #Carers

Thanks for your efforts Gwynneth and Jill. It was a great event at Rushcliffe Borough Council Arena as part of #DementiaAwarenessWeek Great opportunity to chat to people interested in getting involved in #DementiaResearch

My guest blog on behalf of MeriYaadainCiC , for University of York’s ‘Good Life with Dementia course. A fantastic piece of work and learning.

york.ac.uk/business-socie…

How do you robustly define terminal illness? How do you robustly define incurable suffering? Genuine question.

OECD country spend on state pension and pensioner benefits.

UK - 5.7% of GDP
Italy, 16%
France 13.9%
Austria 13.7%
Finland 13.5%
Spain 11.9%
Belgium 11.8%
Poland 11%
Germany 10.4%
Denmark 10.1%
OECD Average 8.2%

Pensioner poverty is a political choice
leftfootforward.org/2024/05/pensio…

Great to see this - end of life research in #dementia is massivley under researched.

New research call- coming soon!

We’re partnering with our friends Marie Curie EOLC to fund £1 million of research to improve the end of life experience for people living with dementia.

Register for our webinar on 11th June to find out more- events.teams.microsoft.com/event/fe1cc879…