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“Graded exercise programs have been shown to be beneficial”. Not true. “Unwarranted concerns that any physical activity could be harmful may lead you maladaptive attitudes that increase disability”. These are guidelines used today in Australia. #pwme #MyalgicEncephalomyelitis

Ella is only 20 years old, but it's been almost four years since her feet have touched the ground. She is unable to lift her head, to sit upright and she's often unable to talk or communicate. #myalgicencephalomyelitis #northernbeaches bit.ly/3sa0AiA

Victims of this ignorance are patients, clinicians, #HealthcareSystem, social security, and more. We advocate ME International Consensus Primer for Medical Practitioners (ICP). #Healthcare #MEcfs #CFSfukuda #MEicc

12th May is International #ME Awareness Day. 👇 #MyalgicEncephalomyelitis is a disease that places a huge burden on up to 250,000 Australians & their families. There’s a dearth of meaningful biomedical research funding, & currently no treatment or cure. meaustralia.net/what-is-me/#un…

The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME meaustralia.net/wp-content/upl…

12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 meaustralia.net/wp-content/upl…

12th May - #MEAwarenessDay The Royal Australasian College of Physicians #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines. Expectations for new clinical guidelines in Australia👇 meaustralia.net/wp-content/upl…

2022, & this is still the situation in Australia. When will #pwME receive proper medical guidelines, care & treatment, especially from medical professionals? The Royal Australasian College of Physicians RACGP Royal Australian College of GPs (RACGP) President NHMRC @GregHuntMP

#MEAwarenessDay is today, 12th May. For decades, this below has been the plight of people with #MyalgicEncephalomyelitis. It’s beyond time for change, especially with so much biomedical research showing many physiological abnormalities in #pwME. We need far more research funding!

#May12 #MEAwarenessDay

M.E. Australia The Royal Australasian College of Physicians @ceo_nhmrc NHMRC 🇦🇺 needs new clinical guidelines yesterday. In the interim, please release a formal statement to stop the recommendation of graded exercise and cognitive behavioral therapy as treatments. #pwME deserve better. #MEcfs #MEAwarenessDay #MyalgicEncephalomyelitis

On #MEAwarenessDay, let’s highlight the work of advocates who are both very sick and working hard for us. Thanks Call For Change Australia for your petition and submission to the #DisabilityRoyalCommission #pwme #Disability

The Call For Change Australia petition is extended - please read and consider signing. #pwme #MyalgicEncephalomyelitis #MEAwarenessMonth #auspol

@PhillippaHolla1 It'sME(Jaime) Thane Black neurodiversweetie We need a database of #MyalgicEncephalomyelitis (ME) outbreaks by date and location ME Advocates Ireland MEadvocacy.org #MEAction Scotland #MEAction Network M.E. Australia Millions Missing France #MillionsMissingDenmark Millions Missing Can Millions Missing Finland #MillionsMissing Deutschland Open Medicine Foundation Sheffield ME & Fibromyalgia Group MillionsMissingStavanger #pwME

For International ME Awareness Month, I wish to shine a spotlight on M.E. Australia & Sasha Sasha for their efforts in promoting the ME-IC Primer which educates medical professionals about expert diagnosis (ICC).🧑‍🔬 🩺🌡️🛌🌏📢

Eileen 🔊 Sasha Thank you Sasha & M.E. Australia for advocating for #pwME and the ICC criteria. #meawarenessmonth