Opération 1000 chercheurs dans les écoles. Ravie d'avoir fait une intervention au lycée Français Charles de Gaulle devant les élèves de 2nde. Des moments tjrs très enrichissants. #Telethon2022

Cette semaine de AFM-Téléthon s'est conclue en musique avec le concert des élèves d'option. Bravo à l'ensemble de la communauté LFCG engagée cette semaine pour aider à la recherche contre les maladies génétiques 🧬 📷➡️ lyceefrancais.org.uk/news/telethon-… Dons 👉 mapage.telethon.fr/telethon-franc…

We are hiring ! A post position (18 months in first instance) is open to develop therapeutic approaches for #FSHD is our lab. Get more information here: ucl.ac.uk/work-at-ucl/se…

Fortitude webinar. Up coming clinical trial for #FSHD

👀 #UK #FSHD Registry Participants - please keep an eye on your email inbox for your invitation to participate in this important survey. Let your voice be heard! 💭📢

Busy week for the #UK #FSHD Patient Registry! Participants should now have received another email detailing how we are supporting an FSHD Society Health Economics project. 🕵️ If you don't see the email in your inbox, check your junk folder, then contact [email protected]

Very nice images

UK folks with #FSHD please complete the survey below if you haven't already done so, before the closing date of 14th April ✍️

Good to know: morning vaccination is more beneficial than evening vaccination.

ENMC workshop on FSHD. The paper is published. #FSHD @FSHDEurope nmd-journal.com/article/S0960-…

It was very nice to see everybody. Fantastic conference !

FSHD congress in Milan Fantastic talks and posters and great people ! #FSHD FSHD Society

FSHD UK founder Rajeshri Badiani recently made waves at the IRC with a captivating presentation - covering our history and her tireless endeavours to create UK clinical readiness. Her presentation elevated the profile of FSHD UK within the international research community.#FSHDUK

Happy World FSHD Day! Share and let everyone know! Lets unite to find a cure - and don't forget to go orange in solidarity #FSHDDay #FSHD #fyp #new #newpost #MD #FSHDUK #WorldFSHDDay #FSH #awareness #like #share #comment #follow

📸The Millennium Bridge in Newcastle, UK was lit orange thanks to TREAT-NMD to mark and support World FSHD Day.

Fantastic talk from Dr Duguez and Dr Rene at the ALS and MND research meeting #ALS Stephanie Duguez School of Medicine | Ulster University ARSLA

First FSHD UK research team meeting at UCL. When researchers and clinicians meet to pool their strengths to fight FSHD.

Virginie Mariot has presented our work on short and long term efficacy of an AAV-shDUX4 in a DUX4 mouse model FSHD Society IRC conference in Denver. A lot of very interesting discussions. #FSHD DN ICH

It was a great honour to present our data on Myostatin as a biomarker for FSHD during the FSHD society IRC conference in Denver #FSHD DN ICH

Happy World FSHD day 2024! Let’s work together to find a cure. #FSHDDay #FSHD #MD #FSHDUK #WorldFSHDDay #awareness