My 20yr old Super Sophie has endured a 3 hour operation today involving a biopsy on her hands & teeth removal & she’s still smiling.💙
She’s amazing.🤩
#RareGenetics
#LearningDisability
#FindTheSmiles 🥰

My gorgeous 15yr old Evie is helping me shopping before going back to her Special School tomorrow after the Easter Break.
She’s got lots of serious stuff going on with her health currently 😢but it never stops her smiles.🥰
#RareGenetics
#LearningDisability
#Findthesmiles 😍

Guess who is 23 Today?💜
My absolutely fabulous, funny, gorgeous, kind Olivia.🥳
She adores being the centre of attention 🤗so will love today.🤣
#RareGenetics
#LearningDisability
#FindTheSmiles 🥰

My very precious 15yr old Evie 🥰took lots of persuading to have her CT ‘Tunnel Test’ head scan.
She was really upset & anxious BUT she did it.🙌🏻 Staff were wonderful & made reasonable adjustments to enable it to happen.
💙NHS
#Cholesteatoma
#LearningDisability
#RareGenetics

#RareDiseaseDay 2024
Meet my fabulous 3 girls.
Olivia 22.Sophie 20 & Evie 15.🥰
They’re diagnosed with SBIDDS. A very rare genetic condition.
They’re also utterly fabulous😍
There’s always smiles despite the many complex medical & life challenges they face.☺️
#RareDiseaseDay

My fabulous 15yr old Evie🥰 (AKA Dorothy this evening 😜) & her superstar friend Eddie 🤩are so excited , we’re about to set off to see The Wizard 🧙‍♂️at the Theatre.🥰
#RareGenetics
#FindTheSmiles
#WizardOfOz
TheVivienne 💚
The Wizard of Oz
Hull New Theatre

It’s stormy outside but there’s definitely sunshine ☀️ in our kitchen with Olivia, Sophie & Evie all full of smiles.☺️
#RareGenetics
#LearningDisability
#FindTheSmiles

🤗Happy 15th Birthday🤗 to my utterly gorgeous & fabulously unique Evie🥰 Super excited & now on way to her special school with her new birthday Teddy Bears.😍
#RareGenetics
#LearningDisability
#Epilepsy
#FindTheSmiles

Olivia, Sophie & Evie are Panto Ready 🥰
Bring on the full on dynamics & challenge🙌🏻 😜in an attempt to create smiles & memories.☺️ ( It’s a relaxed performance so hopefully that will help .)
Wish us good luck 😜
#RareGenetics
#LearningDisability
#FindTheSmiles 😍

My 3 wonderfully special girls, Olivia, Sophie & Evie sending Xmas smiles to everyone. 🎅🏻🎄🥰
#RareGenetics
#LearningDisability
#FindTheSmiles ☺️

My Sophie loves her ear warmers, they are ideal as they don’t cover her BAHA (hearing device on her head) & and they are an ideal fidget device for her.☺️
Embracing difference is amazing 🥰
#LearningDisability
#RareGenetics
#FindTheSmiles

🤗Sunday Timeline Smiles🤗
My 22yr old Olivia been to see Santa, reported she’s been good & has put her order in for ‘a new jumper please’ . 🎅🏻
#RareGenetics
#LearningDisability
#FindTheSmiles 🥰

My gorgeous 14yr old Evie Lola came home from her Special School tonight to find her Naughty Little Elf had brought his friends to play. 🤗
She’s absolutely delighted.🥰
#RareGenetics
#LearningDisability
#FindTheSmiles 😍

My fabulous 22yr old Olivia is often challenging, high anxiety, fixations & obsessions. Her crisis episodes are really tough.😔
So when she is at her happiest , like this moment with a life size Buddy the Elf are magical 💜
#RareGenetics
#LearningDisability
#FindTheSmiles 🥰

My gorgeous girls , Olivia 22, Sophie 20 & Evie 14. 🥰
Lighting timelines up with their smiles I hope ☺️.
We could all use a smile I’m sure.😊

#RareGenetics
#LearningDisability
#FindTheSmiles 😍

Olivia is 22, Sophie is 20, Evie is 14.
3 beautiful souls🥰
BUT
They can’t even cross a road safely or recognise a penny from a pound.
Jeremy Hunt wants them to go into paid employment.
Do I 😂or 😢
I’m done with this Government. 🤬
#AutumnStatement
#RareGenetics

I would suggest that many of the learning disabled people who died from Covid 19, would not “have reached their time anyway'.

Horrific from Boris Johnson.

🤗Happy FriYayyyyy 🤗
My super cute & super special 14yr old Evie is super excited to go to her special school for Pudsey Day 🐻 💛🥰
#RareGenetics
#LearningDisability
#Epilepsy
#ChildrenInNeed

Look who's been cooking up a storm in the kitchen today!

Olivia whipped up some delicious Cheese & Onion wraps. 🧀🌯

#YumYum #IndependentLivingSkills #LifeSkills

Glen says: 'Sophie’s first attempt at making a very tasty loaf of bread. She followed instructions and timings to produce a Cheese n Onion loaf. All her friends in Independent Living tasted and all agreed it was the best! I was proud of Sophie’s effort today, Well done!'