i am ME (@myalgicme) 's Twitter Profile
i am ME

@myalgicme

Staying positive with the negative stuff.
Obsessive thinker living with ME/CFS/FM.
Just reaching out there...

ID: 1131504527834832897

calendar_today23-05-2019 10:17:56

211 Tweet

709 Followers

1,1K Following

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Had bad head yesterday after doing too much - better today - but now scared to do anything in case it comes back again as once it kicks in there's no stoppng it... What to do eh?! Same old problem over and over...😶

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Some days all I can do is post a picture of a flower😶 #ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #art #health #Creative #creativeartist #wellbeingthroughcreativity #artistic #fatigue #chronicillness #ChronicPain

Some days all I can do is post a picture of a flower😶
#ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #art #health #Creative #creativeartist #wellbeingthroughcreativity #artistic #fatigue #chronicillness #ChronicPain
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ANGRY DRESSER🤪 Pullover’s a pushover shirt’s shite pants are pants tie’s tight tights slack slacks baggy slippers slippy socks smelly blouse lousy suit unsuitable bra un-bare-able skirt un-wearable knickers knackered shorts too long overcoat underwhelming long-johns long-gone

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Knowing when to stop - that can be difficult can't it... exercise, thinking, arguing, eating, drinking, talking, walking, writing, reading, watching, listening... Sometimes it's hard to know when it's enough 😶

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I really wish apparently 'well meaning' people would stop equating their relatively acute experiences with my chronic ones. Saying things like, ' I was so tired yesterday that I think I got to understand what it must be like for you' - can be a little bit annoying 🙁

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When I'm able to do 'creative' things, no matter how small, it's very obvious how different I feel towards others. Annoyances & irritations fall away as I find better things to think about. On 'empty' days my head fills with resentments & the opposite of love. Creativity helps 🙂

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Really not sure about all this emphasis on the importance of talking about how you're feeling. 'Talk to someone' is the message. But to who? The emphasis should surely be on how to listen - then people who need to talk might feel less scared about making themselves vulnerable.

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Went for a lovely walk yesterday & really thought it had done me good. Boy did I get that wrong! So predictably unpredictable😶

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Best present of the day - the witch hazel tree is out 😀 Merry Christmas! #Christmas #ChristmasDay #xmas2020 #XmasDay #ChristmasDay2020 #ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #painting #trees #garden #health

Best present of the day - the witch hazel tree is out 😀 Merry Christmas!
#Christmas #ChristmasDay #xmas2020 #XmasDay #ChristmasDay2020
#ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #painting #trees #garden #health
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Witch Hazel & Crocus = Hope🙂 #ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #painting #art #trees #garden #wellbeingthroughcreativity #health

Witch Hazel & Crocus = Hope🙂
#ME #CFS #FM #myalgicE #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #spoonies #spoonie #painting #art #trees #garden #wellbeingthroughcreativity #health
i am ME (@myalgicme) 's Twitter Profile Photo

Sick of hearing how important it is to talk about how you're feeling & what's really going on. Sick of hearing how it always helps. Sick of hearing how honesty & owning stuff gets you help. Sick of being told to share with friends & family. YOU HAVE TO HAVE PEOPLE WHO'LL LISTEN😶

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Morning! - the witch hazel continues to offer hope 🙂 #ME #CFS #FM #myalgicE #fatigue #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #depression #spoonies #spoonie #trees #garden #hope #love #Kindness #care #health #Peace #witchhazel ❤

Morning! - the witch hazel continues to offer hope 🙂
#ME #CFS #FM #myalgicE #fatigue #MillionsMissing #MECFS #MEAction #pwme #ChronicFatigueSyndrome #MyE #depression #spoonies #spoonie #trees #garden #hope #love #Kindness #care #health #Peace #witchhazel ❤