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My school's #HPV letter for a 12 year old... This chilling mission creep re. kids being allowed to make decisions about the drugs they take is wrong, dangerous and unethical. It is undermining the authority of parents and the essence of family. Plus I very much doubt that any

My daughter has all but 2 of these symptoms, and by no means is this an exhaustive list. Please be #PANS #PANDAS aware. #ocd #anxiety #tics #ARFID #ADHD #Neuropsychiatric #BrainInflammation #Autoimmune

Here we go again but this time we our youngest daughter 😢 - deja vu 😔 #Pans #Pandas #Ebv #Strep #FND ?? 🤯

Questions still need to be answered about the uptick in the sudden onset of autoimmune conditions, late-stage cancer, neuropathy or cardiac events in otherwise healthy young people. 🧐

It’s essential that mental health professionals, educators and physicians are aware of PANS existence. Without awareness of the symptoms & treatment pathways for #PANS #PANDAS children & adults risk medical gaslighting & iatrogenic harm. Some of our kids also present with #ME

Media spotlight could signpost parents of children suffering 2 charity @PandasPans where wealth of information/support. Can also find comfort in support group currently lifeline to 6.2K families all with children suffering. Not rare!🙏🏻RT #PansPandasHour panspandasuk.org

Having had a child struggling with MH set on wrong treatment pathway for 2.5 years causing exacerbation of symptoms, I'd signpost others, dependent on onset/symptoms to @PandasPans🤞🏻their child could be saved from unnecessary suffering #PansPandasHour panspandasuk.org

Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️#pans #pandas #panspandas #MedTwitter

It's #LymeDiseaseAwarenessMonth #TickBorneDiseasesAwarenessMonth and #MentalHealthAwarenessWeek Did you know that Lyme and other Tick-Borne Diseases can cause neuropsychiatric symptoms and be misdiagnosed as mental illness? #Lyme #Bartonella #PANS #Neuropsychiatric

#panspandashour this poignant poem is on the wall at moms care home. Some of the lines resonate with our PP kids “I haven’t always been this way” and “think of the life I may have once led” hit hard 💔 sending love to my Boy and others suffering ❤️

This is why @PandasPans & families fight so hard 2 bring change! Situation around #Pans #Pandas in UK has left children suffering unnecessarily.Delay in diagnosis can often=exacerbation of symptoms & sometimes irreparable damage! Hopefully change is now on the way #PansPandasHour

Five minutes of your day could change the course of a child or young person’s life. Please read and share. Brilliant to see The Sunday Times covering PANDAS today, showcasing the reasons why increased awareness of these devastating post-infectious conditions is critical.

"We can't give up!" The #PANS #PANDAS community will keep fighting for our children, fighting for awareness, treatment & support. This amazing PANS PANDAS dad, Neil Gilson Neil Gilson, hasn't given up either, he's swimming lake Geneva again! #DadInspiration #Dad #FathersDay

#PANS #PANDAS robs children of so much. Imagine your child being too unwell for school for over 4 years.

One week to go! PANS PANDAS UK are really pleased to be taking part in the online Access to Academic Learning Conference. All event profits go towards building Discover Inclusion's assistance fund. For tickets and more info please visit: eventbrite.com/e/access-to-ac… TinaC

Thank you for raising #PANS #PANDAS today and bringing it to the attention of the Prime Minister Wendy Chamberlain . Zöe Franklin MP Many people in the area suffer from these conditions, please take a look at PANS PANDAS UK #PansPandasAwarenessDay

No child should have to lose childhood to #Pans #Pandas No teen should lose important teenage years. Without correct diagnosis/treatment horrific conditions are carried to adulthood. Young adults then become lost in an adult MH system #PansPandasHour

#2025 #PANS #PANDAS As it stands if you take your child to the GP for sudden onset post infectious encephalitis you'll likely be referred to CAMHS or Social Services. Both are incorrect pathways.

Dr. Allison Vreeland has received a PPN research award for her work to advance the identification of neural biomarkers for PANS/PANDAS (and Sydenham Chorea). The work holds promise for more accurately identifying & promptly treating impacted children. pandasppn.org/research-award…

Amazing news , thank you PANS PANDAS UK Headteacher Update and SecEd for shining a light on this. My Son’s life has now been on hold for 5 years due to a lack of medical awareness. Often Teachers can be the first to see signs of change in a young person.