CRF is the largest fund provider of cystinosis research grants in the world! CRF Researcher Dr. Gasnier’s new study aims to unveil novel biological roles of cystinosin. This knowledge should suggest novel hypotheses about disease mechanisms. Read more: cystinosisresearch.org/research-progr…

THANK YOU to everyone who has volunteered for clinical studies over the years. Our community enthusiastically volunteers for every study CRF funds, leading to the discovery of slow-release cysteamine, the stem cell trial & more. You all are the reason we have hope for a cure!

Happy #Halloween to our CRF community! Wishing everyone more treats than tricks this holiday 🍭 Be sure to post pictures in your costumes and tag CRF! . . . . . #HappyHalloween #research #cystinosis #raredisease #hope #cure #boo #spooky

Time to mark your calendars for Day of Hope 2023! From 3/30 to 4/1, our CRF community will come from all over to learn, laugh, share & reconnect. Get ready for an event dedicated to supporting life-saving research for our children and adults with cystinosis. Stay tuned for more!

"Landon just turned 12. It feels like we are entering into a new chapter. We see his curiosity about the world expanding. We spent most of his life walking a step ahead of him, guiding him. In this chapter, we are walking next to him & supporting him" - Lauren Hartz, Landon's mom

Happy transplant anniversary to Jacob Seachord! 2 years ago, Jacob became a hero for our community by becoming patient #3 in Dr. Cherqui's stem cell & gene therapy trial, paving the road toward a cure! Thank you for making our dream of a world without cystinosis possible!

CRF's #GivingTuesday Matching Gift Challenge is back - with twice the impact! Thanks to our incredible community of donors, the matching challenge has been doubled from $50,000 to $100,000! All donations are gratefully appreciated. To donate now, visit bit.ly/3DXXcxv

Join 156 other families from around the world & enroll in the patient registry. When you enroll you are helping the research community learn more about cystinosis so that they can target research that will lead to better treatments & a cure. Enroll today: cystinosisresearch.org/cure-cystinosi…

Happy #WorldKindnessDay! “Kindness is doing what you can, where you are, with what you have” - Random Acts of Kindness activist. The most powerful thing about kindness is that EVERYONE has the power to give it. Show us the love! Tweet your random acts of kindness & tag us!

Did you know that CRF issues research grants twice a year? So far in 2022 we have issued seven new grants totaling $1,287,127.04. In December, we will announce more new grants! Every minute there is a cystinosis researcher working somewhere in the world to find a cure.

Make DOUBLE the impact this #GivingTuesday by joining our $100,000 Matching Gift Challenge! For every dollar you donate to cystinosis research, a generous CRF donor will match your gift up to $100K! Join the challenge this Giving Tuesday, Nov. 29th! bit.ly/3DXXcxv

If this photo doesn't put you in the holiday spirit, we don't know what will! Throwback to the Galloways' first annual Windermere Charity Golf Classic last December for Collins. They raised an incredible $7,000 for cystinosis research! We can't wait to see what you do this year!

What're you thankful for this #Thanksgiving? We're thankful for 220 studies, 103 articles in prestigious journals, $65M raised for cystinosis research, 1 FDA approved drug & 1 FDA approved clinical trial. But most importantly, we're thankful for YOU- our incredible CRF community!

The big day is almost here! Set a reminder for our #GivingTuesday $100,000 Matching Gift Challenge this Tuesday, November 29th! All donations will have double the impact on cystinosis research this Giving Tuesday. Make your mark! To donate, visit: bit.ly/3DXXcxv

It's showtime! All donations are gratefully appreciated in our #GivingTuesday $100K Matching Gift Challenge! This year a generous CRF donor has agreed to match all gifts up to $100K, which means your dollar will go twice as far this Giving Tuesday! bit.ly/3DXXcxv

CRF Pro Tip: It's easy to reach out and communicate during the good times, but what about tough times? As it's said, it takes a village to raise a child. Accept help from those who care about you. You don't have to tough things out alone. Support comes in all shapes and sizes!

The holiday season is here! To celebrate, register for DOH 2023! From 3/30 to 4/1, our CRF community will learn, laugh, share & reconnect. Get ready for an event dedicated to supporting life-saving research for our children and adults with cystinosis. bit.ly/3tlxWLN

You can support CRF while you holiday shop! Remember to shop AmazonSmile to support CRF’s mission. Select the Cystinosis Research Foundation as your charity and a percentage of your purchase will be donated to CRF. Your shopping supports cystinosis research!

Join 160 other families from around the world & enroll in the patient registry. When you enroll you are helping the research community learn more about cystinosis so that they can target research that will lead to better treatments & a cure. Enroll today: cystinosisresearch.org/cure-cystinosi…

"For anyone just starting out on your cystinosis journey, we are “rare,” but it doesn't feel like it when you find your support system. With support from doctors, friends, family, social workers and the CRF, we all have a new hope"-Makayla Rae Ritchie, Rowan's mom.